tom replied to the topic Chemo brain, chemo fog in the forum Side-effects 12 years, 9 months ago
Hi Lorry
Well let me tell you I was told I had "Chemo Brain" after my SCT ?? asked the Q's when i had your problem :-/ and was told Chemo Brain :-0 now I had my SCT in December 2009 am now drug free and in remission or platued whatever??: Age 57 (born 1955) I was told it will recover ?? am still waiting Lol 😛 :-S
Hope your soon…[Read more]
eve replied to the topic Chemo brain, chemo fog in the forum Side-effects 12 years, 9 months ago
Hi Lorry
You do not say how old you are!!!
Slim has a chemo head,it has taken him along time to get back doing crosswords,which he use to be very good at,I did speak to a trial nurse,who said in a polite way he may never get back to the person he was,one year on I would agree.
No one would pick up on it as it is just the odd thing for…[Read more]
tom replied to the topic A hip operation during CTD? in the forum Treatment 12 years, 9 months ago
Hi Marina
Sorry you had to join after your Husband diagnosis with MM you have come to the correct place.
I am sorry you two have had a bit of a rough time with it of late and sorry I cant help you this time but am sure some one will pop along and give you the Good advice you need.
Tom Onwards and upwards x
tom replied to the topic Three little words…… in the forum General 12 years, 9 months ago
Hey Rock and Roll Hey Rock and Roll 😀
Hey Vicki and Colin
A Well Done a very Well Done, you dont need me to tell you how good it feels now do you 😀
Now I will have a Drink of beer for you both tonight, Great news well done you two.
From one Onwards and upwards to another Onwards and Upwards xxxx
Am well chuffed 🙂 x
eve replied to the topic Platelets will not rise in the forum Treatment 12 years, 9 months ago
Hi Keith
Just picked up on your posting,if it is any help I know the can get platelets which are more comparable with you,plus injections that help,but I do no know what they are!!!!
You can always tell when the news is not good the nurses keep looking at there shoes just in case there not shiny enough,and doctors avoid the eye…[Read more]
eve replied to the topic Three little words…… in the forum General 12 years, 9 months ago
Vicky and Colin
This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve
eve replied to the topic Sam has relapsed. in the forum General 12 years, 9 months ago
Hi Nicki
So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]
jmsmyth replied to the topic Three little words…… in the forum General 12 years, 9 months ago
Dear Vicki and Colin what FANTASTIC news. Well done you two. 🙂 It is so great to hear news like this as Frank and Ann's husband Pete are going through it – Pete on Friday and Frank next week. You have really given me a boost. I can just imagine the excitement in your house 😀 long long long long ,ay it continue
My very best wishes and…[Read more]
jmsmyth replied to the topic Got call at las in the forum Treatment 12 years, 9 months ago
Hi Ann
Thanks for your post. Co ordinator said they will probably bring him in Monday or Tuesday. Is it general anaesthetic or local? I thought Frank said it was general although co ordinator said he could go home about 2.00pm Ann how long Re they on the chemo drip is it days? I hope to see the co ordinator tomorrow – so will have lots of…[Read more]
jmsmyth replied to the topic Got call at las in the forum Treatment 12 years, 9 months ago
Hey Eve
Sorry to hear your under the wearer. Hope you get it sorted soon. Eve on your iPad you can go to the apple store and download "words with friends" there is no charge and at the moment I have about 6 games on the go – America- Australia and my son and grand daughters in Kent
Hope Slim is doing well and hope you feel better…[Read more]
jmsmyth replied to the topic Got call at las in the forum Treatment 12 years, 9 months ago
Thank you all for your good wishes frank has not said much but I'm really feeling scared now that it is on us. Our son and his family where supposed to move into their new house next week but they have put it off to keep me company at night. Tried to tell them I will be fine but they are adamant.
Thanks again and I will keep you up to date and…[Read more]
jmsmyth replied to the topic So Alone 2 in the forum End of Life and Grief 12 years, 9 months ago
Dear Sue
My heart goes out to you and your family at this terrible time. I hope those close to you will give you the strength that you need. The love that you have for Michael has been shown in your posts and I also say yes you would do it again in a heart beat. My prayers are with you all and Sue I hope that you continue to have the strength…[Read more]
tom replied to the topic So Alone 2 in the forum End of Life and Grief 12 years, 9 months ago
Dear Sue
How I feel for you all at this difficult time, I send you all a Cyber hug and i hope that helps, its no good me saying you must rest as you need to keep your strenth up as am sure you cant sleep.
Will you do it again I say yes as though we have not met I know you are a very strong lady, stay strong throu out this difficult…[Read more]
eve replied to the topic Got call at las in the forum Treatment 12 years, 9 months ago
Hi Jean
All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.
Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]
eve replied to the topic So Alone 2 in the forum End of Life and Grief 12 years, 9 months ago
Hi Sue
My heart goes out to you,it must be hard on all the family Michael must be a very strong man,when this is all over you will look back and be glad Michael was at home,it must be the hardest thing you have ever done,try to rest .
I will be thinking about you and hoping,that Michael is at peace and you find your way through this…[Read more]
jmsmyth started the topic Got call at las. in the forum Treatment 12 years, 9 months ago
Hi all
Frank got the long awaited call and goes in on Friday for Hickman. Hopes for transplant next week. Will troll site for info and any tips and info from you will be gratefully received. Have been told that you can bring in own duvet and pillow if new. Anyone done this 🙂
Love Jean x
Michele replied to the topic First time for everything… in the forum Treatment 12 years, 9 months ago
Well I for one don't blame you Dai. I'd have done the same, especially on such a rare sunny day. Infact I think I'd have gone at the 1.5 hour mark…
I always think it's ironic, but life's literally too short for us with MM to waste time in any sort of waiting room!
🙂
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 12 years, 9 months ago
Morning Peter
Yep Early Days and you are doing good, Moth will soon get better as will your will to eat, My young Bride (Elaine gave me mine food on a small plate so as not to overface me so to speak (it worked am now back to being fat ha ha)
All the Best Peter now am off to work 😎
tom replied to the topic Melphalan in the forum Treatment 12 years, 9 months ago
Hi Gina
Well I dont think you are getting what you and os your Mum Deserve?, its shocking to hear you only have such a short time with the Consultant, Now i am one of those that say "If the Dr Smiles am Happy" but I do know as and when I need to know anything nothing is too much bother from him or his team, am sure i am not the only one that has…[Read more]
tom replied to the topic Article and stuff!! in the forum General 12 years, 9 months ago
Hi Chell
Well done just been and had a look at your "New" Facebook Page, now am going over to add you on my Twitter 🙂
Love Tom Onwards and upwards xxx