Hi Jean

Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve

Hi Megan

I have just finished reading again Phil's journey. These posts are really great as you can follow a journey and see that there is light at the end of the tunnel. 🙂 frank is still on a drip. When I ask him what is happening he shrugs – he's not like me I want to know everything. They put the 7.6 million back and I asked Frank to ask…[Read more]

Hi Ann

I know how you feel watching Pete in pain and not been able to help him. I do hope he starts to feel better soon. It is good that his levels are up. Ann exactly what type of isolation was Pete in ? Thank you for thinking of Frank with all that is on your mind. Frank in a room of his own – has been since he went in. You go into a little…[Read more]

Hello Jackie, so sorry to read about your mum. I was diagnosed about a year ago with myeloma, I went through a drugs trial and over the past month have just completed a stem cell transplant. It will be about 3 months before we know if the stem cell transplant has been successful or not, so fingers crossed. I can only tell you of my experience,…[Read more]

Hi Jackie

Sorry that your mum has MM but welcome to the forum. They are a great bunch on here for Info, advice and friendship. My husband is in hospital at moment as he had a SCT yesterday. Sorry I can't give you any info on kidney failure bit I know there are quite a few people here that have had kidney problems. I sure someone will be along…[Read more]

Hi Helen and Garry

Your both welcome, the sickness and trots was with me for a couple of months post SCT so not too much of a problem as long as you drink plenty Garry ???????????????????????? it will work out .

Stay well not be long now ????

Tom Onwards and Upwards x

Hi Daniel

Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it…[Read more]

Hi Everybody

It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have…[Read more]

Hi Dai

Good Luck with this one 😀 and am plesed the net found you albeit Late :-S , I went on Zometa in 2010 after my 100 day BMB after Sct and had them for two years.

As for the Fatigue well I have sort of starting to put mine down::

1) being less active since diagnosis

2) Just plain old getting Older :-S Lol

Dai its Ok to…[Read more]

Hi John and Dai

John you have been on Zometa for a fair bit?, I was only on it for two years in 2010 after my SCT in 2009 and was told thats enough ?

Dai yes i had flu symptoms for a few of the sessions it soon went, But i also would keep an eye out for your temp as it has been a bit of a problem for you.

Hope your all Ok

Tom Onwards…[Read more]

Hi Jet Well done and good Luck 😀 and if you need something for your slide show to make people realy Laugh go on my Face book and nick some photos of me Lol.

All The best and am sure you will do a cracking job

Love Tom Onwards and Upwards xx

Hi Helen he said he would phone first thing. Nothing yet. Will give him half an hour and then will ring. NO WE DIDN'T WIN. WE WERE ROBBED 😛 Didn't hear from him after the match. I got home in time for the second half. Wish he would phone getting a bit anxious.

Jean x

Hi Vicki and Colin
Am pleased you get a smile from my posts and that makes me Happy ????and it's just common old nuts am afraid ????

Love Tom Onwards and Upwards xx

hey no tracking am here :::::: tom.lappin.5

Aww I cant remember if i was cold and shivery? to be fair Jean but I do remember my room being cold all the time anyways 😀
But if Elaine (the young bride) woke me up for Football I would kill her (sorry Elaine xx lol) am sure you can tell I dont do footy 😛
Its started now Jean one day at a time dont worry too much just both Relax and let…[Read more]

Hi Sandie

Sorry your Mum is going through a rough time, I cant help on this one am afraid just wanted to send My Good Vibes.

Love Tom Onwards and upwards xx

Hi Eve
Yes you are correct and am sure you know i have heard the word NO many a time Lol
Yes and Pension people do give you more if you are ill and let them know.
6 til 2 is what i have done all my working life and prefer that shift more than the others 🙂

I will give it another think about it.

Many Thanks for all your Input's its been…[Read more]

Tom cells went back at 1pm. He said they put the 7.6 Million back. He was shaking from top to toe he was so cold but he settled and has been snoring for the past 2 hours. If I don't wake him for the United match he will kill me 😛 I did tell him about the mouth wash but I will remind him when he wakes

Love Jean x

Hi Dai

Baby steps is good if its working no need to rush it and cause more side effects?
As for you feeling Weak and Weary well I will be same on thursday but am putting it down to cold weather 🙁 roll on Spring 😎

Stay Steady

Love to you and janet

Tom Onwards and Upwards xx