JandK

  • tom replied to the topic Hello everyone, I'm new! in the forum Newcomers 14 years, 4 months ago

    Hi Tracey

    May I be the first to welcome you to this great group, I know its one that we didn't want to join 🙁

    I also started on CTD then moved on to my Stem Cell Transplant, now 15 months post sct and doing bloomin good.

    Good Luck on your treatment.

    Tom "Onwards and Upwards" xxx

  • tom replied to the topic Big hello one and all in the forum General 14 years, 4 months ago

    Hi Roz
    And you are more than wlcome, and am pleased it/I make you smile 🙂
    So sorry you are having a bad day but you know what they say so its no good me saying it again is there?.

    Just give a few thoughts from the Good Times and try and push the times when Michael wasn't himself.

    Hugs and Love sent your way keep strong Roz

    Tom xxxx

  • Hi Nigel

    And a warm welcome to our little band.

    I was diagnosed Jan 2009, and since then I have had 5 courses of CTD,stem cell harvest and now am at the 15 month post stem cell transplant and am back at work (light duties)

    All through my treatment it has been "Pain Free" :-)and am now still in remission 😎

    As you know or will find…[Read more]

  • tom replied to the topic Big hello one and all in the forum General 14 years, 4 months ago

    Good Morning Roz

    Am pleased you never left this site so no reason to say you have come back 😀

    Am pleased you are getting through all this and it is a bloomin bugger all the stuff that needs to be done whilst trying to get to terms with losing your partner.

    Am sure the Goverment could link it all together and all that needs to be done…[Read more]

  • tom replied to the topic Dad diagnosed last week in the forum Newcomers 14 years, 4 months ago

    Morning Tanya

    Well sounds like your dads doing well 😀 and its amazing where we find the strenth to cope with these things:-S but it always comes to the forefront.

    Good Luck on Monday and I hope he gets the OK for the infusion's.

    Tom "Onwards and Upwards" xx

  • Hi Eve

    When you say its a bit complicated well dont i know it, and am sure she would want to know? but you know her better than I.

    The main thing is for you Both to stay strong and fight this bloomin MM and try not to "Store Problems" I know its not as easy as that :-/

    And the comment you made bout cheering you up has left me feeling…[Read more]

  • Hi Henry
    Well a warm welcome to you 🙂

    Sorry you had to join though, but seen as you/I or we need something when we have MM cant get a better support group 🙂

    I was Diagnosed in January 2009, and since then I have had stem cell harvest and transplant, and now back at work (light dutie's)

    All went well but as we all know we have our Off…[Read more]

  • Hi Eve
    I also know how well this site feels to me Its like putting on an old pair of shoes 🙂 you know the tatty ones we just wont throw away 🙂

    And as for worrying? well I worry about not worrying ha ha.

    Does your partner not want to tell his daughter? or is he just waiting till he grasps the MM facts?

    As for it changing our lives?…[Read more]

  • tom replied to the topic Hello everyone in the forum Newcomers 14 years, 4 months ago

    Hi Jon
    May I welcome you to this Great site 🙂 its not one we would want but seen as we have MM its the best going, as well as the Under 50'S 😎

    Am same as you in the fact My Wife Family and Friends have all been very supprtive through all this and we (even i) have a lets get this party rolling and sort it sort of mind's:-D

    Good Luck on…[Read more]

  • Hi Annie

    And a warm Welcome from Iccle ole me 😀
    Am sorry you had to join this forum but am sure you will find out its the best their is 😎 ,the help and support you get from these great folk is second to none 😎

    Good Luck in your treatment.

    Love

    Tom "Onwards and Upwards" xxx

  • tom replied to the topic HOT AND SPOTTY in the forum Side-effects 14 years, 4 months ago

    Hi Chris

    I also had a rash on my body during CTD, it soon went 😀

    Do you go to the AE at hospital with Hubby?? me I have been told if I have anyproblem to phone our Onc ward and speak to the Consultant or the Staff Nurse, they have more knowledge about the MM

    Good Luck

    Tom "Onwards and Upwards" xx

  • Hi Chris

    And am I pleased you joined us 😀 but sorry you had to 🙁

    I am sure you will all cope with whatever is thrown at youe and Hubby (sorry you didn't say his name)

    Dont forget we have you now so pull up the chair and ask say what you want, we are all here for each other 😎

    Tom "Onwards and Upwards" xxx

  • Hi Sylvia
    And That we are (optimistic that is he he) me I dont think April is too far out? so the crossing to Cork should be OK

    I used to hate the heat and sun and love the wind rain and snow But since getting MM you could throw me all the sunshine that you can because I defiantly feel the cold these days8-) so the sooner the better and…[Read more]

  • Hi Gaye

    April 15th MMmm Interesting

    I think it could be today 😀 well we dont need the sun 😎 do we? we just need to be a wee bit daft he he.

    Photo to follow ha ha.

    Weekend nearly over and a new week ready to kick off, hope you all had a great w/end and are looking forward to the new week 🙂

    Have a Good Un

    Love
    Tom…[Read more]

  • tom replied to the topic Another newbie. in the forum Newcomers 14 years, 5 months ago

    Oh Sorry to hear that Em 🙁 but am sure they will sort Dad out Ok.
    Its a case of working out what works and what isn't working with us lot 🙁
    Your Dad might just need his meds tweeking a little bit 🙂

    I also dont like a fuss caused over me so think I know how your Dad will feel.

    We have to take it one day at a time 😀 and it will…[Read more]

  • tom replied to the topic Another newbie. in the forum Newcomers 14 years, 5 months ago

    Hi Em

    Well I am sorry to welcome you to this site 🙁 but that said you will find it One of the best around, we have great folk that have got good advice to help you and your Dad through this one step at a time 🙂

    Humour you cant beat it at a time like this and never lose it as I know it has perked me up no end over these last couple of…[Read more]

  • Oh Gaye I think?? no I know we all have the "Onwards and Upwards" streak running through us 😀 , we just need to look at the Positive Posts that are on here 😎

    And Many great Posts are from yourgood self Gaye and for that I thank you 😀

    You make me smile you make me laugh and in this cold weather that a good thing :-S

    Once again…[Read more]

  • tom replied to the topic Am new on here! in the forum Newcomers 14 years, 5 months ago

    Just nipped in to say Hi and Good Luck

    Tom xxx

  • tom replied to the topic Dad diagnosed last week in the forum Newcomers 14 years, 5 months ago

    Hello Tanya

    Sorry to hear about your Dad 🙁

    But you know your Dad and am sure you know he will cope with what this darned MM throws at him.

    Bridget is correct can your Half sister help out, have you tied the Social Service to see how they can help.

    Good Luck and not forgeting yourself as it is too easy to forget about you and your…[Read more]

  • tom replied to the topic New to Dad with Myeloma in the forum Newcomers 14 years, 5 months ago

    Hi Clara
    Well you have had some great advice on here 😀
    And that only leaves me to say
    Good Luck to you and your Dad with his forthcoming treatment:-)

    Am sure it will run smooth

    Love
    Tom "Onwards and Upwards" xxx

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