Jimmy replied to the topic John's 2nd sct in the forum General 13 years ago
Hi Eva,
Could you please expand on what supplements should not be taken with Velcade as I hadn't heard anything about that? – You say "I was concerned about this and started to read what I could do about peripheral neuropathy. I decided to follow a protocol recommended from the States. It involves Vit B, carnitine, iodine( sea kelp pills),…[Read more]
Jimmy replied to the topic John's 2nd sct in the forum General 13 years ago
Hi, I've been on Revlimid for three months now after previously having Velcade, Dexa and Revlimid and a stem cell transplant. With the Velcade, I started getting peripheral neuropathy (PN) and tingling in the mouth (the mouth numbness wasn't always associated with the numbing in the hands and feet and could be calcium deficiency – no tests…[Read more]
Jimmy replied to the topic Revlimid exhaustion in the forum Newcomers 13 years ago
I've found Revlimid tough work too – even though I'm on 10mg the effect seems to be cumulative, each month slightly worse. One month I took two weeks off from the drug instead of one week and that helped. Another angle is that I've found it's really helpful to do whatever I can that helps my quality of life, be it on a banal level – watching light…[Read more]
Jimmy replied to the topic Revlimid exhaustion in the forum Newcomers 13 years ago
I found the Dexa horrible – it completely disrupted my sleep and left me feeling depressed and exhausted when it wore off. After five months of the Velcade/Dexa/Revlimid cocktail and a HDT/ASCT my PP has dropped from 60 to non-measurable and now I'm just on a low dose of Revlimid. Hope you find what you need. I'm taking a high dose of Vits B1…[Read more]
Jimmy replied to the topic Revlimid exhaustion in the forum Newcomers 13 years ago
Hi Helen, I find the Revlimid makes me tired too – I wasn't sure whether to push myself to do things and take exercise, so I tried it but it made me feel worse. My consultant advised me to listen to my body so I've been doing that and sleeping when I need and I feel a lot better – his words also helped me to feel less guilty about having lots of…[Read more]