Hi Peter

I think I know that now 😀 but you nip under radar as often as you wish 😉 but dropping by the normal way is better as its "Good To Chat"
Looked for you On Face Book, do you have a photo on profile? or is that you that just joined ??

And i will try to be good 😛

Tom Onwards and Upwards

Hi Louise

I know your dads doing great 😀 it looks lie he might beat me and get out in less than the 16 days I done, and every one thought that was Good.
Dont worry to much about your dad getting more blood I had one two days before i was let out 😀 and the Dr said that I could have been let out the day before.

Love to you all and tell…[Read more]

Yep am up for that Dai, its one thing I regret (and i dont do regrets easily 😛 ) that I dint do a blog or have a diary or even jot things down on rough bits of paper 🙁 and we all know how the brain goes after Chemo Ha ha.

Tom Onwards and Upwards

Hi Peter
Looked at my Face Book?? dint know you had one and you dint ask to be my friend 🙁 Look Thin gosh am gonna have to tell My Young Bride (Elaine) that one lolol:-D am about 15st 😛

Your Doing well with it all Peter, But Wine and Chocalate :-0 am a savory man with my drink.
As for hair (and you peeped at my FB) mine has grown back…[Read more]

Hello Dai

It's strange that you should post this thread today.
Just recently I've been pondering on the fact that as wonderful as this forum is, the actual MM PATIENTS tend to have their comments and messages lost amongst those posted by carers/family members who naturally only post thoughts from their points of view and at the end of the day…[Read more]

Dai

I think that is a brilliant idea. When Frank started SCT I trolled through the site for others experiences which helped a lot. It took me sometime to gather the info but at least I was prepared to see Frank so poorly

Thanks Dai for the post on your experience of SCT it was very detailed and I forwarded it to our 4 sons as they don't let…[Read more]

Hi Min

I suppose the difference is you have been there I have not,I do not know how I will feel,that is yet to come,mt daughters think I will go off in the motor home,but you cannot say until it happens,at times I do wish I had my life back instead of being in this bubble,but I do know people who are no longer in the bubble but life has not…[Read more]

Hi Tom, Helen and Louise

Thanks for posts. I have asked Frank to ask about bloods but as usual the doctor will tell him annoying he wants to know. To,or row befor I go Iin I will see if I can speak to a doctor. Tom my life would not be worth living if I let him sleep through a United match – mind you the way they played 2nd half, I wish I was…[Read more]

Hi Jean and Frank

Well first no way would you wake me for bloomin Football Lol
Second I can tell you Frank is doing Bloomin well 😎 I at that stage was asleep most of the time and only woke up to say Good Bye to Elaine and whoever turned up that day/nite, and as the Dr said "he is ahead of the pack" is soo true so thats Good but it still…[Read more]

Hi Keith
Am Pleased to read you have got rid of your infection and back home with Normal Temp. 😎
You have had it rough My Friend and I pray this is the Corner you turn and chase me to that "Remission"8-)

Still all crossed at ours for you Keith.

Tom Onwards and Upwards x

Hi Jackie. Thanks for your reply. Yes I am attending the Leicester Royal Infirmary, currently under the Bone Marrow Unit but expect to be referred back to the haematology unit very soon. The group meets at Helen Webb House. Have you been there, they offer al sorts of services for both the patient and the carer. And yes one of the nurses is Jenny…[Read more]

Well I can only speak as as Slims Wife,I dread it all coming back,and I do have my blue moments.

Slim is just the opposite he does not worry at all,but he does not sleep a lot ,when I ask him is he is worried it will come back the answer is no.
His attertude is ( I never expected to live until I was 28 so everything. Else is a…[Read more]

Hi All

Frank feeling sick and terrible runs. Have given him tablets for cramps and sickness. Drips down. He had a power failure when doctor was talking to him 😛 . He slept for four hours and said that he has never experienced such a deep sleep. Doctor did not say anything about bloods but told him that "he was ahead of the pack" but not to…[Read more]

Hi Paul

Hang in there it is going to be worth it,the fact your still working is a lot,tiredness is one of the symptoms my husband had,but not the moon face he did have a rare side effect painful scrotum .very rare!!!

At least having your treatment subcutaneous saves time.

Jo nice to hear from you take it you are ding fine.??? Love Eve

Hi. Bev

How are things going .i am just boosting this up,as people might have missed ir.Eve

Hi Ann and Pete

Great to hear that things are menging a little. As Vikki says eating will return (I have been Re reading all SCT posts) and that seems to be the norm. Frank hasnt eaten for three days they threatened to bring him some vitamin drink and he told them he would eat a digestive biscuit today. He just feels sick and the dreaded…[Read more]

Hi Laura and Dad
Sorry you had to join but its best place to be if MM is involved Good People and Good advice to be had here 😀

Just a fast one I am now 57 and i had my SCT in December 2009 and am doing great and drug free 😀

Its an uphill fight some days when you go through the treatment but it is a Doable, a few blogs have been done…[Read more]

Wow Wow And Bloomin WOW

What a venture you and yours have and are going through and I raise my hat to you all (I do wear one he he)

Your Story is inspirational 😎 and your strenth will carry you through the MM Journy Good Luck and Love the Post

Love Tom Onwards and Upwards xx

Hi Ann and pete

Well I wouldn't worry too much about the weight loss honest it comes back with a vengance lol, I went down to less than 70k and my normal wieght is 95 k so it was a big loss and trust me nip over and see my photo's on Face Book its well Back Lol.

Love Tom Onwards and Upwards xxx

Hi Laura

You are in the right place. Sorry you had to join us but welcome. You will get lots of Info and support from the people on the site. My husband is in Hospital at the moment going through STC. There are lots of people on the forum who have had experience of this. Everyone's journey is different but come on and ask any questions. You…[Read more]