[JohnLParticipant]

Hi Stuart,

How do I PM you?

John

[JohnLParticipant]

Hi Stuart,

Just had my 4th consultation with the specialist yesterday. He basically told me that he didn't have time to answer any of my questions and that wasn't his job. The previous consultation had been taken up by him arguing with another doctor. As it stands I have no idea when they are going to commence treatment or, what that treatment will be. Needless to say I am now demanding another specialist but Kathy and I have also decided to investigate returning to the UK for treatment. Did you find the process very difficult?

Cheers
John

[JohnLParticipant]

Hi Stuart,

Thanks very much. Your opinion of the French Specialists and ours it pretty much the same. although we haven't had a stay in hospital yet.

Regards
John

[JohnLParticipant]

Hi Ann,

I was diagnosed with MGUS in November last year and with Stage 1 in March this year, my PP was 20.8. I have been under monitoring and am due for another set of tests at the end of this month. During this time however, I was diagnosed with a series of trapped nerves which has finally been revealed as a cracked rib. Not sure what is going to happen now. We are looking at moving (eventually) to the Devon/Somerset area and have heard good reports about the Beacon centre at Taunton.

Hope that your SCT goes well.

regards
John

[JohnLParticipant]

Hi Peter,

I was only diagnosed in March this year although I have now managed to crack a rib. We are looking at the Devon/Somerset area so it is good to hear that the RDE has a good recommendation. I understand that there was a Myeloma Support Group at Exeter but I haven't been able to find much trace of it.

regards
John

[JohnLParticipant]

Hi Stuart,

I can totally agree with your statements about the French doctors. We will return to the UK because we were only here on a 10 year plan anyway. Interestingly though, we know a retired professor of haematology (from Nottingham)who believes that the French system is better than the UK because it is directed from the top.

regards

John

[JohnLParticipant]

Hi Tony,

Thanks for the info but I think that we have decided to move further south, either Devon or Somerset. Still a long way to go before we move though. It seems though that generally, Myeloma care seems to be good all over the UK.

John

[Author]

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