Maybe the bleeding is caused by the results of constipation as the drugs do tend to 'bind' you and when you do manage to go to the loo, it can result in very hard stools which cause bleeding and as you say his platelet counts are low, the bleeding may be worse because of that.

Hope he gets back on track soon.

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I think it is a side effect but I also get spasmps in my hands when my calcium or potassium drop – what was your last blood test reading? Worth asking.

I also find if I take a painkiller which contains codeine it helps with the spasms.

HTH

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[quote] Perhaps someone should open a restaurant for people who are taste compromised?? Could call it Th e Cardboard Cafe? Sorry I am in a silly mood today Hang in there Keith it does get better and you will struggle to remember how rubbish you felt !!love Bridgetx [/quote]

lol totally agree, hard to explain to anyone who hasn't been there…[Read more]

I had been wondering how you were. My friend lost her husband to prostate cancer and she too said she didn't have time to grieve because of all the 'stuff' she had to deal with after his death.

it is very difficult.

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Yup, my combo knocks me off my feet too – you just have to learn which are your 'good' days and work towards them, otherwise, she'll have to rest up and accept the inactivity, which isn't always easy I know.

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I find taking a pain killer that contains codeine (sp?) helps with the restless legs syndrome. You can buy them over the counter but it's better to get them prescribed with all your other 'stuff'!

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Gaye, it took about 12 weeks for my RT to fully relieve my back pain but the effect has been lasting so it's worth the wait, altho' I hope yours works a bit sooner than that.

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I had just the same problem with bras when I first developed MM. When I was x-rayed, it turned out that I had cracked ribs! Now, my rib cage has 're-set' and it more the shape of a bird cage then a set of ribs (good job I'm not a glamour model eh?)

I can also relate to the lost weight. I just cannot regain any of mine and I look like an…[Read more]

Welcome. Re questions, I can't help there but I'm sure they will forumulate as the days go by and there is a lot to take in intially so I advise having a wee note book or similar so you can write it down as you go along.

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Welcome.

I can understand your worries about him being able to take the medication as prescribed – it is a bit of a nightmare to start with.

Alternatively (or as well as the chart) as mentioned above, it may be worth considering asking to see the hospital social worker with a view to a carer calling once a day to supervise the…[Read more]

Welcome. You'll soon have learnt a whole new set of words – it's amazing how soon you become familiar with it all.

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Welcome. This is a good group for letting off steam or just 'talking' so feel free.

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Welcome.

No, I've not experienced spinal surgery but have had radiotherapy to my back.

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Welcome. I hope you soon get some answers to your questions.

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Welcome. Good that you've got an early diagnosis. Ask away with questions, it's a brill group and someone will always try to help.

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Welcome glad you got diagnosed early and have started treatment. Good luck.

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LOL re 'looks cheap'. I asked my neighbour to collect my prescription for me one month (it has to be ordered, our pharmacy doesn't keep it in stock) and she said "Oh, I didn't leave you medication on the step, I thought I'd wait until you came home." When I told her the one month's supply was £4,000 she said "Oh, my Goodness, if I'd known, I'd…[Read more]

I always take mine in the morning with my Dex. Mind you, I'm sleepy even when I'm on my week 4 of the cycle where I don't take it at all.

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Nope I definitely wouldn't risk taking anything else alongside the prescribed drugs and the interactions can be quite drastic sometimes. I do have faith in complimentary therapies but under these circumstances, they are not something I'd want to take.

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