tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years ago
Morning Chris
Well I dint want to wish it upon you M8 BUT I dont know anyone who has got away with it Ha ha.
as for the release date I went in on the 1st December 09 and was thrown out on the 16th 😎 day was was a waste nowt much done just line in chemo on 2nd day and three bags of Cells in on day three 😀 , cant remember when i messed the…[Read more]
tom replied to the topic Has anyone heard from Dai? in the forum General 13 years ago
Well I have a Bald(ish) head so I wear a Cap and that is Raised to the rafters for those three 😎
Tom "Onwards and upwards"
tom replied to the topic It is all supposed to be OK now in the forum End of Life and Grief 13 years ago
Hey Gill
I am same as the others here.
I have read no where anywhere that tells people to be back to normal after X many months/years and I assume everyone differs in the time before they feel ready to move forwards BUT not forget the loved one who has passed away.
I would hate it to happen to me if I lost my Young Bride and Fmaily and…[Read more]
tom replied to the topic Record Low Bloods in the forum Side-effects 13 years ago
Hi Keith
Well I for one feel for you, what a decision, to stop what is making you better/then ill to nothing that you know will make you ill?? (if i got it correct??)
And what is the Consultants view on it all?? am sure he/she has some input to throw on the smouldering fire?.
I cant make that Call for you Keith but I wish you luck in your…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 13 years ago
Hey you two its great to hear Colin is awake make the most of it cos sleep will come 😛
I never bothered about Food to be fair when i was in hospital and not too much passed my lips for a long time when i came home just plenty of water was good for me 🙂
Keep Well Coin
Tom "Onwards and Upwards" xx
tom replied to the topic Weird side effect? in the forum Side-effects 13 years ago
Hey Peter dont expect it to change after your SCT in Jan I can still fall asleep at at at ?? well before the hat even starts to drop he he, and if you ask my young bride my ears have never been anygood at listening lol. and I aint on any drugs 😀
So still get tired
Still feel the cold (lot more than i used to)
But am still here and if…[Read more]
tom replied to the topic Good News for our holiday in the forum General 13 years ago
Hey Trish and Peter
Well done you two, am pleased for you thats great news get yersen off and have a great time.
From this Onwards and Upwards to you two that are also Onwards and Upwards.
Tom xxxx and dont forget the 😎
tom replied to the topic Good News! in the forum General 13 years ago
Hi Mavis
A Well done from Iccle ole me 😀 thats great news to read on here and I bet you were and still are over the moon to write it, well done Mavis and long may it continue 😎
I am comming up to my third year post SCT and am not expecting it to fail 😎
Keep it up Love Tom "Onwards and Upwards" xxxx8-)
eve replied to the topic Good News for our holiday in the forum General 13 years ago
Hi Trish
That is lovely news,worry always there in the back ground,but say to mm and worry(s-d It),this is your time so enjoy.None of us know what the future brings8-)
We are off to NZ on the 25th of Nov.return New Years Eve,it is exactly 34 months since we have seen one of our grandchildren,the other one flew home with are daughter last…[Read more]
Michele replied to the topic Good News for our holiday in the forum General 13 years ago
Good news indeed.
I can remember the feeling of "no more holidays ever again" when I was first diagnosed but of course I now know that to be totally untrue.
We've been busy planning (and booking) lots of little holidays for 2013 already.
At the end of the day, you've just got to go for it while the goings good!
😀
jmsmyth replied to the topic Good News! in the forum General 13 years ago
Mavis what brilliant news to read. I am so happy for you. It's so great to read positive posting like this. Paul's passing was so tragic and such a shock. You will be in my prayers for a long happy remission. Enjoy every minute 🙂
Love and best wishes
Jean xx
eve replied to the topic Has anyone heard from Dai? in the forum General 13 years ago
Hi
I have come on to comment because I so admire you fight against Myeloma,here you are three people who have gone through all this treatment and are still in there battling.
I know you all have no choice if you want to live,but its the stamina I suppose I admire,any body reading your posting,and not know much about your treatments,must be…[Read more]
eve replied to the topic It is all supposed to be OK now in the forum End of Life and Grief 13 years ago
Hi Gill
No it is not suppose to be ok,far from it,its learning to cope with the fact that people,do not know what to say to you,and by saying nothing,in vase they upset you,they do not realise this hurts more.
As you know my daughter lost her child Matty,and she has got to the stage she puts people in colours RED AMBER and GREEN
Green are…[Read more]
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years ago
Hi Chris
Keep your han on that roll at least you dont need to put it in the fridge lol.
I had lost loads of weight pre SCT and was still shocked to see it still falling off after SCT but I can confirm it comes back with a vengance LOl
Keep well Chris, not long now
Tom "Onwards and Upwards" x
tom replied to the topic Weird side effect? in the forum Side-effects 13 years ago
Hi Pat
Am sorry to read your a bit off it girl but its the norm :-/ its MM for you.
Now I remember getting a grean ring around my neck from my "Gold 😛 ) neckless but that was after I went swimming with it in the sea lol, but I have never heard of silver doing anything with treatment ?
Am sure you know am now treatment free 😎 but…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 13 years ago
Hi Vicki and Colin
Well its a bit rough aint it and we are all sorry to hear that BUT it has to be done and its just a wait and wait now am afraid, when the rough bit gets to Colin am sure Like me he will sleep through most of it I hope.
This SC things not a fast fix and to be fair Colin and yourself will be knackered for a fair few months…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 13 years ago
Hi Vicki and Colin
Just checking in to see how you both are ?? and Vicki you must rest and get your strenth up cos your work will start more when Colin is Home.
Lots of Love from one "Onwards and Upwards" to anothe Couple of "Onwards and Upwarders" xxxxx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years ago
Hi Chris
Well its working and I hope you dont get the "Trots" but am sure you will he he.
My trots dint just stop when I left hospital so be warned.
The sleep is good for you I spent 5 days asleep and some time woke up to find a not from Elaine saying she had been Lol
Keep it Going Chris not long now.
Tom "Onwards and upwards"…
tom replied to the topic CTD Finished and came home on Wednesday 31st in the forum Treatment 13 years ago
Hi Tina
Well I feel for you, I had all mine done Xmas 2009, that xmas and new year was a wipe out for me missed it all as I like you was being sick, couldnt eat and felt too weak to move some days. (and thats only what i can remember) as for the sickie thing I stayed on Anti Sick Pills for MONTHS to keep that at bay. and the food we aorked…[Read more]
eve replied to the topic CTD Finished and came home on Wednesday 31st in the forum Treatment 13 years ago
Hi Tina
I know I felt the same way about Slim,it seemed like you have had it get on with it,but who is in charge.
It hits you after a length of time in hospital,they do realise this,but I think everyone would agree you will make better progress at home.
I would say follow procedure extra cleaning,fresh towels plus being careful about…[Read more]