Myeloma Forum | JonParsons | Activity https://forum.myeloma.org.uk/members/JonnyP/activity/ Activity feed for JonParsons. Sat, 02 May 2026 13:44:46 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d709e32062c79f355b0901a915532979 JonParsons replied to the topic Hello New Arrival To MM Club in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-new-arrival-to-mm-club#post-84340 Thu, 03 Mar 2011 08:31:34 +0000 Hi HMason,

Or can I call you H 🙂 .

Your path seems quite different to mine and in any case I know very little about Myeloma at this early stage. So whilst I can't help with the technical stuff, I can at least wish you well with your journey.

Jon.

]]> 657a7edab1cb5bb23498c01d3ec37516 JonParsons replied to the topic Hello everyone in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone#post-84326 Thu, 03 Mar 2011 08:25:04 +0000 Thanks Eve,

Forearmed is forewarned I guess.

Jon.

]]> fdf39cd872771fa32d31aa027c26ad3b JonParsons replied to the topic Hello everyone in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone/page/2/#post-84329 Thu, 03 Mar 2011 08:23:15 +0000 Thanks Badger,

I suspect I will have a lot of questions to answer in the next months, so it is good to know that the support is there

Jon.

]]> 0a2ef4a3e17d69c8ef6d6e98c22ff51c JonParsons replied to the topic Hello everyone in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone#post-84327 Thu, 03 Mar 2011 08:20:09 +0000 Hi Jet,

Thanks for your comments, it's interesting to get an idea of how people approach the situation. I had a less positive day yesterday – who knows why, but I want to get back on the positive path if I can.

I noticed that in failed to spell Myeloma properly in my introduction, so maybe my mind is a bit screwed just now.

I'm in clinic…[Read more]

]]> 98e076134c53446ce8550f8a059769a2 JonParsons replied to the topic Another newbie in the forum Under 50s http://www.myeloma.org.uk/forums/topic/another-newbie1298918176#post-106837 Tue, 01 Mar 2011 03:38:56 +0000 Good for you, go for it – I'm thinking irreverence rather than mass destruction though. I wouldn't want to make a bad impression so early on.

Jon.

]]> 5223a9348c5674887c98a3881efd56e0 JonParsons replied to the topic Another newbie in the forum Under 50s http://www.myeloma.org.uk/forums/topic/another-newbie1298918176#post-106835 Mon, 28 Feb 2011 22:51:52 +0000 I sense an opportunity 😎

Jon

]]> a3a9f5f0d34680891195c5abd39e035f JonParsons replied to the topic Hello everyone in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone#post-84321 Mon, 28 Feb 2011 20:19:12 +0000 Hi Perkymite,

You're very kind and very active on the site, as far as I can tell. I will take a good look around, although my wife is the internet guru – I think she has devoured everything already 😎 .

I'm very impressed with your attitude, I hope that your lead will inspire me on the bad days nil desperandum and all that.

Jon.

]]> 0aa20e8114c2bc2ab747f47adf795f90 JonParsons replied to the topic RE: Starting a discussion... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/re-starting-a-discussion#post-84310 Mon, 28 Feb 2011 20:13:22 +0000 Hi Annie,

I'm new to the site and still learning (10 days in and counting). Our situations are a bit different I guess, but obviously I wish you luck with your treatment.

Best wishes, Jon.

]]> 87f6749e25cbabac0a1b58e083b5074d JonParsons started the topic Another newbie. in the forum Under 50s http://www.myeloma.org.uk/forums/topic/another-newbie1298918176 Mon, 28 Feb 2011 18:36:16 +0000 Hi everyone,

I have just introduced myself to the newcomers section, so I thought I had better make a claim to join the young guns, as I am officially 48 going on 63 but still thinking I'm 33 – ouch.

I hope everyone is in good spirits.

What does this breakaway faction do? Is it ever so slightly anarchistic or what?

Jon.

]]> 2d226e54379359ca935e8039227bc67c JonParsons replied to the topic Hello everyone in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone#post-84319 Mon, 28 Feb 2011 18:30:30 +0000 Thanks Debs,

I officially qualify for the under 50's, so I'll take a look soon. I'm sorry to hear that the results were not perfect for you, finger crossed with the Valcade.

I have been preparing a spreadsheet for the same reason, but I'm not sure it is fit for purpose, a bit overly complicated I fancy and based on some guess work at this…[Read more]

]]> 51a99a9fa226719c66da6beab34240d5 JonParsons replied to the topic Hello everyone in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone#post-84317 Mon, 28 Feb 2011 18:22:52 +0000 Thanks to everyone for the kind words. I think my pain is relatively light compared to some. Co-codamol seems to take the edge off most of the time, but I keep straining other muscles whilst trying to compensate for a dodgy back.

I have an appointment with a radiologist (or is it a radiographer? Too much info') tomorrow, so hopefully that…[Read more]

]]> 36c284a56e9a6444e4385fd7b767df5e JonParsons started the topic Hello everyone. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hello-everyone Mon, 28 Feb 2011 16:38:41 +0000 Aplogies to the moderator – this is attempt number 3 (And I'm supposed to be vaguely intelligent 😀 ).

Hi my name is Jon and I was diagnosed with Myloma last Tuesday following a bone marrow biopsy. To be honest, we were already nearly certain that the news wouldn't be good because I had a call on Friday evening suggesting that the preliminary…[Read more]

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