Hi Ivan
Sorry am late in replying but a warm welcome to this great band of folk, but sorry you had to join 🙁

Good Luck on your treatment I also (in feb 2009) started my treatment CDT and that was starting with about 50 pills a day 🙁 but i done it with the stem cell harvest and the stem cell transplan in december 2009 and her I am back at…[Read more]

Hi Pam

Am sorry your Dad is having problems and might have MM.

Your Dad will be treated for his illness whith his other ailments in mind, bearing in mind your Dads Pain there is loads of pain relief that can be given to help its just finding the one that works best with little side effects.

Love and Hugs sent to you all.

Tom "Onwards…[Read more]

Hi Gillian aka Gill C 😀

Good Luck with it all and you seem to be doing ok with it as for the sickness I was on antisickness tabs for months after my SCT, and the bowels am pleased its a distant memory 😎 yep Control never in your life I dare not go far from a loo after anything to eat or drink as it didn't stop long, Lord knows how I got…[Read more]

Hi Helen

Pleased you are finding the info Good for you all:-D and its great to hear about others that are raising money for the dreaded MM:-(

As for the Stem Cell transplant:: oh what can I say?? well to be honest I feel that is has been well worth the off days that I had during my "Recovery" and to be fair it was (cept the growth…[Read more]

Hi All

Just to let you know I only eat Cucumbers in our Cyber greenhouse, I cant stand the things ha ha.

But the Red wine now thats another story oh and the Vodka I was given a bottle of Vodka with lime, just tasting it tonight and its very nice and refreshing (and i aint in my Cyber greenhouse)

Hope you all have a great Week End :-D…[Read more]

Hi christin

Looks like your Dad's team are doing a great Job for your Dad 🙂 as for your Dad not being able to concentrate I was same after some of my first lot of treatment and when i told my Nurse that "The Brain's Gone" she laughed and told me I had Chemo Brain see this Link…[Read more]

Hi Sarah and Mum

Sorry you had to join but am pleased you found us, we have great people on here that can and will help you and your Mum through all this MM stuff, sorry am not in sam area, am in Scunthorpe North Lincs.

Good Luck with your Mum's treatment and I hope all goes well.

Tom "Onwards and Upwards" xx

Hi Eve and Jo

Well the Cucumbers are allegedly good for Cancer sufferers, and a few of us here have sat in a "Cyber" greenhouse drinking Red wine and eating cucumbers8-) Hope that clears that one up and you now know am normal (yep normal even in a Cyber greenhouse ha ha)

Love from One cucumered

Tom "Onwards and Upwards" xxx

Hi Peggy

A warm welcome to our ever growing band of MM'ers

Yep I was same but I didn't put them both together for some months after I started treatment.

Am sure you will get the help you need as and when for you and your Daughter, if not shout out loud.

Good Luck on the treatment you start and have a good day for your Birhtday (well…[Read more]

Hi Gill

First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.

But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still…[Read more]

Hi Jo

The young bride is doing great, and as for keeping me in check (just looked behind me to see she aint their;-) ) well she has a hard job doing that Lol.
Take a look at the photo and see how much I spoil the young bride (tom looks over his shoulder to make sure she cant see)

Hope your Doing Ok Jo xxxxx

Hi Joanne

Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D

Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest…[Read more]

Hi Gill

Well what a great lot of replie's you have 😀 and am sure I cant add anymore to this great advise you already have.

BUT am a Mere Male and you know we have to have our penny's worth 😀

First am sorry you had to join this great site, but also to let you know its also the best, its a roller coaster but to make it short, I am now…[Read more]

Hi Helen

Am Pleased your Mum is getting better, and am sure the Zometa will cause no more problem:-D
As for me well roughly I was diagnosed in Jan 2009 went on CDT, then had stem cell harvest and leading up to a Stem Cell Transplant in December 2009, went back to work In May 2010 on light duties, and thats where I stand now, and the only…[Read more]

Hi Helen and Mum

Sorry you are here 🙁 but its best place 😀

I am on Zometa and the first time I had it I had flue like symptoms for a few days (aches and pains in bone structure) but it only was that first time, I now go every four weeks for my infusion and so far tomorrow (thurs) will be my 13th and all is going great.

Good Luck to…[Read more]

Hi Joanne

I also am sorry you have had to joint this site, but trust me its the best place for help/advice and folk to listen to us when we need a rant.
As Kay says its an individual illness and not one thing suits another.
Take the pen and Paper and make notes its not going to be easy to remember everything, also ask the Consultant to send…[Read more]

Hi Christin

Yep I know all about takin three rather than one step:-D but as time went on I knew (nearly as much as Elaine) that I had to take it Easy so am sure your Dad will also get it Lol.

Love from a mere male 😎

Tom "Onwards and Upwards" xxx

Hi Vicki

Yes it made me weary and yes strugled to sleep at the same time (strange that Dex) but I got sleeping tablets and took them sparingly as i dint want to get hooked on them 😀

Am not sure if the Spondylitis ur Dad has is connected to the MM but am sure someone will pop on and advise 😎

I am just having four weekly Zometa…[Read more]

Hi Yamyam

Sorry to see you had to join but you have come to the correct place, and sorry to read you felt let down by the NHS 🙁 but now they have your Dad on the radar all should flow nice,as for me and only me I would go for anything to help put this dreaded MM on the sidelines until a cure comes along so for me I would do it.

Good Luck…[Read more]

Hi Colpot

Am sure your story will give us al hope that the light is at the back of the tunnel, well done and good luck

Tom "Onwards and UpwardsW