tom replied to the topic Sudden sickness in the forum Side-effects 13 years, 3 months ago
Hi David
I hope this Email doesn't wake you from your well deserved afternoon Nap :-0
I have suffered a regular sore throat and intolerance to hot drinks and food since my SCT 🙁 as for the sickness well I was still taking Anti Sickness Pills for nearly a year after SCT but a lot of sickness is going around near where I live :-/ might be…[Read more]
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 3 months ago
Hi Nicola
Am sure it helps a little bit knowing that they have got to grips with your dad's Pain, Stay strong and I an sending my Prayers.
Love and Hugs to you and your Family
Tom xxxxx
tom replied to the topic Delay in Chemo in the forum Treatment 13 years, 3 months ago
Aww Bless Tina I know how you feel, I was like that when I was missed (forgot about) for my stem cell transplant they sent some one else instead it put me back by 5 weeks 🙁 I wasn't Happy, but as David say's it all worked out in the end 😎
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 3 months ago
Hi Nicola
Just wanted to send my thoughts to you, and hope you are all doing as well as you can.
Lots of Love and Hugs ((())))
Tom xxxxx
tom replied to the topic Terrified in the forum End of Life and Grief 13 years, 3 months ago
Hi Joe and Gem
I am pleased to hear you are both doing well in the circumstances.
Good Luck for Monday Gem
Love
Tom xxx
tom replied to the topic Moving at last in the forum General 13 years, 3 months ago
Hi Eve and Slim
Am pleased that things are moving along at last 😀 , Its good to have the treatment near home am sure all the travel isn't that good when you arn't feeling 100%
The train sound a good idea, and could Slim use his Blue badge to make less costly?.
Good Luck for it all and Give my regards to Slim.
Love
Tom "Onwards and…[Read more]
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 13 years, 4 months ago
Dear Nicola
I am so sorry your Dad has got to this stage so fast, My thought's are with you and your Family at this sad Time.
Please Take Care
Love and Hugs to you all
Tom xxxx
tom replied to the topic velacade not worked in the forum Treatment 13 years, 4 months ago
Hi Nicola
I am sure Micky will be soon sorted out, and I know that Hospitals aint that good for the rest and relaxing but it will be better for Micky as they can sort his problems out as they go along rather than re book another out paitants.
Give my regards to Micky and please tell him that I and others have been through it and came up…[Read more]
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 4 months ago
Hi Andy
Am sorry to hear the treatment is not doing its job 🙁 But Good Luck for the DT Pace? I also have not heard of that.
Tom "Onwards and Upwards"
tom replied to the topic Delay in Chemo in the forum Treatment 13 years, 4 months ago
Hi Tina
Am sorry to hear you are having to delay your treatment 🙁 because if you are like me I want it all to start "Yesterday" but am sure its for the best, get shoulder all better then you can start again 🙂
Good Luck and roll on April 11th, its not long now xxx
Love
tom replied to the topic velacade not worked in the forum Treatment 13 years, 4 months ago
Hi Nicola
First and formost am with you on the Wine "Red" and next I know its hard to see a loved one feel and look ill its not good to watch, but on the bright side we have a lot of people on here that went to nearly bottom then something that was tried kicked in and worked as Dai says Keep your Dad as strong as you can and keep dad as…[Read more]
tom replied to the topic Starting CDT in the forum Treatment 13 years, 4 months ago
Hi Mavis
Well am sorry the Honeymoon is over.
I was on CDT prior to my SCT, so Bad news is it made me tired and weak:-/ Good News It was the start of putting me into remission:-D (still no hair loss) then SCT I had that December 2009 it was OK Ish?
Would I go through it again? well it has to be a big yes. oh and lost my hair when in…[Read more]
tom replied to the topic Water in the forum General 13 years, 4 months ago
Hi Dai
Thanks for that info I have had a little bit of dicomfort on my shoulder but I put that down to doing too much and or sitting in a drafty room at work ?
And re your new? treatment I have said before if anyone can do it your the Man 😎
All the best Dai
Tom "Onwards and Upwards"
tom replied to the topic NIGHT CRAMPS in the forum General 13 years, 4 months ago
Hi Valerie
Not sure how I missed this post?
But am Pleased it is getting sorted out, have a great time in Venice (Am jel)
Love Tom "Onwards and Upwards" xx
tom replied to the topic Spring is on it's Way! in the forum General 13 years, 4 months ago
Hi Chris
Pleased you are doing good (well as good as we can be) The blue badge is a godsend saves you money and park nearer to where you need to be (cept in Scunthope General Hospital).
I tried to get something from the State and all I got was £63 per week and when I went back to work after a few months I got told by tax man I owed them…[Read more]
tom replied to the topic Water in the forum General 13 years, 4 months ago
Hi Dai
The frozen shoulder being a new area of MM can you throw more light on that for me please as I have discomfort rather than pain in my right shoulder (lol i hade to check which side it was on L/R lol)
I hope you dont suffer too much on the early days of your treatment.
I dont kow if you buy water I used to as our water aint that…[Read more]
tom replied to the topic Hi Susannah, how is Michael in the forum General 13 years, 4 months ago
Hi Sue
Yes am sure it is all down to the cost :'-( and that makes me angry.
Good Luck for the bloods next week
Tom xxx
tom replied to the topic Hello I am a Newbie from across the Pond in the forum Newcomers 13 years, 4 months ago
Hi Terry
Re work ::::: I had my diagnosise in Jan 2009 was working still, I work on an Inland Dock loading and unloading Ships/Lorry's which is hard physical work and the treatment I had was CDT.
I had 3 cycles of that and was too tired to carry on working so went on sick may 2009 I had a total of 5 cycles of CDT and my stem cell transplant…[Read more]
tom replied to the topic Hi Susannah, how is Michael in the forum General 13 years, 4 months ago
Hi Sue
Am so sorry to read that Michael is not able to fit the criteria to help him? how bad do we have to be to fit the bloody criteria :-S because for all intent an purpose we are all dying this Bloomim MM is at the moment a Terminal Illness so we should fit the criteria or am I just too thick to understand it all:-S
I dont know what…[Read more]
tom replied to the topic Water in the forum General 13 years, 4 months ago
Hi All
Well I love the Irish they are great people but I cant stand that black stuff they Make 🙁 but that said it might be better in dublin? who knows I just might try a trip to dublin and try a half?, hope you all are enjoying your 3 ltr of fluid ? lord knows how much vodka I had last nit lol
Love Tom "Onwards and Upwards" xxx