Myeloma Forum | JaneHaimes | Activity https://forum.myeloma.org.uk/members/Jane/activity/ Activity feed for JaneHaimes. Sun, 03 May 2026 16:10:36 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 4d63519faec523db1bbb52be8939c610 JaneHaimes started the topic Chest infection in the forum Treatment http://www.myeloma.org.uk/forums/topic/chest-infection-2/ Thu, 16 Jan 2014 14:24:45 +0000 Hi, I don’t know if I am in the right place! I woke up 10 days ago with Rigors then a high temp. The Dr came out to see me and sent for an ambulance. I stayed in hospital for 7 days. The problem was I am allergic to so many antibiotics that the Microbiologist had the job of finding a medication which turned out to be 5 different IV antibiotics at…[Read more]

]]> a779d899033833688b713adb9727fbda JaneHaimes replied to the topic Radiotherapy Burns in the forum Side-effects http://www.myeloma.org.uk/forums/topic/radiotherapy-burns#post-105271 Tue, 07 May 2013 16:50:36 +0100 Thanks Tom for your reply.
As soon as the burn became apparent (a few weeks after the radiotherapy) I did telephone the specialist nurse on duty for advice. As so often happens it was a bank holiday so we were sent to a walk-in centre for the prescription. I was given 3 creams which were used over a period of months. No change, so I used Aqueous…[Read more]

]]> 6bb209c9779d54b88e4d52682323d803 JaneHaimes started the topic Radiotherapy Burns. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/radiotherapy-burns Mon, 06 May 2013 17:04:07 +0100 Has anyone had experience of Radiotherapy burns on the back following treatment?
I have a burn which extends to the size of a football with the central part of 7×4 inches refusing to heal. I have used every cream/paste/ointment used by man I think.
It is almost 3 years since I had the radiotherapy treatment, but no Dr or Consultant will take…[Read more]

]]> 9d80c5f9cd49c735ae2e20651bd73e7f JaneHaimes replied to the topic Sleeping so much! in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sleeping-so-much#post-104833 Tue, 09 Oct 2012 11:41:34 +0100 Thanks for your replies Tom and Vicky, I do understand sleep is good for healing, but it is still frustrating:-( I have such a complicated medical history that walking is out, I use an electric scooter. I am sorry for moaning but I just needed to say it to someone. I can't let my husband know how bad I feel most of the time and the pain is getting…[Read more]

]]> f35cbbc4afb62e05fda22fc76cec4e76 JaneHaimes started the topic Sleeping so much!. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/sleeping-so-much Sun, 07 Oct 2012 12:56:13 +0100 Hello everyone, I hope seeing a bit of sunshine at last is bringing a smile to your faces.
I am finding tiredness a problem. In particular I find I actually sleep so much. I have to consciously stop myself falling asleep!
Does anyone else find that they actually sleep rather then just the always present fatigue? What do you find helps?
For…[Read more]

]]> 95610a962860c9388f62666e3dc2e908 JaneHaimes replied to the topic Hello, I' m new here! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-i-m-new-here#post-86149 Sun, 17 Jun 2012 11:23:00 +0100 Hi Eve,
Thanks for your kind welcome. I hope your husband is feeling less tired now.

I am really looking forward to resting outside in the sun, but, when will it happen?:-S

I keep smilimg.

Best wishes Jane

]]> c53227aa2f1a17f22465d5a2e232d418 JaneHaimes replied to the topic Hello, I' m new here! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-i-m-new-here#post-86147 Sun, 03 Jun 2012 23:09:34 +0100 Many thanks to everyone for your kind welcoming words.

Eliz, I live on the Wirral, Cheshire.

Best wishes Jane

]]> 32beba0a67ef84e673227783e3113aec JaneHaimes started the topic Hello, I' m new here!. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-i-m-new-here Sat, 02 Jun 2012 12:50:39 +0100 Hello, I am new to the forum although Myeloma UK has been helping me with all the wonderful brochures etc.
I was first diagnosed 6 years ago with a Plasmacytoma on my 7th left rib. I had both the tumour and rib removed. I had no more symptoms until 2010 when I was admitted to hospital with excruciating back pain. I had a heavy dose of…[Read more]

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