tom replied to the topic Sore tongue advice in the forum Side-effects 11 years, 11 months ago
Hi Emma and Mum
Sorry Mum's got a poorly mouth, I was told to use a soft tooth brush during my treatment on CTD and I always have used mothwash but used it four/five times as much as i do when on treatment.
Get the Nurses to get the act together I had a chart for all my drugs to take at a certain time I would make sure that your Mum is…[Read more]
tom replied to the topic All Systems Go! in the forum Treatment 11 years, 11 months ago
Well done Dai, I am not the only one on here that hopes it works a treat for you Dai with little side effects.
Keep strong and stay well
Tom "Onwards and Upwards" xx
tom replied to the topic Greetings Joining the happy band in the forum Newcomers 11 years, 11 months ago
Hi Carol
Sory you have relapsed and i wish you luck on your 2nd SCT and say a big thank you to your Brother from me am sure its better than a scarf for christmas 😀 Lets hope this one will be better.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Neutrophil recovery after SCT in the forum General 11 years, 11 months ago
Hi Mike
Well am sure the thecko stuff will all fall into place am afraid to say its a long haul this one M8, but i am happy if my Dr is happy 😀 and I feel well 😎
Good Luck in your road to remission
Tom "Onwards and upwards"
tom replied to the topic Is it coming back in the forum General 11 years, 11 months ago
Hi Wendy
Am sorry you are having Pain 🙁 and I hope they soon sort it all out for you.
Good luck for friday
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Very worried in the forum Side-effects 11 years, 11 months ago
Hi Emma and Mum
Well I bet your all pleased that a plan has been hatched and that your Mum is Happy with it 😀
Its Going to be a hard slog for you to go and visit at Hospital so Emma you take care of your self while your Mum is in hospital and getting constant help sit back and breath 😎
Just Make sure your Mum does not get too comfy…[Read more]
tom replied to the topic 10 Months Post Transplant in the forum General 11 years, 11 months ago
Thats Great News Michelle
Another Onwards and Upwards 😀 we are soon gonna need a bigger room 😀
Long may it continue.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Very worried in the forum Side-effects 11 years, 11 months ago
Hey Emma am sending ciber hugs for you and your Mum I hope they will give you some comfort during this difficult time, I hope Monday works out good for you both and will sit and say "Gosh why did I worry about that"
so big big ((((((Cyber Hugs))))) for you both
Love Tom "Onwards and Upwards" ((((HUGS)))) xxxx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 11 years, 11 months ago
Hi Ann and Pete
Well I had two a day of the injections and the nurse bless her used the same needle left needle in and just changed the filler 😀
Side effects? pain in ribs and back for me for about two/three days and as the saying goes the more pain the better 😎
Hair well I lost mine shaved the head, lost all body hair cept eye lashes…[Read more]
tom replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Jean
Well I have been known to watch Footy at the Club we drink in 🙂
I got three £5 notes for friends of ours that had George Best on limited edtions from Ireland a few years ago, so I do a fair bit re football memorabilia Ha ha not bad for a man that dunt do footy Ha ha
Off side rule :::: When a player is nearer the goal before the…[Read more]
tom replied to the topic Trials and maintenance therapies etc. in the forum Treatment 11 years, 11 months ago
Hi Tom
Well I had my transplant in December 09 I hhad Zometa infusion every four weeks in Scunthorpe General and that lasted 2 years.
I am now Drug free and in remission would i want to go on a trial?? if I am in remission I see no reason to take more drugs that would possibly give me side effects.
I was well and truly pleased when I came…[Read more]
tom replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Jean and Frank
Well football :-/ am sure some of the men are crazy 😀 never liked it never understood it BUT two out of our three Sons are pretty good in the local teams and are well fought after at the start of the season to go onto other teams ??????? :-S
And tell Frank I have a Footy shirt that was Mark Wilson's (played for Man U)…[Read more]
tom replied to the topic chest infections – immuglobin transfusion – 3 days in hospital in the forum Treatment 11 years, 11 months ago
Hi Sarah and Henry
Well one of the ways to go is Onwards and Upwards 😀 and we also have Vasbyte and the famous Whatever it takes 😀 and the oh lets get on with it saying 😎
I hope you dont have to take on extra work to get what should be given as a matter of course (dont do mucky chimneys lol)
And a well done to your Daughter on her…[Read more]
tom replied to the topic Happy Birthday in the forum General 11 years, 11 months ago
Hi Liz and Kev
Yep its Cold here these last few days but as for the hair I have plenty of hat/caps to keep the Bald pate warm Lol
Hi Mavis
Many Thanks for that and happy and cheeful is best for me i dont do Sad am pleased to say 😀
Hi Phil Jan and Sam 😀
Thanks for that and it is Great News and I have been told the next 12 years…[Read more]
tom replied to the topic Very worried in the forum Side-effects 11 years, 11 months ago
Hi Emma and Mum
Am so sorry your Mum has had a fall and I hope its soon sorted.
Your Mum is a fighter as I recall when she found out about the MM she said "Onwards and Upwards" and that Emma speaks volumes about your Mum's strenth.
I do hope the consultant ask's your Mum what she wants and just lets you sit and listen because it is your Mum…[Read more]
tom replied to the topic Bereavement Counselling in the forum End of Life and Grief 11 years, 11 months ago
Hi Gill
And for that I am gratfull, yes am gratfull you mad it to the First talok at the Harris, and you are correct Stephen passing has not and am sure will not force you to move on as we all do things at OUR pace and not to fit in with this that or them.
I hope you go back and talk its better to talk to some one you dont know rather than…[Read more]
tom replied to the topic SCT – Franks turn in the forum Treatment 11 years, 11 months ago
Hi Jean and Frank
Its a shame a lot of the Dr's and Consultant tell us how it is is if we have done all the study's he/she has done for the last 10 years or more :-S But hey ho am sure its what we have got to get used to (but mine is a slow talker and stops if he sees am confused Bless)
Hey I aint a Footie thingie?? what do they call them…[Read more]
tom replied to the topic Out with The Rev… in with Ben in the forum Treatment 11 years, 11 months ago
Hi Dai
I hope they get back to you soon to let you know its been passed and can start it of soon (am the sooner the better type of guy)
As for the Thalidomide I was on Four Tabs a day (8pm) with my CTD. still got dodgy toes though Lol but if thats all I get then am Happy (ish)
Good Luck Dai
Tom "Onwards and Upwards"
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 11 years, 11 months ago
Hi Vicki and Colin
Hope your back to work is going Ok am sure it helped Elaine when she went back to work after my SCT it gives her something else to worry about apart from iccle ole me Lol, Colin is just a mere male we never knnow when too much is TOO much till we end up in bed early nite shattered:-S and if Colin is like me he will never learn 😛
tom replied to the topic Happy Birthday in the forum General 11 years, 11 months ago
Hi Vicki and Colin
"Look young for my age" Give over you will make me blush 😉 am sure it will last me a fair few years yet 😀
Party aint stopping yet and hair will be cut at week end ready for Grandson's Birthday Party 😎
Love Tom "Onwards and upwards" xx