Michele replied to the topic Hello in the forum Newcomers 13 years, 2 months ago
Hi Megan
If Phil's PP levels have more than halved in 2 cycles I'm sure they'll continue their downward slide.
My PP levels were 45.6 at the start and they dropped to 16, 7.5, 3.5, 1.5, then just showed a trace.
As you can see, there was a massive drop after cycle 1 and after that it appears to slow down, but when you think of the drops in…[Read more]
tom replied to the topic Diagnosed this week in the forum Newcomers 13 years, 2 months ago
Hi Ted
Well done that Man another three months doing good, keep it up and hope Xray is just put down to "Middle" Age 😉
Tom "Onwards and Upwards"
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 2 months ago
Hi Ali
Well am pleased your Mum is getting stronger and Hugs all round are OK 😎
Am sure your Mum will feel better with the line out, and less chance of infection:-D .
I came out on the 16th Dec and was driving the following day (not far though) but I had my Line (Femoral) taken out the day before I came home.
I bet those two Kids…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 2 months ago
Hi Dai
So one part is looking Good am sure it will all fall into place whith rest and as for a healthy diet well for me you can throw that out of my window I have never had one? dont wish to play about with one and am sure your Dr is correct eat what you want when ect ect ect as I have done and Take a look at iccle ole me (touching wood) doing…[Read more]
tom replied to the topic Feeling Useless in the forum Newcomers 13 years, 2 months ago
Hi Maxine
Sorry to hear about your sister getting MM and being so young, i dont think you will know what treatment your Sister will be on at the moment?
Let us know where your Sister will be getting her treatment as we might have some one on here that is being treated at same Hospital.
If you need to ask any Q fire away and we will try to…[Read more]
andyg replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief 13 years, 2 months ago
Dear Teresa.
Like Helen I don't have the words to ease your pain of the loss of Peter. Hopefully time will lessen the pain and your memories of Peter will be mainly of all the good times you shared together.
I found your post very emotional and brave.
I hope the future is kind for you and know that we are all thinking of you and your family…[Read more]
jmsmyth replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief 13 years, 2 months ago
Dear Teresa
I can only imagine what you are going through and my heart goes out to you. The love of your life has gone but you have been left with lovely memories. My love and thoughts are with you and thank you for your post.
Love Jean x
jmsmyth replied to the topic Hello in the forum Newcomers 13 years, 2 months ago
Hi Megan and and welcome from me. Michele is right "a trouble shared is a trouble halved". This forum has been a God send to me. I have had help, support and above all friendship. My best wishes go to you Nd Phil – good luck
Love Jean x
tom replied to the topic Hello in the forum Newcomers 13 years, 2 months ago
Hi Megan and Phil
A warm welcome to your site, ask away and just remember no Q is too silly or daft we have all been through it Like me as a MM or one that is a carer.
Good Luck in Phils road to remissin.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic New – but no confirmed MM in the forum Newcomers 13 years, 2 months ago
Your Welcome Scott
I also hope that your results turn up and say you are Myeloma free 😀 and that Scott is not selfish its self preservation and that is what you need if confirmed with Myeloma.
If confirmed with Myeloma am sure you will kick its Ass and soon be on the road to remission (am sure we ought to get a songwriter to write a song…[Read more]
tom replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief 13 years, 2 months ago
Hi Teresa
Many Thanks for this post as am sure it must be hard for you, but your strenth has and will carry you on.
I never Met Peter or you am sorry to say but you both have and are in my thoughts.
I also hope and wish A cure is soon found for this dreaded illness.
Thank you for posting.
Love Tom xxxx
Michele replied to the topic Hello in the forum Newcomers 13 years, 2 months ago
Hello Megan
I was only 49 when I was diagnosed with MM in May 2011, but it seems that no age is too young anymore. 🙁
I'm glad you found the brilliant site and have found all the forum chat so useful.
Come on anytime to join in with good or bad news. I personally feel that to be able to share experiences and help others also helps…[Read more]
Etta replied to the topic SCT… update in the forum Treatment 13 years, 2 months ago
Hello all,
Sorry I've not been on but been a bit busy tootling up and down the motorway everyday working and visiting.
All went well, just coping with the sickness and "the other end" at the moment! They put a driver in with anti-sickness stuff in after a few days as Etta was throwing up a lot. It seems to have done the trick but she's…[Read more]
Michele replied to the topic New – but no confirmed MM in the forum Newcomers 13 years, 2 months ago
Hi Scott and welcome.
I just wondered what makes you think you may have MM? Have you had symptoms that have led to your doctor taking blood/urine tests to look for the signs?
I really wouldn't worry about something that may never happen and even if MM is diagnosed, please don't be scared. There's so much that can be done to treat MM even…[Read more]
Michele replied to the topic Loss of appetite in the forum Side-effects 13 years, 2 months ago
Dai
I couldn't believe I was giving away the chocs. myself! I gave them to my brother though so they went to a good home.
Don't worry, the "sweet" tastebuds soon returned along with my waistline!!! 😉
Will it happen again? Who knows……..
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 2 months ago
Hi Ali
Am pleased you had a great Birthday and am Pleased your Mum is getting better (no rush though) your Mum will still need to rest often to help heal.
As and when Mum checks what she can and cant do I hope she is still able to recieve "Cyber Hugs" as I am sending some more
Love and Cyber Hugs ((hugs)) to you both
Love Tom…[Read more]
tom replied to the topic New – but no confirmed MM in the forum Newcomers 13 years, 2 months ago
Hi Scott
Great Intoduction I may say 😀 Sorry you had to join us but you have dropped in to a great place great set of folks MM folk and carers (well those that look after us 😎 )
No need for the WWW now you are here so just ask away and am sure some one will help, nothing is too scary for us lot now 🙂
Good Luck (if it turns out to be…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 2 months ago
All the best with GCSF, my pain started on day three I think and lasted just over two days 🙂
Tom "Onwards and Upwards" xx
tom replied to the topic Weight Loss in the forum Treatment 13 years, 2 months ago
Hi Keith
Am sorry to hear your having another rough one 🙁
Am not sure if this will help?? and if it upsets people I am extremely Sorry 🙁
But during Mt Treatment I also had the Eff it av had enough, lets get some proper life and do away with the drugs. I told him upstairs (god) three times over the two and a bit years that I have had…[Read more]
tom replied to the topic Plasmacytoma – looking for good news in the forum Newcomers 13 years, 2 months ago
Hi Charlotte
I also must say sorry as I also missed your post ????? I dont have anything to say about your plasmacytoma as I am fortunate enough not to have had one? (I tell you MM gets staranger the longer I have it?)
I have to say you done as was aked "I've been instructed to introduce myself" and you have done that well 😎
Dont…[Read more]