Hi Etta

I am so sorry to hear about your sister, I send my condolences to you and your sisters family and Friends.

This site is not just for MM and its bits and bobs am sure we all agree this great site is for everything to with our lives to share and be shared, our ups and our downs.

And Etta am sure you dont know how to ramble 8-)…[Read more]

Good Afternoon you all 😀

Well done that Steve, I know you are hanging on to them Steve but now is the time to give them over Honest the hospital will look after them till you are ready to have them Back Lol.

Keep shoveng those stems out into your bloodstream.

Tom Onwards and upwards x

Hi Mari
I know110 for Platelets is low,but Slims have never been above 50,so I have given in worrying when he walks into a door or knocks himself,apart from wrapping him in cotton wool,I cannot do any more,and my attitude is if internal bleeding is the danger,why is no one very concerned.!!!!

I would agree they need to be very stubborn just to…[Read more]

Thanks jean and eve
It has helped me having my ramble every body is very thoughtful special thoughts to all who have lost someone
Love Etta x

Thanks Helen my sister was old enough to be my mum,but we were best friends as well.
When we were both fit off to bingo we would go and have fun ,I hope she has met up with some old friends.
When I am fit again one of her daughters said she will take me , I think she is trying to keep my spirit's up.
I get my stem cells back in August so I…[Read more]

Hi Etta,
I am sorry about your sister,I know a few on here who have had the same thing going on in there lives Jean lost her brother,I lost my Grandson,so we do understand how you feel,myeloma is hard enough without a death of a loved one.So you are entitled to feel low,we can only off sympathy,and a realisation that we do know how you feel Love Eve

Dear Etta

I am so very sorry for the passing of your sister. Life can deal us some terrible blows but this is a brilliant place to rant as much as you like. My sympathies are with you and your family. Please take care of yourself

Love Jean x

Thanks Mari
I feel much better now spoke to eldest daughter in oz on Skype had a cry together.
So will try and keep busy today thanks again.Etta x

Hi Mike

Well as you know,the patient does not get much choice,it,s either trials or treatment as laid down by NICE and all of this is still a post code lottery, If you are lucky and can find a Haemotologist that has a special interest in Myeloma and also has some perspective about the awful damage and pain it causes,physically and…[Read more]

Hi Amelie
Well i hope John has a good recovery,and starts to feel better,I do not envy you a winter in Denmark,but I suppose as we are use to wet weather you are use to the snow and cold,my husband spent many a winter in Denmark,one of his hobbies,was blowing wholes in the ice and diving,use to be in the Marines!!

I was interested in your…[Read more]

Hi Andy

Good luck with the Radiotherapy,
As to the catheter,well the question must be why did they put it in????loss of control or your condition at the time it was put in?????.
There seems to be grey area,s with your low back,chemo works on any form of cells,they know chemo has not worked to reduce your cells,so why have they not given you…[Read more]

And same from I and i wish you both a very very long remision.

Love and Hugs to you both

Tom "Onwards and Upwards" xxx

Hi All

Am Pleased it works for you David 😀 having those bottles in the fridge and facing you every time I go for the lemonade for my Vodka is a great reminder Lol

Keep the water flowing 😎

Tom "Onwards and Upwards"

Hi Dai
Well you know this MM lark more than most I would say and am sure you want the levels to drop but a straight line is good so far 😀 , you will have to make sure you are BUG free and those around you are also bug free or just wave through the window at you.

Keep strong My Friend.

Tom "Onwards and Upwards" x

Congratulations to you all Kids let alone Grandkids enhance our Lives 😎
And I should know am on our sixth 😎

You will need a Cuddle chair like mine 😀

Love to you all and enjoy your new Granddaughter. xxx

Hi Mari and Steve

Well no rush to drag them out they must be comfy where they are 😀 so they will soon settle back in when SCT gets going 😎

Hope its a good phone call today

Love
Tom "Onwards and Upwards" xxx

Hi Liz and Kev
Congratulations on another granddaughter, Myeloma puts everything into perspective,for all the family. Also you appreciate the event a lot more when you thought you would only have the one grandchild.
I hope you have lots of first ahead as a family,first steps,first school,first boyfriend,and lots more. Love Eve

Hi Amelie

John is lucky to have enough stem cells for a second sct,and not have to go through another harvest,is any after treatment planned after sct. ??????

How long did John get from first sct to mm coming back?????

Am I correct you are based in Holland,do they have a criteria to follow or is John on trials,or is he treated more as an…[Read more]