Hi Gail
I am so sorry Gail,you must be beside yourself with worry.
Some times people choose there own fate and it must be awful for you to watch,it does happen some people choose,not to fight.
I can only imagine what it must be like for you as the carer.Howard is a very brave man,his decision must have been hard to not fight and leave his loved…[Read more]

Hi Gail
Howard can fight back but he needs all the help you can give him.
You do not say if he is on a ward or in ITU.!!
If he is on a ward get the dietician on board,and be there at meal times and feed him,even if it is only a few mouthfuls plus stay by his side and make him drink,its hard I did it for 22 days.Take anything in he will eat.the…[Read more]

Honest Dai I have never felt nor looked like a hero Lol.
Its a job that has to be done and we have all gone through it (Pardon the pun)

I tend to forget the times i didn't make it and had to shout Elaine (with a pitifull tone lol)

So now all well its an "Onwards and Upwards" 😎

Hi Ali

When I had my Hickman line fitted it took approximately 30 mins start to finish. The longest part was waiting for a x-ray afterwards to unsure it was in the correct place. Mine was fitted at the day unit.

Andy

Hi Keith
Sorry your struggling with the Rev/Dex. I find I have half a day to do what I want to do then I get tired around 1pm and have to sit in front of the tv and fall asleep during the afternoon film. I haven't at any time felt like passing out though! Hopefully it is something that will pass.
You may improve as you become use to the drugs…[Read more]

Hey Eve and Slim

One Banshee here but this one is " short fat and bald and wears No long nightie" but has had its moment of the comb throwing but thats cos am Baldish Lol

Pleased you never got that call 😀 looks lie its on the up 😎

Stay Strong and Catch you lata

Love

Tom "Onwards and Upwards" xx

Hey Mavis

A well done that girl 😀 as for the withdrawal symptoms we all differ did I have any in 2009 ?? I cant remember 😀 so thats a good thing aint it 😎 .

Just hab[]ng in its looking and working real well 😎

Love

Tom "Onwards and Upwards" xxx

Hi Onlyme

I am pleased your Mum is being looked after At the Mac Unit.

Stay Strong for your Mum and Prayers are being said for you all.

Love and Hugs Tom xxx

And Tina that minute is now 😀

Well am sure you know I had my SCT wayy back in December 2009 (went on sick may 2009 when on CTD) went back to work (light dutie's) May 2010 and as I sit here after being back at work for just over two years and still on the Light Dutie's I feel as I should have not gone back to work :-S I feel tired and just…[Read more]

Hi Keith

Now I remember Phil Kelly had a problem with passing out? not sure if Phil was on same treatment?? but I would phone your Contact Nurse.

Hope your soon sorted

Tom "Onwards and Upwards"

Hi Alison

And that it is and Thank you for the Birthday Wishes 😎

Hows you coping??

Love Tom "Onwards and Upwards" xxx

Hey Dee and Dad

Well I for one is pleased they have sorted out you Dad's pain and sickness 😀

Am sure your Dad is fealing good by able to move about a bit and eating a bit more, tell your Dad he is now an "Onwards and Upwards" Guy8-)

Love to you all

Tom "Onwards and Upwards" xx

Hi Girls

Helen am sorry to read about your infection I hope its soon cleared up, and hey dont worry about work that will come later when you are fighting fit 😎

Rosie is correct on tow things it will get better and Helen you hair looks Great xxx

Love to you all

Tom "Onwards and Upwards" xxx

Thanks you all 😀

These Post's have surely gave The Old Woman and I a boost 😎 and for that we thank you 😎

Tina Copious amount of drinks has been drunk 🙂
And Thank You Gill it is great news 😀 , And Mavis you know by now we will enjoy the days ;-).

Liz and Kev many thanks, and yes Nuts with drink is good for you, shame about…[Read more]

Hi Mavis

Great news. Hope you get a long long remission. Don't know about withdrawal from CDT as Frank is on the 2nd cycle of the first time.

Take care
God bless
Love Jean x

Hi
I agree with John and Sue
Slim never got it until after he finished Velcade,he had Amitriptyline 5 to help him sleep,then when he was in Kings they gave him 25 and said it was a form of PN,I bought the Palmers cocoa butter Slim very seldom complains of his feet now.
I also get Polytar for his skin and must say since he washers in it,has…[Read more]

Hi Gill
I did not know what a banshee was either,heard the saying!!!!:-)made me laugh

Gill I know I am over the top when it comes to Slims eating,years ago he ate like a horse,but he is down to 61.8 k my daughters are all going on diets to stay below his weight.LOL.
For every ounce he looses I gain,I eat to keep him company,because eating is…[Read more]

Hi Andy

That is why I asked were you are having treatment!!!,At the end of the day how do you feel about your treatment,There are Trials going on in all the major hospitals.
If you put Trials in the search engine on here it will come up with all trials plus were they are,If you ask Dai he will tell you his experience of not having the best of…[Read more]

Hi all

Many thanks for all the replies 🙂

Dai when I was first diagnosed my PPs where 50 and I was told I had to achieve at least a 50% reduction before I would be considered for SCT. Wether that is still the case I will check when I next see my consultant. They have already tested my brother and sister for matches for a Allo SCT my brother…[Read more]

Hi Andy
I noticed you joined the forum in Feb this year,but started treatment in Oct 2011,I have followed your different treatments,I am just surprised they do not seem to give them much time to work,I say this because Slim started treatment in January 2011 and was still having chemo up to the Christmas2011.
It took a long time to get that stage…[Read more]