Hi Tom
Etta hear just saying hello this is the second day I have felt good since coming home.
Thanks for your reassurance and advice.
Love Etta

Hi Cathy,
Well Ivan is on his way,it amazing how quickly they recover from what seemed at the time,as will he recover.

Give it time Cathy he will get there,you just make sure you get some rest,when he comes out,it will get harder for you,as cleanliness,washing and cooking will take up you day,so try to have a rest now,if anyone offers help…[Read more]

Hi Judy
It is not unusual to feel this way,after a few months any one will tell you it is part of the grieving process.You want answers and are entitled to ask questions.

I have always made a point of keeping records of blood results as they can tell you a lot about a persons condition.

When you saw the consultant on the Tuesday who told…[Read more]

I'm glad I've just read what some other folk are thinking at the moment because I'm pretty sure there are some "imposters" posting threads at the moment who don't seem to have any definite connections with MM at all.

It doesn't take me long to work out who's genuine and who to quietly ignore.

😐

Yes tried a few times just seeing if this works.
Etta x

Hi Mari

How are things going???? You must be back at school now.Eve

Hi
I just wish they would do one south of London,just to far to travel, bad enough having to go to Kings,every few months.So unless it comes my way will not be going to info day. Love Eve

Hi Everyone

If it is any help to anyone, I tend to look at peoples profiles before I reply:-P

If some one is not prepared to identify themselves,it is questionable,some of the posting is more than questionable Dai,its sick.Eve

I've just read your good news Chris. I'm so pleased for you.
Make the most of the breathing space before you get those precious little stemcells back!!

😀

And may I say a well said that Dai 😀 I for one have (nearly) always said throw it at me and stand back and let me Fight it head on. and if that fails find me something that will work I honestly think its head working that HELPS make you better with the pills.

Now you all stay strong and well and face it for all it is 😎

Love to you all…[Read more]

Hi Sarah Jane

A Warm welcome to the site I dont think I have ever "Smoldered" he he but am sure members like Ted will give you the info that you need.

Take Care and stay strong 🙂

Love Tom "Onwards and Upwards" xxx

Dear Gail

I am sorry to read that your Beloved Howards has Lost the Battle with MM, I am sending you My Condolences and a Lot of love and Hugs for you at this sad time.

I hope you have Family and Friends around you to help at this sad time.

Lots of Love. Tom xxxx

Hi Sarah Jane

Sorry you have had to join us but you are in the right place. My husband had SMM for 6 years and has just started treatment June. It is a roller coaster journey and I know where you are coming from about getting tested. Frank went every 3 months and for most of that I was able to put it to the back of my mind and get on with our…[Read more]

Hi Sarah

This is just to say hello,sorry I cannot be much use to you,Slim never did smouldering,went straight in with AKF plus hypo-calcaemia,.

Lots of people at all different ages with SMM ,so I am sure you will get some reply,s you could try the under fifty,s lot,you have to ask to join.

Hope you stay smouldering for years and years. Eve

Eve and You Slim, time is what it takes am afraid no fast fix for us poor beggars :-S
The Chest is where Most of us suffer mine is bad every now and then and I stopped smoking in 09 😀

Tell Slim not to get Jel just get even, and even Better than I 😎

My Stems will be 3 years young this up and coming December 😎 not telling everyone to…[Read more]

Thanks Tom

Time will tell,Slims got a chest infection at the moment,and being sick a lot,every time I think he is picking up,down he goes.At least he is holding his own at the moment

I keep telling him about you,how good you are doing,all that vodka you drink,2 years on and going strong,he,s jealous Tom lol.love Eve

Only the one Eve Lol

I have a few good friends that came from the Pool 😎 But Jay when he is in drink I cant understand him Nor can his wife of some 40 years Lol.

And Yes it is a Good Job we can and do laugh it keeps chapped lips at bay Lol he he xxxx
You all have a great week end xxx

Hi Eve and Slim

I have got everything crossed that Slim has a long and healthy Remission and am sure he will do it

Love iccle ole me that "Onwards and Upwards Chap 😉 xxxxxx

Now thats the way to "Rock" Well done Chris and your Team 😎 and am sure your Story will be a great help for those struggling to Drag the Iccle Stems Out (Colin)

SDo Once again My Friend a very well done and Good Luck for the next round 😎

From one "Onwards and Upwards to another "Onwards and Upwards" 😎
Tom x

Hi Eva

Thank you for the information,it all helps,we are not private,if we were I think I could argue a good case for having some form of maintenance,When Slim was going through his treatment with CDT,everyone thought he was on his way to remission,as his blood results have always been good,and his kappa light chains were well on there way…[Read more]