tom replied to the topic Good luck Tom! in the forum Off topic 13 years, 3 months ago
Thanks Eliz we had a great time and the Hotel was spot on 🙂
Love Tom xxx
jmsmyth replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 3 months ago
Dear Dai
Sorry that you are no better, you really have been in the wars. I hope the Day Care can get it sorted quickly and permanently and you are soon back to your old self
Love Jean x
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 3 months ago
Hi Alison
It all falls into place when treatment is going on and you are correct it is great to see Mum resting 😀
Hope your youngest is Ok?
Love
Tom "Onwards and Upwards" xx
tom replied to the topic getting ready for stem cell tranceplant in the forum Newcomers 13 years, 3 months ago
Hi Angela
Your welcome and I should add that it was all pain free (cept the BMB) cant recall any pain with all other bits. but it is a bit uphill to fight it during SCT but you will do it as I said mine 09 and now drug free 😎 that tells me it was/is well worth it
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Worst week ever in the forum Side-effects 13 years, 3 months ago
Hi Keith, well am sure the bloods will sort you out, think all us MM ers like Vampires always wanting Blood lol.
Shame they couldn't give you bloods today get that kick start in sooner.
Keep well and rest till the vampire food is given 😀
Tom "Onwards and upwards"
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 3 months ago
Hey Well done (cept the booster not funded) and I wish you both Luck.
Vicki aint the 20th Aug today (Mon) but whatever day it starts I am sure it will work 😉
So Crack on you two and lets have this Party rolling 😎
Love
Tom "Onwards and Upwards" xxx
Michele replied to the topic "Is this the best news in years" in the forum General 13 years, 3 months ago
John, I was interested to see your comment about "the vested interests of the giant pharmaceutical companies."
I've often thought that secretly they don't really want cures found for myeloma or any other diseases. Why would they? They're doing very nicely thankyou supplying all our "treatment" drugs………….
jmsmyth replied to the topic "Is this the best news in years" in the forum General 13 years, 3 months ago
Hey John couldn't get link to work!!!
Jean
tom replied to the topic getting ready for stem cell tranceplant in the forum Newcomers 13 years, 3 months ago
Hi Angela
And a warm welcome to you.
I havn't had a hip replaced but had a SCT in 2009 and doing great now so am sure you will get through it 😀
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Worst week ever in the forum Side-effects 13 years, 3 months ago
Hi Keith
Sorry you have had a bad time, its a shame that what makes us better also makes us ill :-S the sooner the side effects can be sorted out the better.
Stay Well and Fit enjoy the days before dex
Tom "Onwards and Upwards"
tom replied to the topic Someone to talk to in the forum Newcomers 13 years, 3 months ago
Hi Kerrie
Your Mum will be Ok when all is sorted out its just a one day at a time 🙂
and seeing how the hugs were good am sending more for you all
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic Someone to talk to in the forum Newcomers 13 years, 3 months ago
Hi Peter and Welcome to our merry band (Yep we have drinkers here)
keep throwing those pills down yer throat as its working
Tom "Onwards and Upwards"
tom replied to the topic Dad's SCT in the forum Treatment 13 years, 3 months ago
Hi Chloe And Dad
No problems re you posting thats what this group is for BUT this is one I cant help with but just wanted to welcome you in so to speak, am sure some one will pop in soon and give you the help and advice you need
Tom "Onwards and Upwards" x
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 3 months ago
Hi Dai
Well I bet your well pleased with the respite you have had 😀
Day Unit is a must for you and a stay in also as you say that liitle problem needs sorting out.
Tom "Onwards and Upwards"
jmsmyth replied to the topic Myeloma Support Group….. in the forum Off topic 13 years, 3 months ago
Hi Pete
Thanks for your post. I appreciate everything that you have said about Support Groups and I am looking forward to going in October. I suppose, as Frank was not on treatment, I was like the ostrich – head buried in the sand – but if I'm honest I was scared to go to a group, as I did not want to hear or see what the future held. I'm…[Read more]
tom replied to the topic Update on kev in the forum Treatment 13 years, 3 months ago
Hi Liz and Kev
Sorry to hear you two have struggled to get rid of the bloomin chest infection:-( I think its something us MM'ers have to suffer dont you think?
Stay strong am sure it will all work out soon
Love
Tom "Onwards and Upwards" x
tom replied to the topic Myeloma Support Group….. in the forum Off topic 13 years, 3 months ago
Hi Peter
Sorry you closed the support group down as i think its a great help.
I believe you dont need many to go to a support group all you need is a few willing folk and hope that (and we are getting them) new members spot the posters at your local hospital.
Whatever way it runs Peter at least you tried 😀
Tom "Onwards and…[Read more]
tom replied to the topic Bendamustine next in the forum Treatment 13 years, 3 months ago
Hi Scott now I am afraid to say so I cant add any advice just wanted to wish you well in the new treatment and sorry the lats one failed.
Keep strong Scott
Tom "Onwards and Upwards"
tom replied to the topic "Is this the best news in years" in the forum General 13 years, 3 months ago
Great Read John thanks for the link.
Its bloomin sad that even when you are near deaths door you have to beg to try this or that I swear if and when it comes to me they could use bloomin bleach poured down my throat if they "Thought" it could help and bugger the costs 😎
Tom "Onwards and Upwards"
jmsmyth replied to the topic Myeloma Support Group….. in the forum Off topic 13 years, 3 months ago
I agree Michele. My husband had SMM for 6 years and has just started treatment. I never felt inclined to go to a support group and Frank would not even talk about it, but now that treatment has started I feel the need to go. I will be going to my first one in Belfast in October.
As you say cope with Mm in your own way
Love Jean