Have a wee vodka or maybe 2. Think I'm on 3rd glass of wine. Sons were up and thats my excuse. The main thing is that you an Elaine have a ball and enjoy every minute. Will be thinking oh you tomorrow. Go get them Tom !!
Love Jean x

Same as My sheat Jean time is important I think and jope the Dex is soon sorted 😎

Love Tom "Onwards and Upwards" xxxx

Jean I think am getting too x-cited am not sure if I can sleep tonight, so thoght i would have a vodka tonight. cant wait to tell you how why or what and as for the "Have to kill you" think it will have to be have to tickle you" Lol.

Love Tom mxxx

Tom looking forward to hearing how you got on or is it "if I tell you I will have to kill you" :-S
Love Jean x

Helen

Ellen replied and said Chemo tablets can be taken whenever suits the person . She just reiterated that Thalidomide to be taken at night and Dex in morning. Thank goodness, hope next month will be as good as this one. Just have to get the Dex sorted now.:-P
Love Jean x

Hi Tina

Well that surly isnt your bestest moan?? and as for the weakness I went on sick after my second round of CTD and stayed of for a year I still dont feel a 100 % but am happy with that do as much as you can and rest your body has been poisoned with the drugs, still do as your body tells you and rest when needed but we do need exercice to…[Read more]

Hi Ali

Am sure your Mum loved that sneaked in Hug 😉

😀 Your Mum is realy doing great 😀 I bet your fealing better after the chat with the Nurse, those devils do make us poorly but they sure know how to make us better and be "Onwards and Upwards"

Another sneaky Hug for your Mum

Love
Tom "Onwards and Upwards" xxx

Hi Elfriede

A warm welcome to you.

I have been on a plane many times since my SCT and would do again yes my body is weaker and I get tired but hey I was put on this Land to party and Holiday (work is a bit of a bore)

I say if your fit and the Dr says its fine get yourself off and Enjoy it 😎

Tom "Onwards and Upwards" x

Hi Folks Thanks for that I cant wait (spose am gonna av to though 😛 )

Jo you know how to make a man Blush I can tell you he he
Etta its getting control of my nerves for the camera tomorrow 😉
Eliz Elaine and I are going to newcastle to have fun and it just happens I will have an audition for Deal or No Deal 😛 and whilst I am doing that…[Read more]

Hi Tom

Thought you were kidding when you said you needed character references,lol:-) fancy that if I had known you were serious I would have given you a glowing reference.

Any way good luck Tom although you do not need it,I hope you have ordered your mm tea shirts,if I am correct the show is based in Bristol lots of mm members around there…[Read more]

Hi Tina

I think the initial relief of finishing 6 cycles of CTD made me feel good to start with anyway, but feeling not 100% after just 4 weeks is quite normal. I had trouble getting to sleep at night and kept waking up every hour or so as soon as I stopped taking the thalidomide.

Fatigue and tiredness is natural too. If you sit and think…[Read more]

Hello Elfriede

You sound like me. I loved to travel the world before my MM diagnosis but obviously have had to stop temporarily. However, I've had a couple of short breaks in the UK.

Stage 3 Myeloma probably means that although you feel good, your bones and organs are at a weaker stage than mine.

I had my SCT 6 months ago and when I had…[Read more]

Hi Charlie

Just to say that I have sent you a couple of private messages. They should be in your "inbox".
Michele x

Hi Ali thanks for the post you don't sound negative at all I watched my mum go through cancer 12 years ago and I understand your views. I am 55 and my girls both live in oz so I'm glad they didn't see how bad I was at Christmas but feel better reading all your posts. Line went in ok so start my SCT next week can't wait lol.you keep strong and make…[Read more]

Good luck Tom you will win them over with that cheeky smile.
Etta x

Hi Elfried
You have come to the right place for info I am sure the many that have been away will reassure you,
Sorry to hear you have lost your confidence but what has kept me going is the saying no pain no gain lol.
You say your feeling good now so believe and you can get that well deserved holiday good luck.

Iam having my SCT next week and…[Read more]

Thanks Helen I hope you are right as it has made a real difference to Frank – hope it is not a one off. He actually went out down to Marks and Spencer's. I will let you know what Ellen says.

Ta
Jean x

Thanks for that Tom. I have emailed Ellen to ask her. If I don't hear from her I will try our nurse. The only thing is Frank is so much better today than he's was by taking them early in the morning. Will see what they come backe with.

Thanks Michelle will phone tomorrow

Love jean x

Hi Michele

Am sure we could fill the room from MMUK he he xx

Hi Jean and Frank

Well I have done well I found my spread sheet when i was having my CTD and it has times I should take the tabs on a day as follows :::::

1) Granisetron, 1tab at 8 am and one tab at 8pm every 7 days

2) Cyclophhosphamide, 10 tabs at 8am every 7 days

3) Dexamethasone, 10 tabs at 8am and 10 tabs at 11 am dyas 1to 4 and…[Read more]