Your More than Welcome Kerry, and dont forget you can Phone the Nurse/ send an Email to them.

Love Tom "Onwards and Upwards" xx

Hey Jane
Am not sure if you are aware of this BUT this is the Rant room so Rant as often as you like its good for us 😎 and whats good for us is OK here 😀
I think I also was stage brought up but I just have too many teeth Lol, and have been told many a time I have eyes that sparkle, thats it Bull over for the moment.

Like Jean says if…[Read more]

Hi Kerry

Sorry to hear about your Mum but may I say a well done to her and her team 14 years is great and am sure more to come.

As for the Zometa am not sure how long it stays in the system? but am sure I read in here that some one had it removed (cant recall who or when?)

Good Luck to your Mum and give her my regards, and hope all is…[Read more]

Hi Mike

And the show must go on 😀
Good Luck on your treatment, I was told 2009 that I had MM, treatment was 5 courses of CDT then SCT in dec 09 now in remission and doing great, some times it was Uphill struggle but trust me well worth it all 😎
Oh and I am 57 years young 😎

Ask if you need to know owt.

Tom "Onwards and Upwards"

Hey Chris

Thats Good news 😀 it wont feel it for a bit but its well worth the odd bits that happen during your recovery, lets hope its as good as I can remember Mine being pretty good.

As for the Panic to get everything done before you go in trust me it will wait till you get out and better.

Fingers crossed for a fast recovery and home…[Read more]

Hello Kerry and welcome to the forum.

After 14 years your mum's doing very well. Is she or has she been on Zometa or a similar drug used to strengthen the bones? I know this can be a cause of jaw/teeth problems and needs to be reported to your doctor or specialist so that they can help you.

Best Wishes
Michele

Hi Jane

I'm sorry to read that you are having such a bad time and hope that the doctors can get your pain under control soon.

Jane my husband has Mm and he is like you. He tries to hide from me how he feels. He thinks he's protecting me but he's not. I know that we all handle this horrible illness in our own way. But when I ask Frank how he…[Read more]

Hi Peter
I just might google that later see if they need a Chrome Dome for testing Ha ha, Lord Knows about the Colour it might be as i have Ginger in me also ha ha.

Tom "Onwards and Upwards" and Giner he he

Great Pic BTW 😎

When I first started CTD I gave myself a Clexane injection every day due to the risk of clots when taking thalidomide.
After one cycle it was apparent that Clexane wasn't for me. It caused terrible bruising, red patches AND chest pains.
I was then on aspirin for the next 5 cycles which was fine.

I really hope the hospital can fix Charle's…[Read more]

Hi Mary and Charlie

Please stay positive as I know from myself its the only way to be.
I hope its all soon sorted and soon on the road to remission

Lots of Love Tom "Onwards and Upwards" xxx

Hey Vicki and Colin
And you know I have everything crossed for you both, Lets hope its money well spent 😀 as am sure it will be.

Vicki just havea few glasses of wine tonight it is good for you and let Colin have a few Vodka's those worked for me also.

Lets hope those little Stems walk out on their own rather than being Dragged out.
I…[Read more]

Hi Mary

Slim had Claxane injections for 8 months and Thalidimide was reduced by half,he remained on the Trials ,It is a complication of the Meds,and did result in damage to his lungs,but still had SCT.

Eve

Hi Jane

Aww that sleep is a devil but it has to be done sleep and you heal thats what I think, a little walk is good for me I have just got back from walking the dog and we have been out more than an hour (gosh that dog can talk ha ha) Exercise is good for us nice and gentle, Plus a little chat to Dr to make sure Bloods are all Ok

Enjoy the…[Read more]

Yes Deborah getting it by email is great. Ask Stuart from the Web team. He is very helpful

Jean

Hi Andy
I know it,s taking a long time Andy,but it is getting there,you look back at that year and wonder how you managed to get through it.

I can remember thinking about are first year and saying to a friend it cannot get any worst and it b—-y did,laughing now but at the time it just was so awful,but got through it.the body can only take so…[Read more]

Dear Mari

This is when you need this site,the ones who have been there understand what you are going through,I have been looking at Slim the past three months thinking it is not working taking to long to recover,the letter that we received a copy of read like someone ready for there coffin,all old complaints and new ones came to the surface…[Read more]

Hey Andy a Well done thus Far, Keep it going My Friend it does get better 😀 and soon be more of those (lets rub Toms nose in it) Hot Hot Sunny Places 😎

Good Luck in keeping well 😀

Tom "Onwards and Upwards" x

Hey Mari Dont stop Posting, this is where you can get help to Build your resolve up and get help/advice when you need it.

Stick with it you two it will be well worth it.

Love and Loads of hugs sent to you both, I know its still gonna be hard for a couple of months but we are here to help you both.

Lots of Love and Support from Iccle ole…[Read more]

Well Ladie's am pleased you are all sorted with your hair 😀 now take a look at my photo and let me know what help you can give to mine Ha ha.

Enjoy Today as the Sun Will be out 😎

Love Baldy Tom "Onwards and Upwards" xxx