Myeloma Forum | jimbob | Activity https://forum.myeloma.org.uk/members/JimBob/activity/ Activity feed for jimbob. Sat, 11 Apr 2026 05:49:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 7bc3eeb16659911f36067cd45f8e6613 JimBob replied to the topic Bone Pain in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bone-pain-2/#post-111647 Sat, 28 Dec 2013 23:01:13 +0000 Mandy,

How do I accept you as a friend or invite others to friendship?

Going to drink some seriously expensive Macallan Single malt that my son got me for Christmas and bugger the consequences! No Oxy’s tonight and maybe, just maybe, I will get at least a quarter of a nights sleep!!! LOL!!

Cheers

Jim (JimBob)

]]> 65aa7d6163a2734c5818b08df4752823 JimBob replied to the topic Bone Pain in the forum Related conditions http://www.myeloma.org.uk/forums/topic/bone-pain-2/#post-111646 Sat, 28 Dec 2013 22:44:11 +0000 Thanks Mandy!

Got your mail/response. I am new to this forum. Despite spending my working life in acute care / tertiary hospitals, I am struggling. I AM, though, still positive and trust ALL the cancer charities and research units to continue their invaluable and dedicated work to finding cures for ALL cancers, if not for us, but for all who f…[Read more]

]]> ef2988c91883953cfca61fef7baf9ea8 JimBob posted a new activity comment https://forum.myeloma.org.uk/activity/p/350/#acomment-356 Sat, 28 Dec 2013 22:23:29 +0000 Hi Carol,
Just GFI……..Go For It…..All of it!!!!! I have had a very rough time with my MM, but ALL has been worth it! Will I do it again? Sure as hell will, if God spares me. Memories of Pain,puking and sickness all fade when you start feeling a bit better. Most things about MM are negative except US! We think and live positively. Just GO FOR…[Read more]

In reply to - Carolsymons started the topic Hair loss in the forum Side-effects It is 2 weeks now since I had the high dose chemo etoposide, as preparation for stem cell collection and every day now I have an ever increasing […] ]]> e55872169e9c274bf6502d7ed608f817 JimBob posted a new activity comment https://forum.myeloma.org.uk/activity/p/72/#acomment-355 Sat, 28 Dec 2013 22:02:23 +0000 Hi Mandy!
Likewise I have a lot of pain post transplant (April 2012) and getting worse. Skull, shoulder, ribs. left hip, both knees and left ankle and foot. Fingers and neuropathy do not help either! However, do not despair, Oxycontin and Oxynorm help with pain management, as does radiotherapy when required. A simple walking stick helps with…[Read more]

In reply to - mandyphillips41 started the topic Bone Pain in the forum Related conditions Hi I was diagnosed on 12th October 2012 with Multiple Myeloma and I am now 6 months post stem cell transplant and I am feeling terrible […] ]]> 13a9523b37e53e4d5af45fae53d285f2 JimBob posted a new activity comment https://forum.myeloma.org.uk/activity/p/299/#acomment-354 Sat, 28 Dec 2013 21:14:44 +0000 Hi Gilaine.
I don’t have smouldering MM. I have had my first transplant (April 2012) and now have Zometa every 30 days to 6 weeks. I live in Belfast and the Zometa is funded without problem. I worked in Healthcare (Senior Management) all my life (I am now 59) and know the cost of the drugs we need / use. Although Zometa is pricey, it is not…[Read more]

In reply to - Gilaine posted an update Hi still lookijng for anyone else with smoldering Myeloma who is being treated with Zometa ?I can’t be the only one ? ]]>