Hi Tina

Sure you will have found all contributions helpful. Aren't they a lovely bunch on here!

Hi Carol

So glad your good phase continues, I found your comments about wigs really helpful because it is something I have worred about, even though it is, hopefully, a long way down the line.

Enjoy your riding and hope you get that door…[Read more]

Hi Zoe…

It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.

I hope this finds you all well. Please keep in touch x x x

Thank you Bridget,

I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]

Hi Mavis…Sorry for late reply.

Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

Dear Ros

Sorry for the loss of your friend on top of everything else. You were very brave to be going on your own today. I do hope you coped well and thast the service brought some comfort. At least your friend, like Michael is now free from pain.

I'm sure your counsellor is right – you it is as if you have lost three people. I can't…[Read more]

Hi Dai

It really does seem one step forward, one back for you. Oh the frustration of not having enough pp! Sounds crazy doesn't it. Do hope you make the Trial. Something must work out for you soon. As you say, at least you respond well while on the therepy – trouble is the limitations it places on your life.

Sending all good wishes and…[Read more]

Dear Bridget

My dear cyber friend, I could have wept when I read your post which I have just caught up with. I have been thinking about you and thinking I might post to see how you are. Now I know – what a downer. I shall put you on our daily prayer list so I send you positive thoughts each day! We all love your positive attitude on here.…[Read more]

Hi Sue

So sorry to hear that you and Michael are having such a hard time. Do hope you both turn the corner soon.

Lots of love.

Mavis x

Hi Tina

Welcome to you too! Sorry you've had to join us. Do hope your shoulder is healing well and you are getting movement back. Was this because of MM or because of arthritis? I have both!

I haven't had a SCT but there are lots of folk on here who can give you advice.

All best wishes.

Mavis x

Hi Geri

Welcome to the Site. Sorry you have had to join us after evading it for four years. You have a lot to cope with with Crohns and your impending operation. You need all your positive thinking to help you thorugh. I know it does make a difference.

Sorry you are having all this bone involvement. Have you been on Zometa infusions? I…[Read more]

Hi Tina

A welcome to the Site from me too – sorry you have had to join us. Perhaps you could give us a bit more information on how you got to the point of diagnosis: there are so many routes, as you will find out!

Lots of folk on here have has SCT and can give advice. Also, Trials give access to the latest thinking and very close…[Read more]

Hi Kerry

Sorry to have to welcome you to this special Site where we are all fighting the dreaded MM. You will find lots of support here.

No wonder you feel phased – you both have so much to handle at the moment.
First things first. If Melvin is still in lots of pain tell him to ask to see the Hospital's Pain Team, if he hasn't already.…[Read more]

Graham, All the best for Thursday.

Mavis

And Hi Tom

Thanks for that info. very interesting.
Keep battling on!

Best wishes Mavis

Hi Dai

I was thinking this too. Hope all is well.

Best wishes.

Mavis

Hi Mal and Bruce

All best wishes for 14th and afterwards. A neighbour with home dialysis used to go on holiday and get the requirements delivered at the hotel so the world will be your oyster! Well, maybe not the world, but … !

I do hope you get the hang of all the machinery very quickly.

Love Mavis

Hi Val

You must be relieved to have got rid of the night cramps. Hope you get good results from the tests soon so you can restart your maintainence.

Very best wishes.

Mavis

Dear Terry

Welcome. Sorry you've had to join this select fighting band. No wonder you are feeling nervous with so much to contend with. Others will help specifically on SCT side – I haven't had one, but just wanted to say Hi and send my best wishes.

Mavis