Thank you all for your replies. Ali your message cut off and didn't get what your mums levels were. I would be interested in kmowing what they were. Hope you mum is doing well
Love Jean x

Hi Keith

Well you have been here before M8 and you kicked its Butt am sure you will do it again 😀

I hope you get home todat as that will mean everything has settled its good to hear CDT is still working for you.

Fingers Crossed you are home today

Tom Onwards and Upwards x

Hi Sandie

Your Welcome, as for Exercise, non impact/load bearing is what you should do cycling,swimming and getting a good dog and having a long walk 😀

Getting Old aint good but am sure its better than the alternative :-0
Am pleased your Mum is one that doesn't let anything get her down as that will stand her in good stead for the…[Read more]

your welcome Emma am sure the Mac Nurse will be a great help.
As yet I haven't seen one but thats all Good isn't it 😎

Keep well and love to both you and your Mum xx

Tom Onwards and Upwards xx

Hi Dai am pleased you were buzzing (you know you will regret it lol)
And Snapping at Janet NEVER? that was the Dex that snapped not you as both you and Janet know all too well.
Have a great sleep and no snoring please 😎

Tom Onwards and upwards x

Not a Problem Dai, our Grandkids have all got something or another that gets "Face Time" so when we want to contact any of them we use there Ipoddy/paddie thing.

Tom Onwards and upwards.8-)

Hi Sandie

Well Good Luck to you and your Mum for the upcomming treatment and i hope your Mum sails through it with little or no side effects.

Yes i was told also to get straight up to Cancer ward if I was unwell, so your Mum is being Looked after 😀

As for you and your Pain Sandie well that might just be arthritis ( i say that as if its…[Read more]

Hey Michele

Happy First Birthday to your Stems in case I dont get on here Tomorrow (10.2.2013)
I bet you feel 100% Better keep it going and have a Great SCT Party.

Love Tom Onwards and upwards xx8-)

Hey Dai thats no problem my Friend, your posts are an inspiration to me and am sure many others on here and those fortunate to have crossed your path (in real Time)
Stick with it My Friend as you are one helleva a Man 😎

Tom Onwards and Upwards x

Andy rad your post on F/B and pleased your results are Good 😎 , May I ask you to give…[Read more]

Hi Jean and Frank

Hey dont worry too much about Pp Levels mine were still present (cant remember what level? ) but Mine went ahead and yes i had a Long wait from harvest to SCT due to Dr missing me off the list 🙁 now that was for me scary, no date and not haveing anytreatment? I wanted them to give me smartie's in a pill box just so I…[Read more]

Hi Trish and Peter

So sorry to hear about the SCT failing after such a short time, 13 Months is not long after what Peter had to go through.

BUT as they sat SCT might be a thing of the past and MM will be treated by just drugs, I have not been on Velcad but by all accounts its pretty Good 😀

Good Luck to you both as you Turn the Corner…[Read more]

Hi Megan thank you for that. It has eased me a bit. I will definitely get unto Maggie / ellen. I am so worried – frank seems to be so laid back about the whole thing. I'm not sure what is going on his mind. It's because of the long wait – he has had time to think and he's getting info from a registrar instead of from the boss (consultant).

I…[Read more]

Hi Dai
Hope you are recovered from your latest trip to hospital and your bloods are good. I think temperature spikes with no discernible causes are a norm for MM.
I was at the day unit today for blood tests, zometa and to pick up my next cycle of drugs.
Keith was admitted to hospital Monday with a chest infection and was still in today lets…[Read more]

Hi Janet

It's so good to hear about how well you're doing. 6 years on and still doing well is excellent news.

My stem cells are having their 1st Birthday Party on Sunday (10th) and I'm living a totally normal life again at the moment.

MM is one of those weird diseases that has no set pattern for any two people, and this forum seems to…[Read more]

Dai The "Family Ramble" was great to read 😀 and I know what you mean re the "New Baby Smell"

The Young Bride and i are pretty fortunate all our Kids live within walking distance 30 mins is furthest away 😀 That said I Face time them Most nights to say Hi and or Good nite even when i have just dropped them at home Ha ha

You all enjoy the…[Read more]

Hi Vanessa and Stewart

Am sorry Stewart has been told about the Jaw problem, I was told to keep my eye on my Jaw when I was on Zometa, you two have had a busy few days reading your post.

The Dr will or should be able to put both your minds at rest and give you advice as to the best way to go.

Good Luck with it all.

Love Tom "Onwards…[Read more]

BUMP

Ps Vikki good luck with BM assessment 🙂 hope it is great news
Jean. Xx

Hey Janet
That's great news, am sure it will give hope to those due or just starting treatment .

Keep well and stay strong.

Love Tom Onwards and Upwards xxx