Hi Gill

So So sorry that Stephen has died,I know how hard it is to let go,to stop that clock and wish for time to go backward,but it does not Gill,this is the time for your tears,I hope your daughter and Stephens can not only help you practically but are with you,to give you some comfort.

It must have been awful for you,to Stephen this way,I…[Read more]

Mmmmmmmm….I had this problem when I was on CTD. I was told that it could be quite dangerous so moved quickly to treat the "problem".

Apart from drinking plenty of water I had porridge or weetabix for breakfast with dried prunes and apricots scattered on them, mixed nuts, dried figs, and plenty of fruit and veg. When at its worst I also took a…[Read more]

Hi Mavis

Well I for another one know how you feel with [u][b]"That" [/b][/u]problem am sorry to say, but I was given "Strong Codanthramer" 10 mls at night as and when needed it worked wonders 😀 till I thought I got through the [u][b]"That"[/b][/u] bit but it was still with me. all sorted now though might even be a little bit loos since my…[Read more]

Oh Gill

I am so sorry to read about your beloved Stephen has Passed away I honestly wish i was with you to give you that great big Hug that am sure you want and need right now, but am afraid it can only be a Cyber Hug (((HUG)) sent to you and of course to Stephen.

I watched with a smile on my face the way you two have coped with all that the…[Read more]

Hi Helen and Ali

Have found out some info on the Myeloma beacon,but not for maintenance,so asked at the hospital today,

Seems gathering up the people to sign for trials,once they have enough they will be randomised ,its new to trials,it breaks down protein in the cells,side effects and more information at a later date.
So we wait and see.Love Eve

Dear Gill

I am so so sorry to hear that Stephen has gone. My deepest sympathy and love goes to you and your family. I don't know any words that will comfort you at this terrible time. I have followed Stephen journey through this awful disease and was with you in his ups and downs. Gill I wish you strength and the love of your family to get you…[Read more]

HI Joanne

Not a problem, and i wish your Dad luck with the harvest on Monday.

Tom "Onwards and Upwards" xx

Hi Craig and Etta

You both kn ow I can only speak about myself in this 🙂 but yes I had sickness for ages after never brought anything up cept the Bile and wind, was on anti sick tabs for ages even my Consultant wondered why I still needed them :-S but hey I did and got them 😎

Keep going one day Etta will wake up and that Corner will…[Read more]

Hello all,

Another big gap in the updates (I'm rubbish at this!).

Anyway, Etta got discharged last Weds (5th). A bit earlier than I anticipated but they were happy enough with her levels and the D&V had calmed down considerably.
She had been on anti-biotics for a high temp but then they found out it was an infection in her Hickman line…[Read more]

Hi David
You must be over the moon with the news,it should give you some peace of mind to know there is no hidden pockets of Myeloma lurking in your skeleton,

So I hope that coffin is locked away for lots of years,i had a feeling you might be rushing to finish it,LOL.David did you know you can get lovely pictures embossed on them now,you can…[Read more]

Hi Cathy
Did Ivan have an problems with Kidneys before SCT???How much chemo did they give him,they try to get it in and out of the body very fast with lots of fluids before during and after to minimize damage to the kidneys.
It does sound if he is one of the people,that some times have kidney problems,with the treatment,and it looks if this is…[Read more]

Hi Chris
Just coming on to wish you good luck,hope they manage a good harvest,so they have lots to put back in.
To answer you question Ali Slim is a good 3 months post SCT,his hair showed no signs of coming back until 3 weeks ago,it,s come back very dark and is a bit like a babies first born hair very soft.Eve

Good Luck for today/tomorrow Chris I hope you do well

Tom "Onwards and Upwards"

Hi Everyone,

This is what I have never understood,people come on here desperate for some knowledge,then b—er me,they do not even bother to reply,is it that they have only concern for them!!!!!! or are they some sick person who gets a kick from knowing these people are fighting for there lives.

Its a sad day when people need to troll this…[Read more]

Hi Keith
Thanks for that info:-)

I cannot get any protein in Slim,gone off all meats fish,only thing is eggs,so egg and bacon,ham egg and chips lives off them given up trying good food,My weight has gone up because I cannot keep eating different food,if I eat Slim eats.:'-(

At the moment very p—-d off,thought the cruise might help,he gets…[Read more]

Hi Joanne

Sorry I seem to have missed this post? so a late welcome to the forum.

As the great members here have said its a rolercoaster ride getting remission with this MM but it is doable as I like many can confirm.
Just a run down on mine (am now 57) found out in Jan 09 I had MM, had 5 courses of CDT then harvest leading up to Stem…[Read more]

Hello Les and welcome.

All I'm going to add is….keep those dreams of travel well and truly alive because once the drugs and the dialysis have done their jobs, you'll need that passport and will be out and about again before you know it. 😀

Keep with us!
Michele

I'm so sorry to hear this news Gill.

All I can say is that when my father went into hospital for the last time, for 2 weeks my family were there every day sadly watching him fade away as we faced the realization that nothing more could be done for him and we had to let him go.

In the end, as much as we loved him, we knew when he'd had enough…[Read more]

That is a beautiful poem. Thankyou for letting us all read it.
🙂