Hi Sal

Sorry we have to welcome you to this site on your Dad's behalf. In view of his age, I do hope someone will have agood chat with him about what treatments are realistic and will still give him the best quality of life possible. I am nearly 68 yrs and was diagnosed in 2019. My approach is to have the lguhtest treatment possible while…[Read more]

Hi Heather

Welcome to you and John from me too. I do hope you got on well with the Consiltant yesterday and understood what he was saying. You obviously have a lot to cope with as well as a lot to contend with. This is a strange illness to come to terms with.

Like John my myeloma was diagnosed after lots of treatment for arthritis. I have…[Read more]

Dear Mary

So sorry to hear your sad news.

All love.

Mavis x

Hi Sue

Had missed your last post. sorry you have been so low, but it is so understandable. I had been thinking of you both, especially over Christmas, I know what a difficult time it must have been.

As everyone says, do keep nattering support staff about the pain control.

Lots of love and prayers.

Mavis xxxx

Hi Keith

Hope you begin to feel better as the new treatment kicks in.

All the best for 2013. May it be a much better year.

Best wishes.

Mavis x

Hi Dai

All the best for Monday. I do hope the new treatment is successful and trouble free.

Lots of love.

Mavis x

Hi Helen

A bit late, but wqnt to say great news that you at last feel "well". Hope you have had a good Christmas.

All blessings for 2013.

Love Mavis x

Hi Dai

So glad you got home for your birthday and Christmas. Do take care and all best wishes for the start of the treatment.

Love to you and Janet.

Mavis x

Hi!

So pleased for you Val. Keep well for very long time.

Love Mavis x

Hi David

Glad there was good news. Happy Christmas and Happy Birthday!! Thosw PP numbers are still very low. Some folk get upto 40/50 b43fore treatment. My Consultant said it depends how quickly figures are raising and whether there are any other health complications.

Love

Mavis x

Hi Tina

So glad to hear you feel you have turned the corner after such a rough ride. I do hope, and indeed expect, that you will improve steadily. It is just rough it takes so long to get the appitite back.

Keep pressing ahead! May 2013 be a really good year.

Lots of love.

Mavis xx

Hi Babs

I want to salute you and all those who take part in these Trials. You do such stirling work for all of us. I just hope that, following on all the horific side effects, that your drug combination does bring on a long remission for you.

Lots of love.

Mavis x

Hi Terry

Like Jean, I can't offer any information but just wanted to show some solidarity to you in your struggle. Do hope the funding comes through and the Bendamustine does the trick. I know Dai is starting on it soon so should be able to give you some feed-back eventually.

Congratulations at keeping on with the car restoration – she…[Read more]

Hi Dai

What you say seems so much sense. I wonder how we can make this particular opinion heard. Is this something Myeloma UK could help us with.

In the USA they have telephone ring rounds with Consultants where such issues can be raised. I guess that here the Consultants are so over-worked that they haven't the time for such luxeries.…[Read more]

Dear Emma

Glad to hear that a pathway has been decided for your Mum, and that, although not the brightest news to be in hospital for four months, at least she will be in the "safe" place.

Do hope the chemo does its magic during this time of waiting.

Lots of love to all the family.

Mavis x

Hi Peter

Thanks for the post. I shall look forward to hearing the link when the lounge is Christmas preparations free! Gordon has just put the first forty lights on our tree!!

I am always interested in what Dr Berenson has to say on this subject. I am one of the "less is more" folk and decided against pressing for a SCT. I guess age has…[Read more]

Dear Dai

At last some really good news from you. I couldn't be more pleased. You so deserve for things to go well now and I hope that Bendamustine breaks all records in its positive effects on your MM.

AND, I know what you mean about keeping Revlimid in the back of your mind for the future, but hopefully, after the Bendamustine you won't…[Read more]

Dear Jet

Have been following your campaign. Do hope the desired young potential donors are rsponding.

And from a Christian, Happy Christmas!!!

Much love.

Mavis x

Dear Michelle

What marvellous news. I do hope and pray you continue PP free for many years to come.

Have a very special Christmas.

Love Mavis x