tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
You aint done it too easy have you? well its started now its just a sit and wait. Good Luck with it all
Onwards and upwards Tom xxx
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 12 years, 1 month ago
All crossed for you all its gonna be spot on, keep well you both and keep us posted 🙂
Love and Hugs Tom "Onwards and Upwards" xxxx
tom replied to the topic Releasing stress in the forum Off topic 12 years, 1 month ago
Hi Mary
Your more than welcome 😀 , its a hard place to be this MM malarky and all its treatments :-S but it will be worth it in the end am near 3 years post SCT and drug free 😎 it was an uphill struggle some times but the end result is Tom back to (near) Normal, but after us all going through MM we forget what normal is am afraid.
Stay…[Read more]
tom replied to the topic starting treatment in the forum Newcomers 12 years, 1 month ago
Hi Polly
Well I had my first BMB with no notice and to be honest it was a lot better than the weeks worry if I had to come back later Lol.
As for keeping the clots at bay I took an asprin every day (worked for me)
You will be fine Polly I worked up till my fourth cycle and had to go on sick for a year, that year took me through My SCT so its…[Read more]
tom replied to the topic my dad newly diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Lisa
Sorry to welcome you here but as you are a warm welcome.
Pain with it?? I have to say I had None except when I was having Bone marrow Biopsy :-/
Was on CTD then onto a SCT and that was 2009 now am drug free and doing well 😀
Its normal to be scared and worried but now your dad has got MM its a road he has to travel am afraid :-(…[Read more]
tom replied to the topic Infections in the forum Side-effects 12 years, 1 month ago
Hi David
I cant add to it either am afraid, Just wanted to wish you better soon.
Take Care my Friend.
Tom "Onwards and Upwards" x
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Hi Vicki
I was always told "If you have it Flaunt It" so here I am near three years on and waiting for you all to be the same as i then we can "Flaunt it" to all the newbie's.
Love One "Three year on (near) Tom "Onwards and upwards" good Luck for Monday, I was out on Day 16 lets see if Colin can match it :-)…
tom replied to the topic Releasing stress in the forum Off topic 12 years, 1 month ago
Na then Mary and Charlie
Yep we all get it more than we care to let on to be fair 🙁 yep I went to have a bit of counceling 😀 wouls i advise people to go ?? too true i would, I didnt think I (a big hairy ass docker) but yep it was just one of the things i needed and if I felt the need i would go again 😎
Now let me see Scream hell yes…[Read more]
tom replied to the topic Hello everyone………….. in the forum General 12 years, 1 month ago
Hi Marian
Sorry for the Late reply.
Sory I cant help you with this as i have never done a trial nor been asked to do any research, Just wanted to welcome you to our little group and wish you well on your road to remission.
Tom "Onwards and upwards" xx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Hi Chris
Looking Great My Friend 😀 its not started yet I dont think as and when you cant drink ask for the drip to be put back (I did) its bloomin hard to drink as much as you need and i found it better to use the line for mine for a day or two 😀 Just dont forget to unplug it before you get that need to dash to the loo ha ha I did many a…[Read more]
tom replied to the topic Swollen feet in the forum Side-effects 12 years, 1 month ago
Hi Jean and Frank
The CTD was not good for me it forced me on to the sick 🙁
Yes I had swollen feet and legs, Kids used to laugh when I showed them the ring around my sock top lol, Elaine got me new socks with no elastic in them real loos at top and that helped :-), the feet/legs will go down but my feet and fingers aint too good lol I still…[Read more]
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Morning Chris
Hope those stems flow in nice and easy and are kind to you during the grafting and growing, hope ur counts shoot up fast.
Tom "Onwards and Upwards" oh my SCT seems years annd years ago 😎
tom replied to the topic Low Blood Counts in the forum Treatment 12 years, 1 month ago
Ur welcome Keith 😀
I am pleased ur Doc is pleased with you and is keeping an eye on ur Platelets 😎
As you know I am spot on thanks
You Keep getting fitter and soon all will be sorted for you.
Tom "Onwards and Upwards" x
tom replied to the topic Any advise about organizing a fundraising event…. in the forum General 12 years, 1 month ago
Hi Kerry
Good Luck on that and I dont envy you doing it as am told its a lot of hard work that takes up any spare and unspare time that you have/dont have? i dont want to put you off by the way.
But we have had a few on here that are and have done things for Myeloma Uk and its worked and will for those that are still being done be a great…[Read more]
tom replied to the topic Recently diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mike
No problem re the reply time as and when thats what this group is all about 🙂
Yes My SCT went great (little uphill) and well worth it, would I do it again?? Too True I would now doing good and drug free, you my friend will be the same.
Good Luck
Tom "Onwards and Upwards"
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Hi Chris
Good Luck My Friend and hope its a smooth one.
Keep well and healthy
Tom "Onwards and Upwards"
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hi Vicki and Colin
And a Lovely Looking Couple if you dont mind me sauing 😀
Am sure you will cope with the flurry lord you have been doing it for long enough now He he. I hope its a printing error but ad give them a ring to make sure its not this thursday I would hate you to miss the day after all this time, I used to love Krypton Factor so…[Read more]
tom replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago
Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Wow are we seeing new photo's here 😀 all looking great.
Keep strong you all looks like winter is dragging itself closer for us 🙁
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Two hospitals in one day in the forum Treatment 12 years, 1 month ago
Hey Andy and Steph
Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀
Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
Keep strong you two
Tom "Onwards and Upwards" x