Hi David
So sorry you have had this bad dip. Good job you are a fighter.
Still, it is nearly two weeks till Christmas so you should be well home by then and look forwarde to something better than toast!
I say a little prayer for you when I wake in the night.
Blessings to you and yours.
Mavis x

Hi again, David

Everything is relative isn't it, and I can't believe you are now giving yourself happiness rating 7! Do hope you are headed home soon because after a long stay it does feel like an "escape" and even if it is a bit scary without the immediate help at hand, it always feels good to be in your own place.
My prayer is that, by…[Read more]

* Dear David

Coming back to site after a couple of days it was really good to see you are upto writing your blog again even if you still are faily low with all the side effects of the treatment.

We are still all here cheering you on. Hopefully you will turn the corner soon.

All best wishes.

Mavis

Dear roz

I have been follwing the ssad time you and Michael have been having. My heart goes out to you. I realise how distressing it must be for you that, because of the state of his illness, Michael doesn't realise how much you are trying to do the best for him. Do put it down to MM and not to anything you have done.

I feel very sad that…[Read more]

Hi David

Well, six is more than half way up. And as you say, it's important to be honest with yourself and knid to yourself when, naturally you will be feeling sorry for yourself.
Shame I can't be paying you to loose some weight for me! Enjoy the toast. It was the treat of the day when i was first admitted to my local hospital. The only…[Read more]

Hi David

Just to let you know that my thoughts and prayers are with you as are everyone else's.
One thing about "down", the only way is "up" and from evrything of yours I have read, I know your strength of character will get you there in time.

Till then, let all our positive thoughts help carry you and yours.

Very best…[Read more]

Hi Kevin

As a new girl i want to add my good wishes and commiserations to evryone else's. The willingness of you "old stagers", as it were, to share so honestly is a real help, believe it or not.

I do pray that something else is out there for you. I keep reading about these new treatments for refractory MM (hope I got the term…[Read more]

Hi Sandie

I empaphise with your mother as I too feel really well at the moment, in spite of having had surgery and being diagnosed in Sopt/Oct this year – my paraprotein reading was 10. I am interested that you Mum's Onc has recommended treatment even though she doesn't ahve any other symptons.

As i have said in another post, I am not keen…[Read more]

Hi Jean

I just picked up this post while getting used to the new site. It was very helpful to me because, unlike you, on behalf of your husband, I want to put off treatment for as long as possible. After an op for a plasmacytoma in Sept, 10 I feel better than I have done in the past 18 months even with my arthritis. I don't want to make…[Read more]

Hi Mari
I was interested to read in yuour post that Steve had a similar experience to me last January ?2010. I was diagnosed and had my op in Septembet this year. I am awaiting radiotherepy, but the story about further treatment changes all the time as to yes or no to immediate chemo. I am currently awaiting a recent blood test result.

What…[Read more]

Hi Susan
I had a similar experieince to your Dad and had to have surgery.
I am now getting mobile again with superb help from the mobile physio, however, I am still wobbly and it is taking time for the strength to come back to my legs. I am only just beginning to use crutches rather than a zimmer, for some of the time. This is ten weeks post…[Read more]