tom replied to the topic Dad diagnosed with Myeloma last week – Starting chemo this week in the forum Newcomers 14 years, 1 month ago
Hi Vicki
Sorry to hear that your Dad has MM, honest 60 aint that old (well i hope not as am running towards 56:-D
I also was on CDT prior to a "Succesfull" transplant.
I also had the transplant in Castle Hill and agree with you the treatment and help you get from them is second to none, I am now back in Scunthorpe being looked after in…[Read more]
tom replied to the topic Been in the wars in the forum General 14 years, 1 month ago
wow Bridget you are fast ha ha, yes thats correct I dint think it was the done thing to add "Onwards and Upwards" for Shirley ha ha.
Tom "Onwards and Upwards" xxxx
tom replied to the topic V 2/3 in the forum Treatment 14 years, 1 month ago
Well My friend Dai, you want a whine/moan or just a plain old complain then you my friend are due to have one, as most of us know its hard to be tip top all the time, and to be fair its hard to be tickety boo when you are on the drugs:-S
Good Luck Dai and moan when you want (you do it so well for a novice) your upbeat manner will soon return…[Read more]
tom replied to the topic trial mini allo in the forum Treatment 14 years, 1 month ago
Good Luck with it all Ian, and you know its great when heart/lungs and kidneys are working good its a great start 😀
"Onwards and Upwards"
Tom
tom replied to the topic Update on my mum x in the forum General 14 years, 1 month ago
Hi Gina
Sorry to read about your Mum's plight, I hope that Mum is now being seen and her pain is being taken care of.
Love and Hugs to you both
Tom xxxxx
tom replied to the topic Sad and confused in the forum General 14 years, 1 month ago
Dear Linda
I am sorry to read that your Dad has passed away with this dreaded Illness.
I am sending hugs/love and prayers to you and your Family
Much Love
Tom xx
tom replied to the topic Been in the wars in the forum General 14 years, 1 month ago
Aww Bless you Shirl, am pleased you are on the mend 😀 I also have fallen down the stairs more than once I hasten to add Normally on a Friday nite:-/ and yes you would think I should know better he he.
Bet it was a shock for Steve:-0 to find you laid there :-S
Keep up the good recovery8-) and not forgetting "Stanna"
Love Tom xxxx
tom replied to the topic My father just got the news… in the forum Newcomers 14 years, 1 month ago
Hi Marian
Well its been said before "Vent away" Girl
Now what to say about your problems?
What would I choose if I was 72 to be honest (and i have read this many a time) I would go for the standard treatment, as I feel that it works and I would want a Quality of life whilst going through my treatment (well as best it can be) and its a…[Read more]
tom replied to the topic Sensitive teeth in the forum General 14 years, 1 month ago
Hi David
Yes I am told that the Zometa messes with your teeth :-/ but am pleased to say (touching wood and fingers crossed) I dont have a problem with mine:-D
pleased yours is now on the mend 😎
Tom 🙂
tom replied to the topic Newcomer in the forum Newcomers 14 years, 1 month ago
Hi David
Yep still up and runn:::::::::::walking ha ha, and yes your red wine and cumbers did me the world of good 🙂
One "Upwards and Onwards" Tom 😀
tom replied to the topic I hope I don't sound crazy in the forum General 14 years, 1 month ago
Hey Roberta
Trust me girl you dont sound Crazy (well not as crazy as I) and if you need to vent what better place than here amongst friends and nearly Family 😎
Its a great thought if we all moved into an Estate (near a hospital ha ha) and then we would have neighbors that knew we get grouchy and tired after a hard days work. it could be…[Read more]
tom replied to the topic My Visitor in the forum General 14 years, 1 month ago
Hi Bridget
Its good to know they are with you and very knowledgeable in the drugs regime that needs to be used, I dont have a Mac Nurse, but hope if I need one she/he is as good as yours 😀
Like David I am pleased to say I am pain free (ish) unless I push myself too hard:-S
All the best on this wet Bank Holiday
Tom "Onwards and…[Read more]
tom replied to the topic Abject Misery in the forum General 14 years, 1 month ago
Hi Min and peter
Sorry to hear about treatment causing a Bloomin big blip in both your lives, I cant add nothing to the good points above as I am still in remission so can just send my Love and Hugs to you Both.
Tom xxx
tom replied to the topic Newcomer in the forum Newcomers 14 years, 1 month ago
Hi Carol
Sorry to hear about your Pain:-( no one should have to suffer the pain.
I see you do Horse riding (they scare me) I hope it isn't that that causes the pain? I know after I do things at home/garden I normally suffer a bit of pain.
I am about 16 Months post stem cell transplant and am in remission.
Good luck on your pain…[Read more]
tom replied to the topic Velcade & Me Pt.1 Oh dear me. in the forum Treatment 14 years, 1 month ago
Hi Dai
Well a whispered "Onwards and Upwards" and do you know I pressed the key pad real slow and quiet lol when I typed that he he.
Am Pleased you are feeling better albeit with a lack of sleep 🙁
Good Luck with it all.
Regards
Tom "Onwards and Upwards" 😎
tom replied to the topic Volcanic Diahhorea!! Velcade to blame??? in the forum Side-effects 14 years, 1 month ago
Hi Angelina and John
Hey dont we soon get better 😀 I recall after my SCT I asked when I might be going home on my 13th day and was told it will be about 7/10 days all being well 🙁 but 3 days later I was packing my case and heading home 😎
Took me some time to get into my eating habit dint ever think it would come back but hey ho its…[Read more]
tom replied to the topic Velcade & Me Pt.1 Oh dear me. in the forum Treatment 14 years, 1 month ago
Hi Dai
So sorry to hear about your "Bad Stint" Hope it gets better soon 😀
Not one for the written word Dai, but strength has always been my thing (in me head lol) so I am sending some of mine 😎 So if its "Only" (love the way you say it) a matter of pain well you and I plus others can beat it. all the best with it
Regards
Tom…[Read more]
tom replied to the topic Pain after sct: in the forum Side-effects 14 years, 1 month ago
Hi Liz
Am pleased it all got sorted, as I said I never have to suffer pain at all (hope he is correct ha ha)
Good Luck and hope the upt painkillers help 😀
Tom "Onwards and Upwards" xx
tom replied to the topic Volcanic Diahhorea!! Velcade to blame??? in the forum Side-effects 14 years, 2 months ago
Hi Angelina
Sorry to hear about Johns Problem 🙁
I have had CTD then SCT and so far am doing good only need Zometa once per month, so cant add to this apart from wishing John well 😀
Its been said John is in the best place and being looked after.
Wishing John a seedy recovery to get home soon.
Love
Tom "Onwards and Upwards"…
tom replied to the topic Pain after sct: in the forum Side-effects 14 years, 2 months ago
Hi Liz
I also say phone the Hospital and or the contact Number they gave you.
None of us are the same so need different drugs/meds at different times.
As for me I never hold back calling if need be, we all know our own bodies and what feels "Just not right" is when i call, pleased to say though Not had to call them for some time now :-D…[Read more]