Katie replied to the topic Plasmacytoma following allo sct in the forum General 14 years, 3 months ago
Hi Sharon,
My allo was my second transplant so I have started Revlimid as a third line treatment.
They found my plasmocytoma through the increase in light chain count but it was pretty moderate. I believe it went up in 2's and 3's. Have you counts risen at all?
I had a CT/Pet scan which identified the lump on my rib but as it was the only…[Read more]
Katie replied to the topic Plasmacytoma following allo sct in the forum General 14 years, 3 months ago
Hi Sharon,
Sorry to hear your news. Eighteen months after my allo, I developed a lump as well. I believe it's not uncommon.
Hopefully a shot of radiotherapy will sort it out and click your immune system back into gear.
Unfortunately I fully relapsed about six months later but many people don't.
Good luck
Katie replied to the topic Myeloma XI Trial in the forum Treatment 14 years, 4 months ago
Hi Debs,
Your trial sounds interesting. Sounds like you have all three novel treatments up front.
Will that not compromise you at first relapse, having experienced the drugs before?
Xx