Hi Babs

Happy birthday to your stem cells! How good you can look so positively on life. May those stem cells have many many more years.

Love Mavis x

Hi Dai

It was very interesting to hear the beginning of your MM journey, having known you so long "in the ether", as it were! You still don't seem to be completely lucky in the level of care you receive, even having made a move of location. I had an dreadful hip consultant, who could be "brother" to yours! I think they thought they were…[Read more]

Hi Ner

So sorry that you Mum has such a bad introduction to MM. Has anyone said anything about an operation to remove the tumour, or are they just relying on the radiotherapy? I had an operation and then racking put in to support my spine. in my case this was followed by the radiotherapy. I didn't start any more treatment for another…[Read more]

Hi Norma

Just wanted to say all the best for Monday. I do hope you don't get the news you fear, but, if you do, we are all here to support you.

Very best wishes.

Mavis x

Hi Tina

I wonder if losss of appititite is one of the longterm efffects of CDT as I haven't has a SCT, but still have no real appitite. I feel sorry for Gordon who cooks for me.

The only up-side of it for me is I have lost some weight and kept it off. However, I find not eating a balanced diet doesn't help the constipation!

Do take care…[Read more]

Dear Andy

Just to say all the best with the continued treatment. Do hope you are both ablt to enjoy your planned breaks.

Best wishes.

Mavis

Dear Pheobe,

Like the others, I would like to thank you for your inspirational story and to wish you and your husband many more years free from full blown MM.
All these stories of infections are so scary. It is interesting that the Government is now taking the subject so seriously that they are encouraging the development of new antibiotics.…[Read more]

Hi :Dai

Who would have put odds on you getting through round three, a few months ago! I admire your determination.

I go back on Zometa tomoorow, after four months off for dental work. Like you, my veins can be very difficult, but I am travelling in hope!! I only had shivers on the first cycle, nothing since, and as mt last back X-ray…[Read more]

Hi Jackie

Just wanted to welcome you and your Mum. Sorry you've had to join us. It does all sound so grim at diagnosis, but at least they are on your Mum's case. I'm sure she will do well. The important thing is to stay positive – there is lots they can do.

Best wishes to all the family.

Mavis

Lots of love Sue

Will keep you in my thoughts and prayers. You must have been very proud of Charlotte. Aren't we lucky to have a daughter. I love mine to bits, even if she and the family are about to go and live in Luxembourg.

Take care, be patient with yourself, you are on a long, sad journey.

Mavis xxxx

Hi Sandra

I'd forgotten that I had shingles while on CDT and it was very painful – round my middle. Still get a tightness, but nothing to worry about.

Take care.

Mavis x

Hi Paul

Sorry to hear your news. Keep fighting.

Best wishes.

Mavis

Hi Jane

Sorry to have to welcome you. How wakeful for your daughter to be having to cope with the dreaded MM twice – unbelievable.

No one has said much about the side effects of CDT so I thought I.'d add a bit.

I had six rounds. I had no side effects from Dex, but did find food tasted really strange. I found I preferred things with…[Read more]

Hi Tom

What's all this talk of not living till 67! I am counting on you still being around then to keep us all smiling!
We all need to travel hopefully don't we.

Re DLA, I got it for very severe arthritis, before I even knew what MM was (happy days!") also, am now over 65 . It was a struggle to get it then, but has been a life-line to…[Read more]

Hi Liz

It is so good to keep getting good news. Trust Kevin's light chain readings continue to fall fast!

Keep at the fight.

Very best wishes.

Mavis

Hi Tom

All the best for your second cycle. Will enjoy looking at blog.

Very best wishes.

Mavis

Hi Both of you!

Do revel in such marvellous news!! May it last for ever. Well, we can always hope and pray!

Love Mavis x

Hi Maureen

I am a real believer in Physio. If you have a good therapist they can work miracles provided Ian is willing to put in the work and i am sure he will.

I have returned to mobility six times so I know it is possible!

Lots of love Mavis x

Dear Sue

My thoughts and prayers continue to be with you.

I am relieved to know that Michael is at last free from pain and at peace, but I appreciate just how empty and low you will be feeling. Your grief will be harder to bear, as you have been carrying such a heavy burden these past couple of years, as you have valiantly fought this…[Read more]

Dear Sue,

It's strange, I came on Site to send a message to you, as I was thinking of you and Michael this afternoon, as I was enjoying the sun and a bonus day out. I felt sad that you and Michael wouldn't be enjoying it. I didn't realise quite how grim things were, although I knew they would be pretty bad. I do feel for the really tough…[Read more]