keznmel replied to the topic hospital again….. in the forum Under 50s 12 years ago
Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.
I hope this finds you all well – lots of love and best wishes.
Take care Love Kerry xxx
keznmel replied to the topic Hospital again…… in the forum Newcomers 12 years ago
Hiya Wink… Thank you for your message.
You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]
keznmel replied to the topic Hospital again…… in the forum Newcomers 12 years ago
Hi Megan – Thank you for your message.
It sounds like you have both have it tough too. I'm sorry.
I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]
mhnevill replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Hi Eva
How do you get on the myeloma listserve? I haven't heard of it before,
Lots of love.
Mavis x
mhnevill replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Hi Susannah and Michael
Just to let you know that i am still rooting for you. Do hope the antibiotics are beginning to do their job and that Michael can be home soon – there is no where like it.
I guess all of us MMers think about our end, from time to time and wonder which way we will go. I am sure we all hope and pray for a gentle…[Read more]
mhnevill replied to the topic hospital again….. in the forum Under 50s 12 years ago
Hiya!
Crept into under 50s group to read your post.
Sorry things aren't going so well for Melvin – ion fact it sound pretty horrible.
Do hope that pain is beginning to be got under control. I am also a great one for recommending asking to see the specialist pain team if you haven't already.
Lots of love to you both.
Mavis x
mhnevill replied to the topic New with a tale to tell already! in the forum Newcomers 12 years ago
Hi Lizzy
Welcome from me too. Sorry your Mum has had such a bad time to begin her MM journey with. I do hope she is coming out of the dark tunnel.
The one good thing about the treatment of MM is that there are so many paths to try. Many of us have found CDT, a more traditional treatment, very successful, so don't despair that your Mum…[Read more]
mhnevill replied to the topic Good News! in the forum General 12 years ago
Hi Jo,
Just postine here as it may go straight to your email list to say, look at Dia's posting if you haven't already done so!
Lots of love and all blessings.
Mavis xxx
mhnevill replied to the topic Good News! in the forum General 12 years ago
Hi Everyone
Thank you so much for all your good wishes. It is good that we can share joys and soorows here. Good too that there are a good number of us in remission. It must encourage our newer members just when they are really bowled over by the diagnosis.
Lots of love to all my cyber friends – get well and keep well.
Mavis xxx
mhnevill replied to the topic Hey Jo, come here for a minute! in the forum General 12 years ago
Hi Jo
I'm glad that DAi spotted too that things aren't all well for you. I had noticed it in your posting to me and was going to respond. I have always been so encouraged by your postings.
Do hope the new treatment works very quickly so there is no more kidney damage. Also hope the side effects aren't too bad. Are you still able to…[Read more]
mhnevill replied to the topic Driving? in the forum Newcomers 12 years ago
Hi Debbie
Welcome to you and your Dad. Sorry you have had to join us and that your Dad has now to start treatment. I would deffinitely advise a holiday before treatment starts because I found my appitite was seriously affected, also, as others as said, even if he does well, there will be "off" days.
As to driving, I started driving again,…[Read more]
keznmel started the topic hospital again…… in the forum Under 50s 12 years ago
Hiya guys….
Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]
keznmel started the topic Hospital again……. in the forum Newcomers 12 years ago
Hiya guys….
Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]
mhnevill replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Dear Sue and Michael
Just wanted to let you know that you will both be in my thoughts and prayers at this very difficult time. I am sure you will feel better after you have seen the Pallative Care Team. They will really want to take your thoughts and wishes into account aand make things as easy as possible.
No one can predict how long a…[Read more]
mhnevill replied to the topic It is all supposed to be OK now in the forum End of Life and Grief 12 years ago
Dear Gill
I'm sorry that you have people around who obviously have no idea what it is like to lose someone so close. Two months is no time at all for healing even to begin to happen. YOU be kind to yourself, and don't expect too much from yourself, even if other people are insensitive.
Do keep in touch here.
Lots of love.
Mavis xxx
mhnevill replied to the topic Weird side effect? in the forum Side-effects 12 years ago
Hi Pat
Sorry you are having trouble with your silver rings. I wear a lot of silver, but not rings, and I haven't had any trouble!
This is a funny disease. We all react so differently and these seemingly "little" things can tip the balance in making us feel depressed.
Do take care.
Mavis x
mhnevill replied to the topic CTD Finished and came home on Wednesday 31st in the forum Treatment 12 years ago
Hi Tina
You know I'd admire you for following the CDT with the Transplant. I know, from reading what others have experienced, that it won't be an easy time, but, if like with CDT, you mark off the weeks, I know you are going to come fine. What was your PP reading pre SCT?
I know one of the worse things with all this treatment is how food…[Read more]
mhnevill started the topic Good News!. in the forum General 12 years ago
Hi everyone.
At last some good news to cheer me. I like lots of you was really rocked by the news of Paul's death. I still can't come to terms with it.
I saw a different Senior Registrar on my hospital visit last week. He cheered me up no end by saying the MM is in complete remissions and there is no PP registering. As you can imagine,…[Read more]
mhnevill replied to the topic Has anyone heard from Dai? in the forum General 12 years ago
Hi you three!
I'd also take my hat off if I wore one!!!!
Love and best wishes to all of you.
Mavis x
keznmel replied to the topic Waiting in the forum End of Life and Grief 12 years ago
Oh Sue… :-(. I know that I haven't spoken to you before, I'm quite new. It's also my partner who has MM.
I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.
I am so very sorry Sue…
Thinking…[Read more]