Hi Helen

I came home 2 weeks ago,after nearly 4 months away,enjoyed the travelling and the weather was very good,I nearly gave up in the first month as I found it very lonely,never realised couples in General Don,t speak to single women on their own!! A real eye opener,but after a month I did get use to it and began to realise I liked my own…[Read more]

Hi Bev

Following reading Margaret’s blog some four years ago, I’ve taken curcumin on a daily basis at the daily dose which she recommends. There have been some interesting comments on this site about taking curcumin. If you type in curcumin in the search box of this discussion forum and on the myeloma beacon site forum, you will find some…[Read more]

Hi Peter

I am sorry that pomalidomide appears to be causing you so many side effects, especially if the drug is managing to keep your myeloma levels in check. It’s balancing quality of life v ongoing treatment. Living with serious side effects which make you unwell must be daunting and depressing. I’m currently on Velcade and it’s causing…[Read more]

Hi, You are right in that I find a second sct quite a daunting prospect especially as I found the first one so exhausting and it took me a good six months to recover sufficient to venture outside the house. Obviously the procedure was not helped by the fact that I couldn’t get my nausea under control with the four cycles of cdt as well as during…[Read more]

Hi Helen,

Reading your title of five years suddenly made me think that it was six years ago this month when my three vertebrae collapsed which certainly speeded up my diagnosis of myeloma. I still remember going through my sct in Sept 2010 and being told at the 100 day consultation meeting afterwards that I would be lucky to achieve two years…[Read more]

Hi Sonia

It’s good news that your husband’s chemotherapy treatment has worked and he is now into the procedure for an sct. I am sorry that no one has replied to your post so far. There are a quite number of people on this forum who have undergone an sct, but I don’t know if any one has had theirs done at Southampton hospital. Hopefully you will…[Read more]

Hi Sonia

It’s good news that your husband’s chemotherapy treatment has worked and he is now into the procedure for an sct. I am sorry that no one has replied to your post so far. There are a quite number of people on this forum who have undergone an sct, but I don’t know if any one has had theirs done at Southampton hospital. Hopefully you will…[Read more]

Hi Helen

Good to hear from you. I’m not sure about the transplant yet because my light chains increased from 150 to 350 after just two weeks rest from the drugs over Christmas. I’m now on a five week cycle of a Velcade injection once a week, with one week off with a possible four cycles to complete. Cyclophosamide has been taken out of the…[Read more]

Hi Brenda,

it’s good news to read you achieved eight years of remission.

After five years of remission, my lambs light chains had increased to 1900, therefore I started VCD in October 2015 with a view to achieving a 90% reduction in light chain levels to be considered for a second stem cell transplant. I was initially on four, three weekly…[Read more]

Hi annlynn. Going to playa blanca to Volcan. You?

Mag my hubby was diaganosed in 2006 with smouldering myeloma. Had SCT in March 2013 – thank God in remission. The only time we stopped holidaying was during SCT and for 3 months after. We have cruised and holidayed in Europe. We have a yearly policy with All Clear. Only place haven’t been back to is America as insurance is too high. We are also…[Read more]

Hi again Sarah

The quality of remission seems to vary depending on whether you opt or are put on maintenance treatment or go totally drug-free.

I’m in the drug-free camp and live a very happy, active life with only a 6 monthly visit to see my lovely specialist.
Even after all these years, only my family and close friends know I’ve got MM. I…[Read more]

Oh yes, I stopped smoking 35 years ago with the aid of hypnosis, I should go for it again.
In the meantime another pre velcade blood test beckons me for tomorrow, ugh!
Tony F

Hello Sarah

I was diagnosed in May 2011 when I was 49. It was totally out of the blue and I can still remember the first days afterwards spent in shock, despair and yes, fear. My brain seemed to scramble and I couldn’t think logically at all. I just kept thinking “I’m going to die”.

If you can relate to this, please let me assure you that with…[Read more]

Hi Karen

I was diagnosed with MM back in May 2011 and after 6 cycles of CTD had a SCT in Poole Hospital in February 2012. After a few months I was completely back to normal and have been in a very good partial remission and then a complete remission ever since. I haven’t looked back and live life to the full. I’ve been totally drug-free for over…[Read more]

Hiya Geebee, welcome to the club that no one truthfully wants to join!
I was just reading through the posts and noticed you had posted.
I am not smouldering but am going through the whole process, on my last round of drug treatment prior to a second stem cell transplant.
As you probably know they are a great bunch on here, also many of the guys…[Read more]