Hi Ann

My husband has just finished 1st week of CDT and he is saying that things taste different. The worse thing to him is the Water- and you know he has to drink a lot. Have bought bottled water to see if it made a difference. He says it doesn't taste as bad. Hope things improve

Love Jean x

Hi Jen

Sorry you have to join us but welcome. Like Alison I can't answer your questions but someone here will help you. My husband was diagnosed 6 years ago but only started on CDT last week. He has two lesions on his ribs. We saw radiotherapy consultant yesterday and she said that she didn't think that radiotherapy was necessary. Maybe…[Read more]

Hello Jen.
Welcome to the forum. Sorry that you have had to join but hopefully you will find plenty of support and advice. Multiple Myeloma is an awful disease that presents in many ways. Everyone's journey with MM is different and so is their treatment.
I was diagnosed in October last year and as yet have only had one lesion as far a I know.…[Read more]

Hi Alison

I am replying to your post under treatment,it shows in my e mails but not on the board.When I looked into your profile it is not showing a posting,so I have used your last posting to reply.(does that make sense!!!!!)

I think the system is having it,s own blips as 2 of the headings have not been showing on my computer screen. Love Eve.

Well Thats great news dai, Its bad driving on moterways these days without the rain. I bet your both as proud as punch with each other for doing it together.

Good Luck on your next trip and I dont think the next one will be too far away.

Love to you Both

Tom "Onwards and Upwards"

Hi Eva

How is Sue getting on,although Slim is home we have spent 2 days going back and fourth to are local hospital,Slim has a problem with his platelets on Sunday they were 33 today down to 7,there is fine explanation under the Macmillan Site.Explaining some of the reasons why this does happen .

One explanation is having platelets from…[Read more]

Hi Gail
Eve again just realised I am loosing the plot called Howard,Henry,My excuse is i was up with Slim during the night and I have not caught up from all the travelling to the hospital.Sorry Eve

Na then Tery

I love the way you cope with it all I also feel that its a head as well as a body challenge kepp them both strong and you are on to a winner.

Keep strong and well

Tom "Onwards and Upwards"

Ps great photo. I must take my young Bride to Scotland one day soon x

And A Good Morning to you also jacqui, what great news to read today well done Girl and long may it continue 😀

I know itsa a little bit of a rough crossing but the more folk that say its worth the trip the more will take that trip with more ease and less uncertainty.

As for your low levels of energy mine came back to an acceptable level…[Read more]

Hi Gail

Sorry to hear henry is having a hard time,may be a little time in a hospice is what he needs.They will be able to get his symptoms under control and help with his anxiety this is what they do and a very fine job.

You said your self Henry,was behaving so out of character,I think we look on hospices as a place to die but they do so…[Read more]

Hi Terry
I would agree with all your thoughts and what a beautiful picture of Scotland.
You have to keep positive,and enjoy every day.Eve

Hi Chris
A belated welcome to the site,one minute you have everyday living and in the next minute you have joined the club as a carer.

In my mind Myeloma is a dreadful thing,your life does get taken over by it,we do hear of some people who sail through treatment,and go on to live as normal as possible,but we all have the knowledge that one day…[Read more]

Hi Paul

Pleased your doing better M8

The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.

Good…[Read more]

Hi Jo

Glad that you are having a bit of a break from appointments and doing well. Do you live close to the hospital? We are fortunate that it inly takes about 20 minutes to get there. So if we have a long wait we just come home.

Frank has been on lots of medication, injection and Dex – tomorrow last day for Dex till Friday. Not sure if…[Read more]

Hi Andy
I know how hard it is to remain positive,but it has started to go down,very slowly but it is in the right direction.When Slim was on Velcade it was awful waiting,he had to have 4 cycles before they would take a BMB,as bloods and light chains were considered un reliable as they were not showing a true reading,and on top of that the…[Read more]

Hi Jane.
Welcome to the forum. You will find lots of support and advice here. Good luck with your treatment and your fight against MM. I myself was diagnosed Oct2011 and have had my ups and downs with my battle with MM. It's important to listen to your body and if your feeling tired rest up.

Take care.
Andy xx

Hi Chris
Welcome to the forum that we would all rather we had never needed. You will find that we are all a friendly bunch and some a gold mind of information. Ask any questions you like and you will get honest and frank answers you will also get lots and lots of support. No two peoples journey along the MM road are the same we all react…[Read more]

Hi Paul.
If everything went according to plan – which I hope it did – you should be out of hospital now and recovering from the treatment. I hope you didn't/wont suffer to many side effects and those stubborn pp's have been given an a**e kicking.

Take care.
Andy

Hi Eve and Slim.
What great news Slim is back home.
Hopefully the road ahead will be smooth and pass quickly till Slim is into a long remission.

Wishing you both all the best.

Andy xx