Thanks Vicki

I really appreciate all the support this forum gives. I feel a bit more positive as I told Frank what David had said about PN a d he is asking some questions. Which is a start. Dreading tomorrow but I know what you mean about the worry. Good job I like football as well. It has only started and one of my daughters in law says its…[Read more]

Hi Helen

I know,its just he has been here before and it took a lot out of him then,I was told then,he may never get back to the man he was,and they were right then,but give Slim his due he is a fighter,so fingers crossed.
I think it,s just me feeling sorry for myself,have given myself a kick up the bum:-P and Tom cheered me up 🙂

Going to…[Read more]

Hi David
I would agree, it just makes me wish I had put a high value on are years together 30 years together and 1 year married,I ask myself why we need such a wake up call as Myeloma to value what we are loosing.
I am feeling sorry for myself better give myself a kick up the bum.Love Eve

Do you know Eve if i could blush I would Lol

Well am pleased they didn't Chuck HIM out, yes I was under Castle Hill in Hull for my SCT and went every week to have bloods and check up then on my 10th day (or near as danm it) I had another BMB But hey Ho still in Remission since 2009 😀 and after all I went through it was well worth it 8-)…[Read more]

thanks Tom

It just what I need at this moment,a lovely man cheering me up and making me smile:-) 🙂 🙂

No they did not chuck him out,i think they have done all they can for him,because of this 100 day rule we are officially under Kings which is 86 miles away,they will keep looking at his bloods to see how he responds!!!!

I bought…[Read more]

Hi again Jeant

I was just looking through the post and thought I sounded very harsh I did not mean too, and must apologies to you.you are very worried and did not need me to tell you there is no answer.
The CRD has had good results its just about finding something that does the job,all the chemo,s have side effects and because people are…[Read more]

Grumpy old man Bless him Lol

Its a good job it was only a discharge note he made the mistake on the next patiant might be having his left leg removed just think of the mistake in that one? :-0
I do hope they didn't throw Slim out because the needed his Bed?

I know you will take care of Slim and wont let him do too much yet and dont forget…[Read more]

Hi Jo And Liz

Well my grumpy old man rang me at 8am yesterday to tell me he had been discharged so off I went to collect him,but when i got there,the doctor had made a mistake on paper work,so he had to be re discharged again by 11 he was loosing the plot,so all for a mistake in the paper work,Slim discharged himself,they were desperate for his…[Read more]

Hi Jean

Once when I was in the car with Slim,he was getting very jumpy and very annoying about my driving,he use to drive most of the time,i just came in handy when he had a drink and could not drive,but on this occasion we were on are way to hospital and he was so annoying i stopped the car.

He told me not to go any further as the car was…[Read more]

Hi Everyone

Helen it is a world wide Trial but it is not in all area,s of uk. I know in the South East Dr Pocop fought to get these trials allocated here.If they were not here Slim would not be on them as the nearest place that had them was Kings in London.86 miles away and sick patients would not be able to manage it.But you have the same…[Read more]

Hi All

Dai after reading your post I realised that I was angry as well. Frank had gone to bed but I went up and told him he was going to listen to me. I told him about all of the posts and of the information that I had gotten. And he LISTENED and asked questions. One of the questions was how long have you lived with PN? Helen I asked him if he…[Read more]

Thanks Jo, Eva and Helen

I really appreciate your replies and have taken on board all that has been said. I really don't know how to describe Frank and his attitude to this bloody disease. When first diagnosed he told the family that he wanted no research done on this disease and any info that he needed to know his doctor would tell him. He…[Read more]

Hi
Oncologist this is a blood cancer were is the heamotologist ??????

Hi Jeant
My name is Eve,My husband has had CTD plus Velcade them SCT,I do not know any back ground,so it is very hard to make any comments.
The question you should be asking yourself is how much do I want to know,???

The experts have to answer your questions
So you must decide what you are going to ask.
If they are treating your husband…[Read more]

Dear Tom, Dia and Eve

Thanks for support and tips. Really don't want him to come off Thalidomide so I will keep in mind Dai what you said. Will have to wait until Monday to see what they come up with.

Thanks again

Jean xx

Hi Jean
Here are some tips that might help you

The anxiety is fairly normal,kicks in over silly things,Dex moments they are convinced they are right,so just remind him when he has taken his dex.Ormake a chart out of tablets then tick when anxiety starts tick under it,and you will see a patten emerge.
Massage seemed to help Slim and some one…[Read more]

Hi David

People on the Myeloma trials X1.are randomised by a computer after SCT.for maintenance therapy or no treatment,so it,s the luck of the draw.Great fun it is not.Love Eve

hi Karen
If your GP did an urgent referral you should have been seen with in 10 days.
Get on to your GP tell him that you have not had appointment through.This is the procedure.

Karen your pains could be a number of things,but if you start feeling sick or are in sever pain,you could have problems,after what happened to my husband I would…[Read more]

Hi Jean and Frank

Sorry I cant add to any of this only to send you both a CyBer (HUG). I know its scary when they tell you to come off something and have to wait for a few days before something else is sorted they might give Frank a reduced dose?

Keep strong they will soon find something that "Fits" Frank's set up.

Love and Hugs Sent…[Read more]