Hi only me

I've just caught up with these posts. Don't be down hearted about your Mum not progressing straight to SCT. Not everyone has a long remission following it and the immediate effects can seem pretty horrid. At least it isn't ruled out for her. For myself, I am in no rush for any treatment and have decided, at 66yrs and with other…[Read more]

Hi David

So pleased that things are working out for you and that the SCT worked.
Enjoy the next three months and forget you are someone with this dreaded MM.

Mavis

Hi Dai

This song is great. Makes the idea of a Concert seem real. Any progress on that?

All best wishes.

Mavis

Dear Min

Do hope that Peter improves soon and that he continues to manage to get some sleep in Hospital. I always think if you can sleep it helps.

God bless you both.

Mavis

Hi Keith

Can I join the others in wishing you a good break before your next SCT. Do hope while you are away you can feel like a "normal" person for a few days!

Very best wishes for all the future holds.

Mavis

Dear Bridget

I do hope that you got a satisfactory plan of action for your pain at last. I feel so cross that your GP doesn't take your pain more seriously. He should live with it is my feeling. I know they can get busy, but it's not as if you'd make a request for more help if it wasn't necessary.

All love.

Mavis x

All the best Dia! Keep that music coming!

Good luck for the forthcoming meeting. It is "our life in their hands" isn't it!

Love

Mavis

Dear Mari

Great to hear of Steve's success. Congratulations to him!
Thanks too for such a positive and encouraging post.

I was also diagnosed following a tumour on the spine (Sept 10). I have not gone for early chemo, but it remains there as a threat/promise! Can you remember what Steve's paraprotein readings were when he started on…[Read more]

Hi Bridget

I too had you on my mind. I do hope and pray that you find something to get this pain under control soon. since I was diagnosed and had op to remove tumour my pain has always been bearable, if limiting, but as others have siad, i have always found using several pain killersw together seems to work best, Do hope they increase your…[Read more]

Dear Angelina

Just to say I am thinking of you John and the girls at this very difficult time. May you find the strength you need and an assurance that this life isn't all there is. Love never dies and your Memory Book will be ione way of keeping it alive.

Best wishes.

Mavis

Hi Claire

I can understand you being confused about your Mum's diagnosis. The good thing is that two years later you are here rooting for her. It is a difficult disease to understand because everyone's path through it is so different.

You have come to the right site. Ask any questins and I'm sure someone will be able to help'

Best…[Read more]

I would find this helpful too.

Thanks.

Mavis

Hi Jo and all

I'm interested that your MM has plateaued. What numbers are your Para protein on? I haven't started treatment yet and I'm very committed to the theory of "as little as possible and as late as possible" so i found Patrick's blog encouraging.

I do worry about the different stories I hear about CDT. I'd love to know what…[Read more]

Hi Dai

So glad to hear the frightening tumour has taken flight. It gives me great encouragement to know that these drugs actually do work in spite of all the side effects which terrify me. It will help me when my time to take them comes.

Do hope things continue to improve for you and that our "bard" continues to be inspired!!!

All best…[Read more]

Welcome Ali and Guy from me too. Have just picked up your post.

It is all such a shock at the beginning and most of us had never heard of MM before diagnosis, and as you say, all the jargon is mind blowing. I still ahven't got my head round it all.

However, I do commend this site and urge you to ask whatever you like, or say whatever you…[Read more]

Dear Tina

I am so sorry that Ptrick has at last lost the battle he fought so bravely.

Sincere condolences to you and all the family at this very sad time.

Very bast wishes.

Mavis

Dear Bridget

Just caught up with your troubles. So sorry because you are so brave ans an inspiration to me. Hope improvement continues.

Thinking of you.

Love

Mavis x

Dear Eve

Have been off site for a while. Just caught up with all your troubles.
Just to let you know I too am thinking positive thoughts for you and Slim. I sympathise with your wish to get him safely home as soon as possible. And they say the NHS is safe in their hands!

Love
Mavis

Hi Jean

Hope Frank is right and it is a pulled muscle! But, whatever, I hope you can still stave off treatment.

One thing I can't quite work out is if chemo helps bone pain anyway as lots of folk on drugs still seem to have lots of pain. Perhaps someone can enlighten us.

Very best wishes to you both.

Mavis

Hi Gill.

What to say to you and Stephen? No words help and I feel sure it is worse for the care giver.

Yes, living in the moment is the best each of us can do with this horrible disease. Blessings as you try to do this. I have found the sunshine has helped in some ways, but has also reminded me of what I can't do!

All blessings to…[Read more]