Dear Michelle

However you may feel you are doing, you are very brave to have got your head round things enough to plan your husband's funeral, but we will all be hoping and praying that this is not the time you need it. Sometimes preparing for the worst is a neccesary part of being able to cope with all the distress and uncertainty.

Love in…[Read more]

Dear Ed

Welcome to this site – know other carers will give you the support you need, but hope you can find some nearer home too.

I am now in the "wait and see" plus Zometa phase and take comfort with every consutation where this continues. I take heart that there are lots of folks out there for whom this phase lasts for years. I remember…[Read more]

Hi Lyn

Just caught up with your posting. Sorry you and Pete have had such a difficult time and then eventually getting the mind blowing diagnosis of MM. It is such a lot to take in. After just over a year into all this I am just beginning to appreciate just how hard it was for Gordon when I was first admitted to Hospital, had emergency…[Read more]

Hi everyone!

Yes, all the news that comes out, including latest stuff from ASH (See Myeloma Beacon Web Site) is so encouraging. Let's hope and pray we are all in this FOR THE LONG HAUL!!!

Lots of love to everyone for 2012 and many more years to follow.

Mavis xxx

Hi Shirls

Glad you had a good Christmas and that people spoiled you. As others have said – yopu deserve it.

We had a good Christmas. I drove to and from London, from Yorkshire, and was so grateful there was no snow this year as this was the first Christmas Day we have spent with the grandchildren aged 4 and 20 months. We were all so…[Read more]

Hi Jean and Frank

What a lovely day you obviously had. A good excuse to forget the dreaded MM and the bad time Frank has had the past few months. A lovely picture to bring back wonderful memories in the future. I still enjoy looking at my daughter's wedding photo and it was ten years ago. One of the best days of my life!

All best wishes…[Read more]

Hi Helen

Sorry about the infection and the alergy to the wig! What luck. Still, at least your hair is growing – another couple of months and this hard period will almost be behind you.

Amazed that you had energy to cook for so many.

Have a really good year in 2012. May it feel like a new beginning.

Mavis x

Hi Chris

Sorry you have had to join us! I feel for you as you come to terms with this life changing diagnosis. I find, now it is over a year since mine that I have come to an easier accomodation with MM. Fortunately, so far, apart from surgery on my back and radiotherepy, and now monthly zometa, for my bones, I haven't had to have any other…[Read more]

Dear Keith

I do hope you will have kicked off the worst of this chest infection by Christmas.

It's no wonder everyone is catching things – I'm getting a real down on folk who just sneeze and cough all over the place and never use a hankerchief.

All best wishes.

Mavis

Hi everyone

More love to you all who are struggling so bravely.

Thank you Min for that lovely explanation of grief. I will certainly share it with others. My neighbour was only asking me the other week why she didn't feel better, but worse, having lost her husband 18 months ago.

It certainly takes more time than most people who haven't…[Read more]

Hi Min

You do the brain training and have a laugh. I did one on my friend's nintendo last week. I have a brain age of 59 – not bad for a 66 year old! But on one of the tests you had to remember a list of four letter words (all clean of course!)nd I could only remember three. I thought I would get a scor of about a hundred!!!

And David,…[Read more]

Hi Jean

I have just caught up with these posts. Sorry Frank is having such a bad time and you are having such a lot of worry.

I do hope the MRI doesn't throw up anything sinister. When you describe the pain around his ribs, it is very like the pain I get from time to time. sometimes, like Frank I can hardly move with it. I mentioned it…[Read more]

I want to send special greetings to all of you who have lost loved ones to the dreaded MM this year. It will be very sad, especially on Christmas day, but I am sure i won't be the only one sending up a prayer for all my cyber friends in this sad situatiion.

May you find that strength that you previously generously and lovingly spent on your…[Read more]

I agree Glyn! When I read the first article Min directed us too I wasn't too impressed to read the stark survival expectations.

Let's all prove them wrong, and, David, who knows what is round the corner.

Thank you Ellen for looking out for us.

Love and long remissions to all my cyber friends on site.

Mavis xxxx

Hi Eve

Envy Slim his tan even if drug induced. I am looking decidedly pastey!!

Hope his tooth isn't too painful and that you get it sorted out soon. Just when you thought you could have a break from the medics!!

Lots of love to you both.

Mavis

Hi Bridget

I'm still routing for you!!! Sorry you had such a bad experience. It does seem daft what floors us, isn't it.

Maybe your body is saying it wants a partial rest from all this toxic stuff. It sounds, by what you wrote that you are still on steroids. Whatever, I hope it is enough to keep anything more sinister at bay. Hope the…[Read more]

Hi Mari

Sorry to hear Steve has taken a dive. Glad he can be a bit philosophical about it. Folk on here seem to do well on velcade. I met one of the "Velcade Three" ladies (your name sake – Marie!) on am ambulance to Leeds last year. How grateful we need to be to those who fought the Authorities to make NHS agree to pay for it. And, to…[Read more]

Hi Sue and Michael

So sorry the Trial hasn't worked for you – you will have had such high hopes. I know you won't give up and I have read that refractory patients often respond to drugs that have worked for them earlier in their treatment. Has that been suggested. It maybe that your local Consultant with come up with something, but if not,…[Read more]

Hi Christine

Sorry to have to welcome you to this elite club!! Glad others have been able to answer your specific questions. One thing I have learnt from this site is to concentrate on what you can do, not what you can't. Now you have been diagnosed and are being treated, I'm sure that, like most of us, you will eventually find you can do…[Read more]