tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 3 months ago
Hi Vickie and Colin
Well in the nicest possible way I hope Colin gets some pain tomorrow not forgetting we all differ and some dont get the "Pain" for some reason or another.
As for the worry Vicki I worry about worrying about not worrying?? if that sounds sense lol, keep off the paint and try and relax
Love and Hugs
Tom "Onwards and…[Read more]
tom replied to the topic Feeling Useless in the forum Newcomers 12 years, 3 months ago
Hi Maxine
Thats not a problem at least your sister has got some one fighting her corner as am sure the whole family will rally round keep as much pressure off your sister and keep her calm.
Dont forget Ask away nothing is too daft for us to answer.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Positive News I Think!!! in the forum Treatment 12 years, 3 months ago
Hi Keith
I think it is Positive news, I hope the Dex is cut for you am sure that will make your life far better.
The lowest I got with the weight loss was 68 kilos and i was normaly 95 kilos, now back to the 92/95 yep i float from one to the other.
Good Luck Keith
Tom "Onwards and Upwards"
tom replied to the topic Diagnosed this week in the forum Newcomers 12 years, 3 months ago
Hi Ted
Well done that Man another three months doing good, keep it up and hope Xray is just put down to "Middle" Age 😉
Tom "Onwards and Upwards"
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Hi Ali
Well am pleased your Mum is getting stronger and Hugs all round are OK 😎
Am sure your Mum will feel better with the line out, and less chance of infection:-D .
I came out on the 16th Dec and was driving the following day (not far though) but I had my Line (Femoral) taken out the day before I came home.
I bet those two Kids…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 3 months ago
Hi Dai
So one part is looking Good am sure it will all fall into place whith rest and as for a healthy diet well for me you can throw that out of my window I have never had one? dont wish to play about with one and am sure your Dr is correct eat what you want when ect ect ect as I have done and Take a look at iccle ole me (touching wood) doing…[Read more]
tom replied to the topic Feeling Useless in the forum Newcomers 12 years, 3 months ago
Hi Maxine
Sorry to hear about your sister getting MM and being so young, i dont think you will know what treatment your Sister will be on at the moment?
Let us know where your Sister will be getting her treatment as we might have some one on here that is being treated at same Hospital.
If you need to ask any Q fire away and we will try to…[Read more]
tom replied to the topic Hello in the forum Newcomers 12 years, 3 months ago
Hi Megan and Phil
A warm welcome to your site, ask away and just remember no Q is too silly or daft we have all been through it Like me as a MM or one that is a carer.
Good Luck in Phils road to remissin.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic New – but no confirmed MM in the forum Newcomers 12 years, 3 months ago
Your Welcome Scott
I also hope that your results turn up and say you are Myeloma free 😀 and that Scott is not selfish its self preservation and that is what you need if confirmed with Myeloma.
If confirmed with Myeloma am sure you will kick its Ass and soon be on the road to remission (am sure we ought to get a songwriter to write a song…[Read more]
tom replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief 12 years, 3 months ago
Hi Teresa
Many Thanks for this post as am sure it must be hard for you, but your strenth has and will carry you on.
I never Met Peter or you am sorry to say but you both have and are in my thoughts.
I also hope and wish A cure is soon found for this dreaded illness.
Thank you for posting.
Love Tom xxxx
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 3 months ago
Hi Ali
Am pleased you had a great Birthday and am Pleased your Mum is getting better (no rush though) your Mum will still need to rest often to help heal.
As and when Mum checks what she can and cant do I hope she is still able to recieve "Cyber Hugs" as I am sending some more
Love and Cyber Hugs ((hugs)) to you both
Love Tom…[Read more]
tom replied to the topic New – but no confirmed MM in the forum Newcomers 12 years, 3 months ago
Hi Scott
Great Intoduction I may say 😀 Sorry you had to join us but you have dropped in to a great place great set of folks MM folk and carers (well those that look after us 😎 )
No need for the WWW now you are here so just ask away and am sure some one will help, nothing is too scary for us lot now 🙂
Good Luck (if it turns out to be…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 3 months ago
All the best with GCSF, my pain started on day three I think and lasted just over two days 🙂
Tom "Onwards and Upwards" xx
tom replied to the topic Weight Loss in the forum Treatment 12 years, 3 months ago
Hi Keith
Am sorry to hear your having another rough one 🙁
Am not sure if this will help?? and if it upsets people I am extremely Sorry 🙁
But during Mt Treatment I also had the Eff it av had enough, lets get some proper life and do away with the drugs. I told him upstairs (god) three times over the two and a bit years that I have had…[Read more]
tom replied to the topic Plasmacytoma – looking for good news in the forum Newcomers 12 years, 3 months ago
Hi Charlotte
I also must say sorry as I also missed your post ????? I dont have anything to say about your plasmacytoma as I am fortunate enough not to have had one? (I tell you MM gets staranger the longer I have it?)
I have to say you done as was aked "I've been instructed to introduce myself" and you have done that well 😎
Dont…[Read more]
tom replied to the topic Revlimid in the forum Treatment 12 years, 3 months ago
Hi Pennie and Andy
Thats a lot of breaks and fractures ?
I am pleased Andy is feeling better but if it was me "I would burn those logs that gave Andy all those problems 😉 )
Thanks for the boost you will have given others going on to that treatment 😎
Tom "Onwards and Upwards" xx
tom replied to the topic Loss of appetite in the forum Side-effects 12 years, 3 months ago
Nor I am afraid to say Tina I could eat all day and half the nite when I was on CDT, still can Lol.
Its not moaning Tina its just an Ask and thats nevet to much trouble for us 🙂
Hope the back pain is soon sorted and you can start that eating lark again 😎
Love and "Gentle" Hugs
Tom "Onwards and Upwards" xxxx
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 3 months ago
Hi Vicki and Colin
Your both more than welcome, and I bet neither of you can wait for that "Click" to being and feeling better 😀
As for the Painting well that has been always down to my young bride (Elaine) i do the ceilings and leave the rest to Elaine 😎
You ought to get Colin to Video you painting and put it on your tube ha…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 3 months ago
Well Dai And Janet
What a roller coaster you two have been on.
Am sure you can do "Battle" with them Dai and win (mental note nevet to let them know about my stash lol)
I remember being in Castle Hill during SCT days and I had to remind them to throw me the odd Anti Sck pills my way, I asked if they could not put them in my lock up and I…[Read more]
tom replied to the topic Not Looking Good in the forum End of Life and Grief 12 years, 3 months ago
Hi Gill and Stephen
Hows things this week end I hope you have both enjoyed it as best you both can 😀
Hope things have been good I just thought i would look in and see how you both are, thinking about you both
Love and Hugs
Tom "Onwards and Upwards" xx