JandK

  • tom replied to the topic Bendamustine Here We Go in the forum Treatment 12 years ago

    Morning Keith

    I also hope the Bendamustine works for you with little or no side effects (as if :-S ) lets hope it kicks its butt and give you a long long remission.

    Tom "Onwards and upwards" xx

  • tom replied to the topic Treatment update in the forum Treatment 12 years ago

    Hi Liz and Kev

    Am sorry to read you both are having a bad time with the Bloomin MM 🙁

    And hey Liz a tear here and their is good for you trust me been done tee shirted an all, am sure it will only be a matter of time before they get a comination that will work.

    Stay strong you two its the best way hard at times i know like all of us here…[Read more]

  • tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago

    Morning Chris and Lena

    Yes the ward was a comfort as much as we wanted to get out and home 😀 a strange strange feeling :-S but when home for that day and a bit it all falls into place.

    I was like you Chris 5 (ish) days when I was a bit too bad not wanting the young bride (Elaine) to visit as I spent most of it asleep, the nurses used to…[Read more]

  • tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago

    Hi Chris

    Well a warm welcome home and long may it continue 😀

    As for me I was a wee bit scared when I was at home at the start ie not having a proper nurse on call and if it will keep n keeping better it worked and still is so you my Friend enjoy that Cuddle its a good healer 😉

    Love to you both
    Tom "Onwards and upwards" xx

  • tom replied to the topic Coming to terms in the forum Newcomers 12 years ago

    Hi Karen

    And a warm welcome to you, you have had some great advise from the group and I hope it has helped?

    As you have read some peopls have placed the MM rthingie in box's shoved it in a cupoard under the stairs I have placed mine on my left shoulder in a imaginery brick box (with Lid 😉 ) and leave it alone(as best i can) for as long…[Read more]

  • tom replied to the topic Outdoors Paul in the forum End of Life and Grief 12 years ago

    Wendy Lovely Post very moving, I aslo am sad that we lose so many in a year and wonder why I am still here and in comparative good health.
    Many Thanks for the Link, stray well and strong

    Love Tom "Onwards and upwards" xxx

  • tom replied to the topic Good news in the forum Treatment 12 years ago

    Well Done Ali's Mum 😀 Thats great news Ali, and yes its a hard year or tow to getting back to near normal but as your Mum health and strenth improves thats when you will say "Well that was worth it" and I hope thats not too far away now 😎

    The "Onwards and Upwards" is not mine to give 🙁 but its certanly yours and your Mums to take 8-)…[Read more]

  • Good Morning Vicki and Colin

    Yes It Looks like you are on the HOMEWARD BOUND Colin 😎
    Its Good to Blubb its a release and it works :-D, am sure the pains will soon be sorted.

    Love Tom "Onwards and Upwards" xxx

    Ps am on here at this time of the morning because the three grandkids we are looking after are Up and At em Lol.

  • tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago

    Hi Chris and Lena
    Well I hope you are waiting for your drugs now and ready packed. Dont forget to get some Anti Sick Tabs as I needed them for a month or two after SCT :-/
    Take care when you get home now is when the healing starts stay away from infections and you might (i did) need some sleapy pills also.

    Vickie and Colin
    It wont be long…[Read more]

  • tom replied to the topic Joining the party in the forum Newcomers 12 years ago

    Hi Stuart and Vanessa

    A Warm welcome to the site.

    I am Tom had CDT and SCT in Decenber 09 am now in remission and Drug free am pleased to say.
    Good Luck on your road to remission as its a hard one some days but stick with it and stay strong you will soon be my side of it and it feels great 😎

    Ask away and this is the place to vent out…[Read more]

  • Hi Vicki and Colin

    Well Honest it is going the correct way and to be fair its one not to rush.

    I didn't have Injections post SCT but I do remember them prior to SCT and yep it was Bloody awful, the pain was in my ribs,back and arms and my pain lasted about two and a half days, I was told it was theCells getting pushed out into the blood…[Read more]

  • aww Gill

    Am sending you HUGS lots of them((((((()))))))).

    I bet its hard to cope but am sure you know you have to, I cant tell you it will get better as i haven't been through it, but I show/read out these posts to Elaine (i think am getting her ready sad in it? )

    Much Love and many thoughts from one teary eyed Tom xxx

    Love Tom xxx

  • tom replied to the topic Waiting in the forum End of Life and Grief 12 years ago

    Hi Sue and Michael

    Am sure that at anytime in anyones illness you are never wrong in asking Q's it may seem silly to you but if you are thinking it then its imprtant to you, so i would say ask away and get answers it might not alter the outcome ?? but trying and knowing is better so ask away
    Thinking of you both

    Love Tom xxx

  • Hi Vicky and Wide awake Colin 😀

    Its Going Good you two (even though it dunt feel it or look it) the Dr wouldn't say "Home at week end" if he thought it was not a Doable 😉 If I remember correcltly I was still Ill a day or two before i was shipped off home and was even sick in toilet the day I came home (i dint tell them) but took anti…[Read more]

  • tom replied to the topic Oh – Oh it's back in the forum General 12 years ago

    Hi Carol
    Aww am sorry you have had that MM kick back in 🙁 but hey am sure your Dr will get something to throw it to the back of your mind pretty soon 😎
    Stay Strong.

    Love Tom "Onwards and Upwards" xxx

  • tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years ago

    Hi Chris and Lena

    Its working well and it wont be long stick with it and you will soon be home, but trust me you are still going to need to be looked after for a month or so when you are home but the wait will be worth it 🙂

    Keep Well

    Tom "Onwards and Upwards" x

  • tom replied to the topic BMB Tomorrow in the forum General 12 years ago

    Hi Keith

    Well wot a to do as the saying goes 🙁

    Am sure you kn ow I say am a "If My Dr is smiling am happy" well that is because I trust my Dr and I know if I need to know anything its him that I see, and if its My Cancer Nurse Helen I see and need to know more My Dr is in the next roomits a case of waiting till he has done with who is in…[Read more]

  • tom replied to the topic New and need advice on Myeloma XI in the forum Newcomers 12 years ago

    Hi Eric (am pleased that OUR Eve Misses nowt Lol)
    And am with Eve, stick with the trials I am on nowt at the moment and still in remission 😀 and mine was just CDT then SCT all in 2009.

    Tom "Onwards and Upwards" x

  • tom replied to the topic Neutrophil recovery after SCT in the forum General 12 years ago

    Hi Phil

    Think its all been said Nowt normal in this dept so not one shoe fits all, I never ever bothered with my PP nuets or anything els i just wanted to see My Dr with a smile on his Face and to be fair that worked and still is for me 😎

    Keep well and stay Fit

    Tom "Onwards and Upwards"

  • Hi Vicki & Colin

    Its Good Colin is out of bed for a time even if he is asleep in chair, I bet he is a great Host before and will be again after SCT
    Dai is correct but as for me I went out amongst it all club and walks (short ones)

    Hope your counts are good Tomorrow Colin and get you off home where the hard work starts 🙂

    Love Tom…[Read more]

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