Myeloma Forum | MijFerrett | Activity https://forum.myeloma.org.uk/members/Jimmy/activity/ Activity feed for MijFerrett. Tue, 05 May 2026 23:27:07 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5df52da6ad03c81575fc4f3a28c70c54 MijFerrett replied to the topic John's 2nd sct in the forum General http://www.myeloma.org.uk/forums/topic/johns-2nd-sct/page/3/#post-93207 Mon, 24 Sep 2012 18:20:36 +0100 Hi Eva,

Could you please expand on what supplements should not be taken with Velcade as I hadn't heard anything about that? – You say "I was concerned about this and started to read what I could do about peripheral neuropathy. I decided to follow a protocol recommended from the States. It involves Vit B, carnitine, iodine( sea kelp pills),…[Read more]

]]> 79734d39c7d5db2c81c9000904a47029 MijFerrett replied to the topic John's 2nd sct in the forum General http://www.myeloma.org.uk/forums/topic/johns-2nd-sct/page/3/#post-93206 Mon, 24 Sep 2012 16:35:05 +0100 Hi, I've been on Revlimid for three months now after previously having Velcade, Dexa and Revlimid and a stem cell transplant. With the Velcade, I started getting peripheral neuropathy (PN) and tingling in the mouth (the mouth numbness wasn't always associated with the numbing in the hands and feet and could be calcium deficiency – no tests…[Read more]

]]> 94fd1c0ce85b32d4e7e790ecad532c3b MijFerrett replied to the topic Revlimid exhaustion in the forum Newcomers http://www.myeloma.org.uk/forums/topic/revlimid-exhaustion#post-86547 Mon, 03 Sep 2012 01:26:42 +0100 I've found Revlimid tough work too – even though I'm on 10mg the effect seems to be cumulative, each month slightly worse. One month I took two weeks off from the drug instead of one week and that helped. Another angle is that I've found it's really helpful to do whatever I can that helps my quality of life, be it on a banal level – watching light…[Read more]

]]> 115350d025c974f59c650b03cb079427 MijFerrett replied to the topic Revlimid exhaustion in the forum Newcomers http://www.myeloma.org.uk/forums/topic/revlimid-exhaustion#post-86546 Mon, 03 Sep 2012 01:19:47 +0100 I found the Dexa horrible – it completely disrupted my sleep and left me feeling depressed and exhausted when it wore off. After five months of the Velcade/Dexa/Revlimid cocktail and a HDT/ASCT my PP has dropped from 60 to non-measurable and now I'm just on a low dose of Revlimid. Hope you find what you need. I'm taking a high dose of Vits B1…[Read more]

]]> d82eee610b0ae14f1bc6cc6f09decbfe MijFerrett replied to the topic Revlimid exhaustion in the forum Newcomers http://www.myeloma.org.uk/forums/topic/revlimid-exhaustion#post-86544 Mon, 03 Sep 2012 01:16:24 +0100 Hi Helen, I find the Revlimid makes me tired too – I wasn't sure whether to push myself to do things and take exercise, so I tried it but it made me feel worse. My consultant advised me to listen to my body so I've been doing that and sleeping when I need and I feel a lot better – his words also helped me to feel less guilty about having lots of…[Read more]

]]>