Hi Lynne

You are so right re "[u]try not to feel guilty thinking you could have done this or you shouldn't have thought that …. it's a hard road, we can only do our best."[/u] as My Young Bride and I have said that many a time we do the best "At that Moment" and we promised each other we would not say WE/I should not have blas bla as its a…[Read more]

Hi Lynne

I am so sorry for your loss,this Myeloma is a hard road to take,and John,s seems to be harder than most,the last few weeks must have been some of the saddest days tinged with lots of love and memories,my thoughts are with you,and I hope,that as time passes all the good memories will makes you smile.Love Eve

Hi Vicki & Colin

I personally found my 6 cycles of CTD far more gruelling than the STC. In the weeks between finishing treatment and starting all the STC stuff I felt generally a lot better but did have sudden attacks of fatigue which I knew was to be expected. I think the thalidomide I was on must have acted as a sleeping pill too because as…[Read more]

Hi Pennie and Andy
It is nice to hear you are sounding a bit more positive.Do not forget any problems with AA appeal,I hate to say it but things are going to get worse before they get better,sometimes the chemo takes so much out of you.
I had to replace white carpets with laminated flooring,I will let you guess why.:-|

The more chemo and…[Read more]

Hi Vicki and Colin

Well I had CTD then SCT in 09 was feeling weak and tired during and and even when having no treatment, even today I still get tired easy some days and some days I am spot on 🙂 dont get me wrong I cant do a run (dont think I ever could though he he)

Am sure if bloods are OK then Colin might be same as me and just plain…[Read more]

Everything crossed Wendy for Thursday. You are one Gutsy lady. Whatever you decide – enjoy.
Helen I have been to Venice twice I just love it – a beautiful place and would love to go back – enjoy

Love Jean x

Well done Paul.
Like Tom said keep as germ free as you can. My husband David turned our house into Fort Knox when I first came home. We were so very unsociable but our friends and family understood why we were like that!

You'll no doubt feel a bit weak and feeble to start with so don't do too much. Rest whenever you feel like it, although I…[Read more]

And you I John got you on Face Book now 😀 And Wow it looks like the place will be awash with MM tee shirts Dai.8-)

Dear Lynne

I am so sorry for the loss of John to this awful disease. And reading your posts of John's journey, you are so right to be proud of him. Lynne I really don't know what to say but just to let you know that I will be thinking of you in the weeks to come. Tom is right – you had years of good times to remember. My sincerest condolences…[Read more]

Hi Keith

Well you have some good answers so all I can say is Good Luck with it all on monday and hope you get something sorted, for me i had no problems re diabetes then or thankfully now.

Keep fit and good luck

Tom "Onwards and Upwards"

Hi Paul

And a welcome home 😀 16 days is good same as mine 😎
Keep germ free and fit (ish) and good Luck in the road to recovery.

Tom "Onwards and Upwards" x

Dear Lynne

I am so sorry to hear that John has Lost the Battle with Myeloma.

Over the years you have been a strong Lady in this Group helping others with strong words of wisdon and kind caring ones at all times, and that Strenth you had will help you get through your sad loss.

I am sure I dont have to say it but feel i want to and that is…[Read more]

Hi Alan what a lovely post. I am so glad that you are in remission, your journey with this awful disease is inspiring. My hubby is on 6 cycles of CDT – he is coming to the end of the third – halfway there. If everything goes ok they will start STC.

You sound as if all your support networks are in place. Good luck and long long long may…[Read more]

Hello Keith

I'm so sorry you're having so many problems which seem to be caused by dex.
When I was on 6 months of CTD I hated the days when I had to take the dex. They were on days 1-4 and then 12-15. On the first 4 cycles I took 20 2mg tablets each dex day. Then I noticed that my feeling bad days were expanding every month so I mentioned it…[Read more]

Hi Gill

So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]

Gill absolutely delighted with your news. 🙂 Was feeling a bit down but when I read your post – cheered me up no end. I'm glad the wizard is working magic And Stephens pain eases considerably and quivkly and he can enjoy driving his Jag

My best wishes to you both

Love Jean xx

Hi Helen
Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.

One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
I have just come on to say…[Read more]

Hi Keith

I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S

I know all about green tea,green…[Read more]

Hi Ali

Your Mum is doing great so far (dunt look like it but Mum is dong well) its still up hill for your Mum but will get easier as the days,weeks flow by.

I needed anti sick tabs for weeks after my SCT just couldn't keep anything steady.

Give your Mum a Hug from me as like most here we have been through it.

Love and hugs

Tom…[Read more]

Dai My you do sound (and i know its silly to say) better than you have on the other posts 😎 I also am gonna use the "Mystic Jo" if ever i feel ill 😀

Good Luck with the new Tabs and hope the little beggers are soon Flushed away Lol.
Am sure we would all love to see your "New" Goatee 😎 so will a photo be posted?

Keep Flush and…[Read more]