Hi Ali
Well this is it,no going back now,your mum went into this being very strong,so you keep your chin up and keep her spirits up.

If your mum keeps being sick,and cannot keep tablets down they will use a driver,her throat is the first thing to get sore and as Tom said mouth washers as much as possible,saying that Slim could not do even…[Read more]

Hi Wendy
Bit of a Bummer after such a nice holiday and to come home and have your kappa light chains going up.

As to having to wait a couple of months to find out what is going on,to me is all wrong,but saying that Slim is in the same boat,for a long time now the bloods and kappa light chain test have yielded results that have nothing to do…[Read more]

Hi All

Wish I had known about that med for hiccups ,had Slim doing it in his sleep,drove me mad,now it is just every now and then usually when we are out,and things are very quiet,and out of the blue one loud hiccup and the whole world turns round.:-P Eve

Hi Charlie

Frank has just started 3rd cycle of CDT. First month drove him nuts with hiccoughs, they went on for hours. The consultant put him on Nexium. It helped a bit, second month she increased it and so far he has only hic coughed a little. When it starts he takes natural yoghurt and it stops them. Hope all goes well with you.
Take care
Love Jean

Hi Ali

Good Luck to your Mum on the road to Remission, its a hard rough ride but one that is well worth it.
Advice?? well I think Helen has covered a lot of it and I say take the Mouth wash every time your Mum nips to the loo or just feels like she has nothing to do the more mouthwash used the less problems (it was for me anyways) and the…[Read more]

Hi Charlie

I think you know I was on CDT then the SCT I had in Dec 09 and its some time down the road and I am now Drug free so trust me Charlie the trip is worth it its hard its long but its worth it stick with it and no sooner said than done.

Re the "Hick Ups" our Land Lady at our pub sorts all of those out by "Getting you to fill your…[Read more]

Hi Wendy

Well your Nurse is correct, I am told that the tests over a period of time go up/down (no wonder am confused) but your Nurse is wrong in saying "tests were expensive and cant be too frequent when not on treatment." well am sure if it needs treatment the sooner the better.
I would get in touch with the Top Man and ask if you can have…[Read more]

Hi Andy
If good thoughts good get you through this,there are plenty on here for you,as to being excited or worried,could you have been any more worried than you were with not much progress!!!!
Make it Excited you are going to see one of the people who know all about this dreadful disease,who works in a hospital were trials are being held.

So…[Read more]

Hi Teresa

I am so sorry Teresa,I hoped for your sake that Peter might live long enough to see the new grandchild,but it was not to be.
I hope Peter had a peaceful end with his daughter and son and yourself,It is sad that people are taken from us when they have every thing to live for,and my thoughts and good wishers are with you.

Try not to…[Read more]

Hi Andy

Well Done M8 and am sure that Tuesday will soon be here (I hate waiting)
And never worry about it yet excited is better 😎

fingers crossed for you

Tom "Onwards and Upwards" x

Dear Teresa and Judy

I am so sorry to read you have both lost your loved ones to this dreaded MM. I send my Love and Cyber Hugs to you both at this very sad time.

Love and Loads of Hugs

Tom xxxx

Dear Teresa and Judy

I am so very very sorry that your beloved husbands have lost their battle with this horrible disease. My thoughts and prayers are with you both at this terrible time

Love Jean x

Hi Chris
Congratulations,that is good news plus brings a lot of hope to people who are just starting there journey.

We could do with people like you posting more often,but i suppose once you are out of the myeloma bubble,you do not want to keep looking back

Thanks for you news Chris. Eve

Hi Alex

First may I say welcome ,its the old saying no one wants to be here,but this site is very informative,:-S
Second know very little about padimac trials except its not in SE Kent and if my husband wanted to go on a trial like this it would be constant visits to London.saying that if needed we would.:-(

My husband is over 18 months…[Read more]

Chris I am delighted to read your post. It is always uplifting hearing about real positive journeys. Long may it continue.

Love jean

Aww bloomin Ummm… on your behalf Dai, Bless I bet you both have got your heads spinning am I aint I Ummm… again.

Its strange though the more folk you talk to (even none MM folks) seem to get ill during the night/w,end whn its harder to contact the People we need:-S
Am pleased it is the best you have felt for a few weeks Dai lets hope that…[Read more]

Hi Gina
Lovely to hear from you,I hope you are enjoying life,know you must be missing mum,first year the hardest.

As for Slim feeling lucky that we have got this far,has had to up his pain killers but better to have some quality of life,than be constantly feeling bones aches and pains.the damage plus other complaints coming to the fore.

End…[Read more]

Hi Dai

This is a roller coaster ride for you,feeling better on Myeloma Drugs,yet having problems with pesky bugs.I think you feel it more when you have been having a better quality of life,and something like this starts.
I know no one wants to take more tablets,but maybe antibiotics long term might be the answer:-(
I hope they sought you out…[Read more]