tom replied to the topic Plasma cell leukeamia in the forum General 12 years, 5 months ago
Hey Only Me
Keep going Girl I know its hard and I feel harder for the Carer/watcher than us with MM, as while we are confined to bed we can sleep.
I hope the walk done you some good but please look after yourself also, you dont want to find yourself too Ill to visit, am sure its difficult to sleep but the power nap is also good for you half…[Read more]
tom replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi Vicky and Colin
Well I see as normal you have had some great and honest answers 😀
Just to add a little bit more The treatment I went through from start to this day was for me "Pain Free" except when I was having the growth injections I had pain in my rib cage and that was intermittent for I think four days.
And Like Helen said…[Read more]
tom replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi you two
Your more than welcome I and Elaine(the young bride) knows all too well how bad BUT how good its been for me, and as for the "Red Stufff" yep am partial to that its good for the MM 😀 and yes the Vodka is even Better for the MM 😎 drink too much and you forget you have it Lol.
Keep strong and live life with a smile
Love…[Read more]
tom replied to the topic SCT Colin in the forum Treatment 12 years, 5 months ago
Hi Vicky and Colin
Wow what a rush now?
Well to answer one of your Q's I had my SCT in dec 2009 yes it was hard but and this I mean if it fails would I do it again Too true I would 😀 yes its hard yes its a long time in the "Getting Better" Dept but well well worth it 😎 because I sit here now two years and six months down the line in…[Read more]
tom replied to the topic Plasma cell leukeamia in the forum General 12 years, 5 months ago
Hi Only Me
I am so sorry to hear your Mum has got more to fight than MM and trust me Girl its Ok to feel down at times like these.
That said I do wish and pray your Mum has longer with you all and is up for the fight, as always we never know what is around the corner.
Keep strong and tell your Dad i am sending prayers for your…[Read more]
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 12 years, 5 months ago
Hi Dee
I also am 56 (57 July) I was diagnosed with MM in jan 2009, I have had CDT as front line treatment then onto SCT in December 09, Now back at work (light dutie's) and doing great 😀 It aint a walk in the park this MM trip but would I do the same treatment again ? well I have to answer a big YES as at the moment it has given me over two…[Read more]
tom replied to the topic My lovely mum has been diagnosed with Multiple Myeloma in the forum Newcomers 12 years, 5 months ago
Hi Rachael
Am pleased your Mum Janice is home now (but keep an eye on her temp).
Am sure it will be the meds your Mum is having that is making her loss her appetite, I was same after my SCT and it was hard to face a plate full so my Young Bride (Elaine) gave me a smaller plate with smaller portions so as not to over face me with…[Read more]
tom replied to the topic PLATELETS in the forum Treatment 12 years, 5 months ago
Hi Eve and Slim
Yes I understand your concern I was worried with every ache and pain cough or sneeze but the Dr's and Nurses said all will be fine and it was and is 😎 I had to have more blood once and platlets twice after i got out within my 100 days 🙁 but it picked me up a little bit each time they threw it in 😎 I was told "Tom you are…[Read more]
tom replied to the topic Revlimid in the forum Treatment 12 years, 5 months ago
Hi Ozzy
A well done to you for making the decision to pack in work, as for me I still aint made my mind up yet (i know i dither) but mine is down to the financial side of it :-S, we had some put to one side for a rainy day but am sure you all know its Pi55ed it down since 2008 when My Young Bride (Elaine) fell ill then I in 2009 but hey Ho…[Read more]
tom replied to the topic My lovely mum has been diagnosed with Multiple Myeloma in the forum Newcomers 12 years, 5 months ago
Hi Rachael
A warm welcome to the site, and like us all am sorry you had to be here. I wish you and you Mum good luck in your Mum's road to remission.
I hope your Mum is feeling better today and the temp is sorted.
Keep strong.
Tom "Onwards and Upwards" xx
tom replied to the topic Annes Odyssey in the forum General 12 years, 5 months ago
Hi Roy and of course That wonderfull Lady Ann
Well done to you all, and let the fight be won 🙂
To One "Onwards and Upwards" Young Lady 😎
Tom "Onwards and Upwards" xx
tom replied to the topic Brocho – Bridget Rochfort in the forum General 12 years, 5 months ago
Hi Siobhan
Well am sure you have the strenth your Mum had.
Your Mum was a great Lady who had time for everyone and yes her spriti was hard to break and am sure reading your Mum's old posts will let you know that she was strong and witty On line as well as at home.
Hugs sent to you all at this sad sad time
Tom xxxx
tom replied to the topic Protein?? in the forum General 12 years, 5 months ago
Belated Birthday Greating Jo I hope you had a great time
Love iccle ole Tom xxx8-)
tom replied to the topic failed allo in the forum Treatment 12 years, 5 months ago
Hi Ian
Well you for one have made a fat Bald man very happy Lol, ye the skipping was trying to teach Grandson Liam how to skip 🙂 Hope his Mum and Dad keep it up so he wins the Race at skool 😎
Eve I have been told its alo for the young at heart and am sure we all fit into that one Lol xx
Jo Am sure it will be from lifting the beer and…[Read more]
tom replied to the topic My Dad in the forum Newcomers 12 years, 5 months ago
Hi Jennah
Am sure it will go well, send my regards to your Dad and wish him luck, let us know how you BOTH got on as am sure its not easy sat waiting.
Tom "Onwards and upwards" xx
tom replied to the topic Only me and I'm back.. mum has relapsed after 7months x in the forum General 12 years, 5 months ago
Hi Onlyme
Sorry to read about your Mom its a bugger this MM and you know am gonna say it but I cant add or help on this one just wanted to wish your Mum a good journey on the road to remission.
Tom "Onwards and Upwards" xx
tom replied to the topic failed allo in the forum Treatment 12 years, 5 months ago
Hi Ian
Well you have done well out in 48 hrs 😎
Gosh how weak our bloomin bones are? I have been today to see my Doc bloods are good but I tild him about a pain in right upper arm/shoulder so he sent me for X ray so have to wait till next thusrday for results. am sure he will say its just old age 😀
Keep fit
Tom"Onwards and…[Read more]
tom replied to the topic failed allo in the forum Treatment 12 years, 5 months ago
Hi Ian
Wow I heard what you have had and its amazing, I hope you are doing well, are you still in hospital?, how did you fracture your neck?. gosh I dare not sneez now.
Hope your soon better and please dont sneeze
Tom "Onwards and Upwards" x
tom replied to the topic REV/DEX Here I go! in the forum Treatment 12 years, 5 months ago
No No No lol I dont want to prick my self Lol I (at the moment) dont need to BUT could I stick a needle into my Tum ??? am sure I could If I had to but if the option of a Nurse doing it for me first came up :-S am off with that option Lol 😎 Good Luck to all those that do it themselves 😀
Tom "Onwards and Upwards"
tom replied to the topic 3;20 Am wide-awake blues… in the forum Treatment 12 years, 5 months ago
Hi Helen and John
May I ask you if the SCT was a success ? as since mine in December 2009 I only had Zometa infussion's? Is John having any of the bone strengthening drugs? as that could cause Jaw Problems?. but dont stop taking any treatment that is helping stop the MM.
all of us are different in our treatment and side effects.
Hope all…[Read more]