J.Bogle

Base

Name

J. Bogle

Description

I have recently been diagnosed with Myeloma a depilating cancer which attacks your plasma cells and in turn destroys your bone marrow. Within 4 months (since February) this year having just turned the rip young age of 40…. I was just like everyone else without a care in the world, accept for a few bad spells of back pains, tiredness, and aches which progressively worsened after seeing a highly recommended Osteopath in February this year. I soon became aware something was seriously wrong with me after 4 trips to A & E via 999 calls due to feeling like my back was collapsing and severe pain, the first 3 times I was told nothing was wrong with me, and that it was in my imagination as my X-rays and CT scans showed nothing out of the obvious, even though I was on morphine every 2 hours and 30+ pain killers a day didn?t touch the pain, I was released from hospital in unimaginable and indescribable pain, and sent back home to spend a further 2 weeks in bed unable to lay down in bed, stand up or walk as every time I tried to stand up my legs were unable to support my body, and back spasms which felt like an LIVE electric wire had been connected to my spine. Although I suspected something was seriously wrong despite the hospitals inability to diagnose me on 3 occasions; how could someone go from being able bodied to bed and wheelchair bound within one month??????? things became even more serious when one night after 4 constant days of back spasms unable to move in bed, I was placed to lay on my side supported by a bank of pillows and within 2 hours I needed to move but couldn?t….. I was hit by a level of pain I can only describe as UNDISCRIBABLE PAIN , my spine felt like it had broken in 2, my eyes rolled to the back of my head and I almost stopped breathing the pain was so horrendous and unbearable, I felt like I was dying on a scale of 0 ? 10 the pain was 100, another 999 call resulted in 3 ambulance crew, 10ml of morphine, gas and air and 2 hours just to lift me out of bed. My back felt like it was breaking and I later found out that exactly what had started to happen, my spine had fractured and had started to COLLAPSE, I am lucky to be alive and thank god that a diagnosis was found thanks to the ?Whittington Hospital? having piecing together a jigsaw of health events which only showed up through a blood test. My Myeloma consultant made me aware that if I had gone undiagnosed for longer my spine would have collapsed, crushing all vital organs, or just broken and killed me BASICALLY I COULD HAVE BEEN DIED WITHIN A FEW MONTHS….. THIS IS SERIOUS……… I will be starting treatment padicmac trial which includes chemotherapy on the 2nd of July for 3 ? 6 months then I will need a stem cell translate, it?s a long, long, hard road from here but at the end of the tunnels theirs a glimmer of hope and light ? I would really like to meet or chat with others effected by Myeloma.