Hi Steve
I am doing great thanks, hope you are same.

Now a new name lol am told I can't cuss lol, and yes the spammers need casterating and am up for that job.

Stay well Steve and if a name crops into my head al post it lol

Tom Onwards and Upwards

Hi Vanessa

Sorry you have Had to join us.

I can only tell you the chemo keeps on working after the cycle is finished.

My husband finished chemo a year ago around Christmas and he had gone down to 6 he did not have his SCT until May I between all this he had another blood test taken and it was 2. I was worried at the time they were taking…[Read more]

Hi Lisa
Your welcome, and yes it is good to be here and get some one who is going or gone through the same, getting info before you need it gives us that heads up.

You both keep well.

Love Tom Onwards and Upwards xx

Hi Keith

I hope the transfusions on Friday went well and you didn't have to wait too long for the blood to turn up from Newcastle. Hopefully you'll have had a good weekend and your platelets start to climb and the CDT gets to work.
I guess I'll see you again Friday – with a bit of luck it will be only for blood tests for the both of us.
All…[Read more]

Hi Vanessa
Welcome to the forum.
When I was first diagnosed my PP's where 49 and I was told a 50% reduction was the minimum needed before a SCT could be contemplated. Unfortunately it took me a year and lots of different treatments, CDT, PAD, DTPace and now RCD, before I achieved the minimum required resulting in my bone marrow being well and…[Read more]

Hi Grayham

Yes it is very scary,I think we all felt like that even careers,specially when they tell you there is no cure.we have all been there got over the shock asked the same questions ,my husband was like you,never took a pill or had a headache,well he has made up for it in the last 2years,our home has seemed like a chemist at times.

It…[Read more]

Hi Grayham
Welcome to the forum. Although none of us wants to be members you'll find it's a very friendly and welcoming forum. No question is too daft or trivial – so just ask away.
My history is I was diagnosed in October 2011 after approx 18 months of back pain. Unfortunately my MM has proven to be a challenge to the medics and the drugs. My…[Read more]

Hi Graham

A warm welcome to the Site, sit down make yourself comfy and ask away.

Me ? am 57 had CDT then stem cell transplant in 2009 now drug free and doing great.

Keep well Graham

Tom Onwards and Upwards
Al av a look at your photos too 🙂

Hi Lisa And Mick

Sorry you got an Infection Mick, its part of the side effects am afraid, I take it you taking in plenty of fluids?

Hope your soon better and Back Home

Tom Onwards and upwards x

Hi Grayham

Welcome from me to. You will get great support here. My husband was diagnosed with smouldering myeloma in 2006 and only started treatment in June. Hew was on 6 months of CDT. They had to reduce the Dex as he didn't tolerate it very well. He had stem cell harvest in beginning December and they got 7 .6 million first time. He is…[Read more]

Hi Tom and Helen

I have always thought that soft tissue myeloma is very very rare ,there have been a few people on here with it usually discovered because of another reason,not looking for Myeloma.
Tom are you saying you have no Myeloma showing in bloods or urine?????
So are you looking for answers????
A Pet scan will show any Myeloma in…[Read more]

Hi Vikki and Colin
A
Thank you for your thoughts for us. We saw registrar yesterday (we both think consultant is avoiding us). Bloods were ok PPs still at 2 but still no bed. Wouldn't have been able to admit him any way as he has a terrible cold. He keeps saying "IF I have SCT". As I said to John he has had too much time to think about it. I…[Read more]

Thank you helen for doing a better job of explaining it than me,although I understand why Tom is thinking along these lines,I just felt it would give the wrong impression to any one who read it.

I would like to say,Slim has a lot of damage,tumour plus lesions on shoulders and skull plus all spine damaged but no compression ,plus Pnuemonia…[Read more]

Hi John
Your welcome, Well SCT and back to work so soon and living on your own WoW now to be honest that must be blooomin hard work, Gosh I dont know how I/we managed without the young bride and our Family and Friends to look after me.

To be fair John I dont think of it much I am Lucky enough to just have my CDT then SCT and now drug free, am…[Read more]

Hey Keith

I feel for you M8, it must be hard, it wont be long before you think all the hospital visits are Normal, Stick with it Keith am sure they will soon have you sorted out, then you can have that long awaited Break.

Good Luck Keith am crossing everything for you

Tom "Onwards and upwards"

Hi Keith

You must be so disappointed ,but they are prepared to still top you up with bloods and platelets,so that must count for something,When do you see the top man again???
They are trying to give you the best chance of this working,if they are prepared to do it,you have to go with the flow.
Anyway who wants to go on holiday with all this…[Read more]

Hi |Tom
The school of thoughts with consultants is you should not,look at staging as the one and only aspect of myeloma ,as far as I know,staging tells you not only about bloods and urine,but the extent it has damaged the bones.
Everyone is aware the early cancer is caught the better the chance of curing it,but Myeloma is not curable.

Once…[Read more]

Hi Liz and Kev

Pleased the infection is sorted and that the R/T is helping the ribs, I have my fingers crossed for a good three weeks.

Vicky did you two get to the BMB through the snow? I hope it was pan free as the are a bugger to be fair.

Love all round

Tom Onwards and Upwards xxx

Hi John

A warm welcome to the site.

And WoW back at work so soon?? am surprised the Dr let you go back???
But hey Ho we all do it in differant ways, Just stay well and stay strong

Tom Onwards and upwards

Hi Tom

Well Good Luck with this lot M8 and am sure you can and will crack it.
lets hope side effects are kind to you.
Tom Onwards and upwards