Hi Kay

Well done for taking on the challenge of the return to work.

I worry about your continuted pain. Have you asked to see the Pallitative Care Team? I know it sounds drastic when we want to think of ourselves as as normal as we can be, but they will treat us because we do have a life threatening illness. I have found it really helpful…[Read more]

Hi Tina

So glad you are last moving onto the Trial. All best wishes for that. I hope the drugs well and truly kick the MM into touch. Hope your shoulder is functioning well now and pain is bearable.

Love Mavis xxx

Hi Tom

Please could you send Bridget my good wishes and love too.

Dear Tom and others,

I have joined Face Book but am frightened to use it because of security worries. Have you any words of wisdom? Are there ways of using it without exposing yourself to too much risk?? Folk are always asking to be my "friend" and at the moment I just…[Read more]

Belated welcome from me too Tony.

Sorry you have had to join us, but at least you got diagnosed reasonably early which does help.

Glad you've been admitted to the Trial. Do hope it works really well for you. Is it with a view to have a Stem Cell Transplant later? Or maybe they are leaving that because of your age.

I am 67yrs and have…[Read more]

Hi All

Now settled back at home. Not without its problems but I am getting lots of help, if very fragmented. I am now getting more mobile, if somewhat slowly. The pain is much better with the oxycontin.

I started on my second round of chemo on Wednesday, It would have been Monday if the ambulance had been booked! They have doubled the…[Read more]

Hi Ian

I have had swollen ankles while on my first dose of CDT. Partly, because I haven't been moving much. I have found if I work my feet, while sitting down, they aren't as bad. The consultant says nothing to worry about and don't need water pills at the moment. Must say, they are very unsightly though!

Hope things go well with…[Read more]

Hi Jo

Tahnk yu for your support and prayers over the past three weeks.

Glad there was something to make the hospital visit more pleasant. It does make a difference doesn't it. We spend so long in these places. Great that some folk are able to raise money to support these intitiatives.

My daugher has just signed on to do the "Race for…[Read more]

Hi Helen

So sorry you have this to deal with on top of everything else. Thing to remember on all these interviews/questionnaires is, you must answer as to how you feel on "bad" days not "good". You do yourself no favours by being brave.

After all, what's a OH interview upto ALL you hve been through recently.

I would have thought the best…[Read more]

Hi Susie

So sorry you have had to join our "merry" band! We all know what it is to be waiting for results and dreading the outcome. I do hope that you have some time without having to procede to chemo. I was very fortunate and had 17 months between my operation to remove a tumour and progression. Thing was though, it did come as a shock…[Read more]

Welcopme Jorge

Sorry you are having to cope with the devastating diagnosis of MM on your own. I am sure you will find this site very supportive as you settle back in Ireland.

All good wishes.

Mavis

Hi Dai

Sorry that the pain in your shoulder is still as bad. Interestingly, I have had a lot ofpain in my left shoulder and can't take any weight on it. They have provided me with a riser to get in and poutof bed with. Mt Consultant did have an xray done on mine and it turns out it isn't broken, but is probably arthritic. If yours is, maybe…[Read more]

Dear Gina

Good to hear from you that you are all gradually coming to terms with your big loss. Don't forget, too, that you have also had all the sad hard MM journey to walk with your Mum before this. Coming to terms with loss takes lots and lots of time. Be kind to yourselves and dwell on those good memories. Think often, "what would mum…[Read more]

Dear Dai, Jean, Gill, Helen, Tom, Jo and Paul,

I knew, once I could get on line I would get some nice re-assuring feed-back from "them that know!" Getting over the shock of a;ll this bone damage and trying to put the threat of stress factors to the back of my mind. Like you Dai, I have problems with my shoulders, but they are keeping me in…[Read more]

Dear Jill and Stephen

Can't tell you how much it cheered me up to come in on the end of these postings to hear that you are off to France and it was bu__er all! Scary days some are, aren't they.

Go and have some really chill out times, but hopefully not chilly!

Lots of love.

Mavis

Hi Andy

Sorry things aren't going as hoped with treatment. I can understand just how frustrated you must have been to have spent all that time in Hospitasl hooked up on infusion for it not to have the desired result. Might it have a delayed efffect? I am sending many positive thoughts and prayers that things can move towards a SCT soon.…[Read more]

So pleased for you David.

Keep on being positive – I'm sure you can have lots of years of remission.

Much love.

Mavis

Hi Steve and Andy.

Welcome from me too. It is good that you are now both on site as I am sure that both of you, with your differering support needs will find the help and information you need.

Wonder what treatment Andy is having? Hope things are moving in a good direction.

Very best wishes.

Mavis

Dear Dai

AS you say in another post, it isn't a walk in the park, but if this maintainance regime keeps MM at bay while you waith fornthe next best thing, it must be good. More time with your lovely family.

Lots of love.

Mavis