JaneSmith

Forum Replies Created

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
    Posts
  • #101573

    Janey
    Participant

    Hi Vanessa

    no maintenance, just zometa until june 2009. I feel very fortunate and hope that it lasts. My consultant says that the myeloma is either too small to measure or there is nothing there and she doesn't know the answer. I am able to work full time and take no drugs other than the odd course of antibiotics for a chest infection.
    All the best.
    Janey

    #101569

    Janey
    Participant

    Hi Vanessa
    This is the first time I have posted but have looked at the discussion forum a lot.
    I was diagnosed at age 49 in May 2007 with a spinal fracture . I am on the Myeloma 1x trial. My paraprotein initially was 67. I had the old treatment of Vincristine, Adriamycin etc which they don't use now, before the SCT. I had 6 lots of chemo which brought the pp down to about 20 (not exactly sure but remember my consultant saying thats where she expected it to end up!). After the SCT the pp was 10 and stayed there for a couple of months. It then started falling month on month without any further treatment until November 2008 when it disappeared completely. It was 5 years last week since I had the SCT and there is still no sign of the myeloma.

    What terrible news to have just before having a baby but don't give up hope. There are a lot of people out there who have done well. The SCT's job is to deepen the response so I think your husband is in a good place and hopefully will be in an even better one after the SCT.
    All the best, Janey

Viewing 2 posts - 1 through 2 (of 2 total)