Hi Mary
This thread is getting so long,it will be a record soon,IF you sign in and go to the section you want example General or Carers.Scroll right down to the bottom and you can start another discussion.

Mary Slim had a good few infections you will get use to it,first sign of low blood pressure or temp or just not very well,ring the…[Read more]

Hi Keith.
Good news about your blood tests. Now all you need is your platelets to continue climbing. Then you'll be back to stabbing yourself again 😉
Good luck Keith
All the best
Andy

Hi Ali

Tell your mum not to rub the site after injection,this is what causes the bruising,try not to touch it,hold the tummy firm,and make sure ,to use alternative sides.

Slim has very little flesh,but never had bruising only the flesh getting a bit hard.

Polly I know it,s hard,I make a better carer than patient,I know all the theory but…[Read more]

Welcome to the site Polly. My husband is on his 6th cycle of CDT. He injects Clexane every morning. At first it was a bit of a hassle for him but now it's 'old hat'. I hope things go good for you. Do keep in touch to Let us know how you are getting on

Jean

Hi Polly
Well my advice is to go on the trials,you will be randomised for CDT or CDR first one is standed treatment second one is a new version,both available as first treatments.It is the Velcade which is second line treatment that is important,Velcade at the moment is second line treatment that is still under trials,so could be with drawn,but…[Read more]

Hi min lovely said I found a lot of my friends stopped calling when I told them about my illness.
It hurt at first but then you just get on.
last Christmas I thought my time was up and friends and neighbours just said they didn't want to visit in case they upset us.
But they didn't understand that hurt more.
Thanks for your post I'm sure this…[Read more]

Hi Vicki & Colin
My paraproteins are at their lowest level since diagnosis they are now at 24 – well they were that was the news we received when we returned from Greece – that's a fall of 8 from my previous reading of 32! Not a great fall or reading but it's going in the right direction. Fingers crossed for last Fridays blood test! Oh I found…[Read more]

Hi Chris

Just want to wish you all the luck in the world for tomorrow, will be thinking of you. You will need the rest after the rest after the weekend you've had!! Good luck and the best of wishes

Love Jean x

Hi Helen
It's the dam Dex that is causing the most problems. He is ok when he takes it but when he stops he's not on the same planet as the rest of us. His Protein is still at 2 and this is supposed to be the last cycle. He said if its necessary he will continue with it. That really surprised me. Am phoning the myeloma nurse on Wednesday. She…[Read more]

Hi Vikki

Have you got a new date for the SCT. hope you are both bearing up. Love the photo

Helen glad to hear the whooping cough is getting quieter. I remember one of my boys had it and it was frightening listening to it. Keep getting better
Love Jean xx

Hi Kevin
Just come on to say good luck with your SCT,it is hard going but like most things you will feel better just takes some time.Eve

Hi Vicki

Every month I get Franks readings and try to make snse of them. Last month PP wa 2, Kappa light chain 10.1, lambada light chain 7.6 an ratio1 .33 this month readings were respectively PP2, KLC 8.3 LLC 7.5 ratio 1.11. So I am assuming that as consultant doesn't seem worried that this is fine. In 6 years Frank has only had 1 bone marrow…[Read more]

Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and…[Read more]

Dear Ann

I am sorry to read about The loss of John in his hard fought battle with MM.

Love and Hugs to you and your Family at this sad Time

Tom xxx

Dear Rachel

I was shocked and saddened by the untimely death of Paul. We where having a similar MM journey struggling to get to SCT as the medics tried to find the right drugs. I went through the DTPace regime before Paul and again it failed me. I must admit when DTpace worked for Paul I was a touch jealous but also pleased when it worked for…[Read more]

Hi Vicki and Chris.
They do like putting hurdles in your way. Considering what you've both been through to get to this stage I think this latest blip will be a piece of cake and those cells will be back where they belong in no time at all.
Sorry I haven't posted for a while been fighting of a few infections.
Good luck with the transplant…[Read more]

Hi Pat
I got my blue badge through my local council and found it straight forward. I have the higher rate DLA so I qualified automatically. I was also entitled to a bus pass as well. I'm 54 😉
Good luck with your application.
All the best
Andy x

Hi Helen.
Sorry to hear your still having trouble with your chest but at least you now know the cause. I'm just getting over a cough and cold and a couple of infections I arrived home with after our lovely holiday. I'm starting to feel normal again now – well as normal as I get to feel on RCD. I've been taken off the cyclophosphamide for the…[Read more]

Hi Lorna

Hope you are feeling more up than down,this illness brings you down to earth,big time,but saying that it does make you appreciate what you have,in your case how lucky you are to find the man you love.
Some one once said to me life is like a card game,you have been dealt your hand and it is how you play it that counts.
I feel down at…[Read more]