Hi Helen,

Just for your interest, I live in Germany, post SCT here they like to do a BMB 4 weeks after SCT. The first I had the doctor said it will be no worse than visiting the dentist to which I replied after you must have crap dentisits in Germany. The second, by another specialist was a lot better. But for the third post SCT, I discussed the…[Read more]

Thank you Helen
I have just been reading your thread about Andy,well who,s a naughty girl,!!!we all know paracetamol mask infections!!,never never take them until diagnosed,I cannot tell you how many times ambulance drivers wanted to give Slim them!!!!
I am sorry you have had to start treatment again,but so glad you are not pushing up the daisies…[Read more]

Hi Jean,

Strange ,although we are Facebook friends,we keep Myeloma locked away ,its the way it should be!!!, I really enjoy the scrabble as well,I would take more games on with you,but will be heading for France soon!! But I do envy your cruises,it’s so nice to see you are making the most of your time,long may it last.

Thanks for the news on…[Read more]

Hi Eve

I also am on site very rarely but Was great to read your post. Enjoy our scrabble. Eve I’m sorry to have to tell you but JoJo passed away on 15 February. We kept in touch and her daughter Paula emailed Tom and myself to say she died of heart failure. She was such a lovely woman and I do miss our “chats”. This damn disease – and now the…[Read more]

Hi Andy

It’s good news to hear you are on the recovery after your pneumonia, which appears to take hold of us myeloma patients so quickly, especially when our immune systems are weak during treatment and sometimes after treatment. The UK weather in September is supposed to improve towards the end of this week. Hopefully you will be able to sit…[Read more]

Dear Vicki

I haven’t been on the site for some time, until I read the devastating newspaper articles at the weekend about myeloma drugs being axed from the cancer drug fund. I am really saddened to hear Colin lost his struggle with myeloma, especially as he battled and persevered so hard over the last few months. My thoughts, prayers and…[Read more]

Hi Jean,

I hope you both enjoyed your cruise holiday. So sorry to hear Mike has ended up in hospital with a chest infection. Presumably he might have caught a virus from a fellow passenger on the cruise or the return airplane? But it’s good news that he is recovering well after his time in hospital. Perhaps with his immune system being low, the…[Read more]

Yes I agree Richard. Please don’t use the forum to air your personal political views. They are your opinions and not necessarily everybody elses.

I’ve decided that worrying about the current decisions won’t achieve anything and am going to wait to see what actually happens.

Er, can we keep political views out of this and just stick to the facts and perhaps how we can lobby to have the policy changed.

Hi Helen

I know how you feel not being able to tackle those tasks around the house and garden, which were easy to undertake prior to myeloma. Last week,wWe purchased a branch cutter for our tree in the back garden. I didn’t even have the strength to raise the cutter in the air in order for it to reach the branch. Hubby now has to deal with all…[Read more]

I was so emotionally upset this morning when I read the newspaper articles about withdrawal of a number of effective drugs from the cancer fund for blood cancer patients. At present, blood cancer is the UK’s third biggest killer, but unfortunately with little public awareness as compared with other cancers such as breast and prostrate.

Whilst…[Read more]

Sorry Ann, haven’t heard from Tom as I don’t use social media either. I’m sure if anything happens he will post and let us know. As for David, I wonder if he’s finished his coffin yet.

Richard

Hi Richard
Nice to know you are still here!!,any one know how David is?????? Or Jo!!!!.

Just for the record Tom is just starting his second SCT, .
He has grabbed life by the throat,and making the most of it,holidays family and his lovely wife living life to the full. Tom has one thing on his mind on ward and upward!!!!!!

It’s a pity Jet and…[Read more]

Don’t get me started on health tourists and other services offered by the NHS that shouldn’t be free (eg cosmetic surgery for reasons of vanity).

If they want to save money, there are masses of other avenues they could explore first before deleting cancer drugs.

Part of me being able to cope emotionally with my MM is the thought of having plenty of options in the armoury and therefore being able to plan ahead.

The news that rev. and pom. have just disappeared has really unsettled me.

It seems that the bods who airily make these decisions have no idea how it affects folk with the cancers.

I’m very much…[Read more]

Part of me being able to cope emotionally with my MM is the thought of having plenty of options in the armoury and therefore being able to plan ahead.

The news that rev. and pom. have just disappeared has really unsettled me.

It seems that the bods who airily make these decisions have no idea how it affects folk with the cancers.

I’me very much…[Read more]

Hi eve,

So good to hear from you again. Your posts about Slim and your life were really a bit of inspiration at times and sometimes full of hope as well as sadness. I have to say that you along with Tom and Vasibite helped me in particular to deal with MM.

Life has moved on for all of us and although I do not have the self determination and will…[Read more]

Thank you

I do hope your journey,s are long and the best you can make of them,Liz it’s best to escape the roller coaster as we all know it’s going to pass your way again,and Myeloma should not become normality,but in the end it’s the only thing you know.

Thank you both again,Stanley,Slim was always proud of me, but he is more likely to come back…[Read more]

Hi Rebecca

I have just looked into your profile as no picture! And see how much you are now helping other people, I know I was too blunt at times! But you seemed to be able to get the message across very well, this is the way it should be,helping each other on this journey,then leaving that road and going on a different one.

It makes all of us…[Read more]

Vicky
It goes without saying how sorry I am to hear your news.
i know the auto pilots switch is on for you now,it takes awhile to realise how exhausted you have become,it’s very hard to cry and mourn.
Just try to cope the best way you can,these last few years you have held everything together,being strong for everyone,I can only say,be proud of…[Read more]