Hi Keith
Well you like to have a bit of a rough time dont you ? am sure i told you Nice and "Smooth" with a bit of Vodka and a few nuts keeps my Blips (thats what yours is am sure) at bay 😀
Am sure you aint gonna let it beat you Keith am sure you have more fight in you its getting near spring and am sure that helps us all M8.

If you do…[Read more]

Hi Deb

A warm welcome to the "Scary" place ?? well its not that scary its a great place for advice/help and a place to near cuss with all the problems that are thrown at us due to the MM.

I wont ask you not to worry because you will, I will tell you we have loads of Members here that have gone through what you are now going through and…[Read more]

Hi Lisa and Hubby

Am sorry Hubby is having too many infections? (what kind of infection?)
As for the CDT I was on that in 2009 it made me tired that tired that I went on sick during my 4th cycle 🙁

Lisa always keep an eye on his temp and stuff as the Dex can hide an infection, am sure you have been told to ring the ward that he was being…[Read more]

Hi Wendy

Nearly missed your post!!! It would be easy to say not to worry,but after enjoying so much freedom from MM,it must be very depressing to think you have to start treatment,lets just hope it's a bit of a blip,if you start preparing yourself for it,it will be like livening on a roller coaster,Slim takes the attitude if you cannot change…[Read more]

Hi Daniel

You have come to a good place for information,and you and your dad can be assued people will give you all the help and support they can.

Please get it out of you mind how long,!!! It sounds bad but there is so much treatment these days,as you know it is treatable but alas no cure,it buys time,your dad had a good response first…[Read more]

Hi Deborah

Welcome to a place where no one wants to be I remembered a post of yours some months ago you were smouldering? My husband Frank smouldered for 6 years and in June started six months of CDT and few weeks ago had a stem cell harvest. He's just waiting for a bed for the transplant. As Kerry said it is so hard to get your head round…[Read more]

Hi Sarah Jane

Have you asked for the MM diary. I think it was Ellen (the MM nurse). I find it very very good. It is divided into sections – questions to ask dr Medical terms and a section where you can record all the bloods like Pp neutrophil, white blood count, haemaglobin, kappa light chains etc. I ifnd it very helpful as I can keep a close…[Read more]

Hi Daniel and Dad

Am sorry your Dad is having trouble with his back 🙁 How long are you looking?? well truth is no one can say apart from the Dr who will have a good Idea, But my thinking is that it could be a long time as they are getting your dad ready for a SCT 😀

Stay strong Daniel am sure your Dad will be well looked after during…[Read more]

Hi Wendy
Hey I hope its just a Blip young Lady 😀 and your KL drop to normal, its a worry everytime we go to have bloods checked I worry about it everytime the date comes round :-S

Lets Hope all is soon back ro normal when you go Feb 😎

Love Tom "Onwards and Upwards xxxx

Hi Keith

I can understand why you are feeling down and the whole thing must be so tiring ,ask you self how you would feel this time of the year without having MM.most people feel a bit washed out,cold weather rain,and with you the added trips to the hospital,
I would try to look on it as just a blip,we all know how even a cold can effect…[Read more]

Hi Heather
Your Welcome, I am not sure which I have I am just pleased my consultant knows he he.
Love Tom Onwards and Upwards xxx

Hi Megan and Phil

Don't nick it just take a photo of it,cos if you nicked it you would only bump into it at night he he.
Doing good you two keep it up

Love Tom xxxx

Hi Tina
13 weeks is not that long to be fair I am oh lord knows how many months post I am and thirst is a Devil for me. And as for the sleep I also have a nap in afternoon.
It just takes time Tina.

Love Tom Onwards and Upwards xx

Hi Peter

How you doing ? All set for it. It will go smother than that pint we are due .

Tom Onwards and upwards

Ha ha I bet it is, I hope you don't get chemo brain he he

Hi Peter
Just dropped in to wish you a smooth hassle free transplant. Look forward to reading your progress. Frank is waiting for the phone call.

All the very best
Love jean x

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Steve

Pleased your doing well and as for getting dizzy if it was me my young bride would tell me I was born dizzy lol.

Keep fighting it steve.
Happy new year.

Tom Onwards and Upwards

Hi Babs

my husband had his SCT,on X1 trials,then was randomised for no treatment,at first,with the knowledge of no treatment follow up,it felt very strange,but now we are looking at it as a bonus after 2 years of constant treatment,he attends hospital once every 2 months for Zometa,and at the moment consultant once every 2 months,this gives us…[Read more]