Hi Tom
I had my SCT in February and even if given the choice would personally have not gone on any maintenance therapy.
I feel that my body has recovered well and my quality of life has been very good. I also feel that being (daily) drug-free now means that when a relapse does occur, my body will respond as positively as it did last time to…[Read more]

Hi Jean and Frank

Well football :-/ am sure some of the men are crazy 😀 never liked it never understood it BUT two out of our three Sons are pretty good in the local teams and are well fought after at the start of the season to go onto other teams ??????? :-S
And tell Frank I have a Footy shirt that was Mark Wilson's (played for Man U)…[Read more]

Hi Sarah and Henry

Well one of the ways to go is Onwards and Upwards 😀 and we also have Vasbyte and the famous Whatever it takes 😀 and the oh lets get on with it saying 😎

I hope you dont have to take on extra work to get what should be given as a matter of course (dont do mucky chimneys lol)
And a well done to your Daughter on her…[Read more]

Hi Liz and Kev
Yep its Cold here these last few days but as for the hair I have plenty of hat/caps to keep the Bald pate warm Lol

Hi Mavis
Many Thanks for that and happy and cheeful is best for me i dont do Sad am pleased to say 😀

Hi Phil Jan and Sam 😀

Thanks for that and it is Great News and I have been told the next 12 years…[Read more]

Hi Emma and Mum

Am so sorry your Mum has had a fall and I hope its soon sorted.
Your Mum is a fighter as I recall when she found out about the MM she said "Onwards and Upwards" and that Emma speaks volumes about your Mum's strenth.

I do hope the consultant ask's your Mum what she wants and just lets you sit and listen because it is your Mum…[Read more]

Hi Dai and Paul

Dai thank you for your post – you spoke very eloquently about Paul. I know we have lost very good friends to the this awful disease but I think it hit hard because as you say he was doing so well and was so young and just something that I never expected. I will make sure that Frank takes recovery very slowly and just pray that…[Read more]

Hi Charlotte

I can give you Franks experience. He was diagnosed in 2006 with Smouldering MM in Sept 2006 and was monitored every 3 months. Bloods and everything were fine and the he took a pain In his side. He had it for 18 months and was sent for an MRI which didn't show up anything Pain went on and it was decided to have a PET scan (I think…[Read more]

Yes Helen a complete bolt from the blue. Doing the blast of Chemo on Tuesday and then injections twice a day till the following Wednesday and if all goes well they will harvest on the Wednesday. No date for the cells to be put back as we were told that Leukemia and lymphoma patients get first dibs. It was quite a shock but we are seeing consultant…[Read more]

Helen thanks so much for the info. I am so glad that I posted my concerns on the forum as the replies, info and advice that I have had has made things so much clearer and put my mind at ease a little. I can't help but worry as my mind runs riot. The registrar had said that if he put the SCT of for a a time he may relapse andd then he would have…[Read more]

Hi Babs thanks for that. I am trying to get things straight in my head so I can give Frank Informed information. When I think of your post it does make sense to try and keep him infection free as possible. One of our sons tell s me that I am OCD when we have visitors they are made to cleanse their hands. I will pass your info on to Frank as it…[Read more]

Hi Megan and Ali

Thanks so much for your posts. I really appreciate the support. Don't know what I would do without the forum and all my cyber friends

Take care and thanks again
Love Jean xx

Hi Peter

Not sure if I am thick or what. Clicked on the link and it brought me into the site but can find no link to play the recording. I am very interested to hear it as Frank is going for SCT. Any guidance how to listen

Thanks
Jean

Hi Megan

iWeb we saw the registrar yesterday ( she wasn't the brightest tool in the box) but after she gave us the dates for chemo and harvesting she told Frank to stay away from people. Was Phil told this as well? We were talking this morning and Frank says he can't understand this as he is only having the one zap of chemo. Megan ani info…[Read more]

Megan, Vicki, Colin and Tom

Thank you so much for your posts I have followed SCT posts for some time but when it arrives on your door step its another story. Thanks Megan on the tip about bananas, I have started a note book. Hospital told us before harvesting for Frank to try and eat cheese and drink milk to build up calcium. My best…[Read more]

Hi Gill

And for that I am gratfull, yes am gratfull you mad it to the First talok at the Harris, and you are correct Stephen passing has not and am sure will not force you to move on as we all do things at OUR pace and not to fit in with this that or them.

I hope you go back and talk its better to talk to some one you dont know rather than…[Read more]

Hi Jean and Frank

Its a shame a lot of the Dr's and Consultant tell us how it is is if we have done all the study's he/she has done for the last 10 years or more :-S But hey ho am sure its what we have got to get used to (but mine is a slow talker and stops if he sees am confused Bless)

Hey I aint a Footie thingie?? what do they call them…[Read more]

Hi Dai

I hope they get back to you soon to let you know its been passed and can start it of soon (am the sooner the better type of guy)
As for the Thalidomide I was on Four Tabs a day (8pm) with my CTD. still got dodgy toes though Lol but if thats all I get then am Happy (ish)

Good Luck Dai

Tom "Onwards and Upwards"

Hi Vicki and Colin

Hope your back to work is going Ok am sure it helped Elaine when she went back to work after my SCT it gives her something else to worry about apart from iccle ole me Lol, Colin is just a mere male we never knnow when too much is TOO much till we end up in bed early nite shattered:-S and if Colin is like me he will never learn 😛

Hi Vicki and Colin

"Look young for my age" Give over you will make me blush 😉 am sure it will last me a fair few years yet 😀

Party aint stopping yet and hair will be cut at week end ready for Grandson's Birthday Party 😎

Love Tom "Onwards and upwards" xx

Hi Ali
Thanks for that now i think my Vodka intake seems to beknown to all and sundry Lol, did you get the snow today?? we aint had none yet but its been bloomin cold today out on that river trent brrr

Love tom "onwards and upwards" xxxx